Reducing Health Care Disparities in Sickle Cell Disease: A Review

Sickle cell disease (SCD) is an inherited blood disorder most common among African American and Hispanic American persons. The disease can cause substantial, long-term, and costly health problems, including infections, stroke, and kidney failure, many of which can reduce life expectancy. Disparities...

Celý popis

Uloženo v:
Podrobná bibliografie
Vydáno v:Public health reports (1974) Ročník 134; číslo 6; s. 599
Hlavní autoři: Lee, LaTasha, Smith-Whitley, Kim, Banks, Sonja, Puckrein, Gary
Médium: Journal Article
Jazyk:angličtina
Vydáno: United States 01.11.2019
Témata:
African Americans - statistics & numerical data
Anemia, Sickle Cell - complications
Anemia, Sickle Cell - ethnology
Anemia, Sickle Cell - therapy
Health Care Costs
Health Services Accessibility
Healthcare Disparities - ethnology
Hispanic Americans - statistics & numerical data
Humans
Insurance Coverage - statistics & numerical data
United States
United States
health care disparities
access to care
Medicaid
community health centers
sickle cell disease
ISSN:1468-2877, 1468-2877
On-line přístup:Zjistit podrobnosti o přístupu
Tagy: Přidat tag
Žádné tagy, Buďte první, kdo vytvoří štítek k tomuto záznamu!
Popis
Shrnutí:Sickle cell disease (SCD) is an inherited blood disorder most common among African American and Hispanic American persons. The disease can cause substantial, long-term, and costly health problems, including infections, stroke, and kidney failure, many of which can reduce life expectancy. Disparities in receiving health care among African Americans and other racial/ethnic minority groups in the United States are well known and directly related to poor outcomes associated with SCD. As an orphan disease-one that affects <200 000 persons nationwide-SCD does not receive the research funding and pharmaceutical investment directed to other orphan diseases. For example, cystic fibrosis affects fewer than half the number of persons but receives 3.5 times the funding from the National Institutes of Health and 440 times the funding from national foundations. In this review, we discuss the health inequities affecting persons with SCD, describe programs intended to improve their care, and identify actions that could be taken to further reduce these inequities, improve care, control treatment costs, and ease the burden of disease.
Bibliografie:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
ObjectType-Review-3
content type line 23
ISSN:1468-2877
1468-2877
DOI:10.1177/0033354919881438