Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates

Patient centricity and patient centeredness broadly refer to any process, program or decision focused on patients in which patients play an active role as meaningfully engaged participants (not simply as study subjects) [2], and patient-centered health care is defined as care that is respectful of a...

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Vydané v:	The patient : patient-centered outcomes research Ročník 14; číslo 5; s. 687 - 690
Hlavní autori:	Oehrlein, Elisabeth M., Harris, Jason, Balch, Alan, Furlong, Pat, Hargis, Eric, Woolley, Mary, Perfetto, Eleanor
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	Cham Springer International Publishing 01.09.2021 Springer Nature B.V
Predmet:	Caregivers Collaboration Communication Decision making Goals Health Administration Health care access Health care delivery Health care policy Health Economics Health Facilities Humans International organizations Letter to the Editor Medicine Medicine & Public Health Patient Advocacy Patients Pharmacoeconomics and Health Outcomes Principles Product development Public Health Quality of Health Care Quality of Life Research Stakeholders Task forces United States Values United States United States > US
ISSN:	1178-1653, 1178-1661, 1178-1661
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Abstract	Patient centricity and patient centeredness broadly refer to any process, program or decision focused on patients in which patients play an active role as meaningfully engaged participants (not simply as study subjects) [2], and patient-centered health care is defined as care that is respectful of and responsive to individual patient preferences, needs, and values in the context of their own social worlds [3]. [...]a Task Force was formed with a multi-stakeholder group of 21 participating organizations. Collecting and sharing patient-centric data (with appropriate privacy protections) should be leveraged to support high-quality health care delivery, research, value assessment, medical product development, and policy efforts. 2.3 Patient-Centricity and Transparency in Health Care Delivery * Principle #6: While one organization or group of stakeholders may not be able to individually achieve implementation of each and every principle, it is valuable for relevant stakeholders to consider which actionable principles can serve as a starting point for collaborative efforts in the short term that can have impact for patients.
AbstractList	Patient centricity and patient centeredness broadly refer to any process, program or decision focused on patients in which patients play an active role as meaningfully engaged participants (not simply as study subjects) [2], and patient-centered health care is defined as care that is respectful of and responsive to individual patient preferences, needs, and values in the context of their own social worlds [3]. [...]a Task Force was formed with a multi-stakeholder group of 21 participating organizations. Collecting and sharing patient-centric data (with appropriate privacy protections) should be leveraged to support high-quality health care delivery, research, value assessment, medical product development, and policy efforts. 2.3 Patient-Centricity and Transparency in Health Care Delivery * Principle #6: While one organization or group of stakeholders may not be able to individually achieve implementation of each and every principle, it is valuable for relevant stakeholders to consider which actionable principles can serve as a starting point for collaborative efforts in the short term that can have impact for patients.
Author	Balch, Alan Harris, Jason Perfetto, Eleanor Furlong, Pat Woolley, Mary Oehrlein, Elisabeth M. Hargis, Eric
Author_xml	– sequence: 1 givenname: Elisabeth M. surname: Oehrlein fullname: Oehrlein, Elisabeth M. email: eoehrlein@nhcouncil.org organization: National Health Council – sequence: 2 givenname: Jason surname: Harris fullname: Harris, Jason organization: National Health Council, Lupus Foundation of America, Inc – sequence: 3 givenname: Alan surname: Balch fullname: Balch, Alan organization: Patient Advocate Foundation – sequence: 4 givenname: Pat surname: Furlong fullname: Furlong, Pat organization: Parent Project Muscular Dystrophy – sequence: 5 givenname: Eric surname: Hargis fullname: Hargis, Eric organization: Colon Cancer Alliance – sequence: 6 givenname: Mary surname: Woolley fullname: Woolley, Mary organization: Research!America – sequence: 7 givenname: Eleanor surname: Perfetto fullname: Perfetto, Eleanor organization: National Health Council, Department of Pharmaceutical Health Services Research, University of Maryland Baltimore
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SubjectTerms	Caregivers Collaboration Communication Decision making Goals Health Administration Health care access Health care delivery Health care policy Health Economics Health Facilities Humans International organizations Letter to the Editor Medicine Medicine & Public Health Patient Advocacy Patients Pharmacoeconomics and Health Outcomes Principles Product development Public Health Quality of Health Care Quality of Life Research Stakeholders Task forces United States Values
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Title	Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates
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