Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice

People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding particip...

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Published in:Journal of intellectual disabilities Vol. 29; no. 3; p. 539
Main Authors: Scheffers, Femke, Moonen, Xavier, van Vugt, Eveline
Format: Journal Article
Language:English
Published: England 01.09.2025
Subjects:
Adult
Female
Humans
Intellectual Disability - psychology
Male
Middle Aged
Narration
Persons with Intellectual Disabilities - psychology
Photography - methods
Qualitative Research
Young Adult
guided photovoice
intellectual disabilities
qualitative research
inclusive research
methodology
ISSN:1744-6309, 1744-6309
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Abstract People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.
AbstractList People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.
People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.
Author Moonen, Xavier
van Vugt, Eveline
Scheffers, Femke
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  givenname: Xavier
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  organization: Forensic Child and Youth Care Sciences, University of Amsterdam, the Netherlands
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  fullname: van Vugt, Eveline
  organization: Forensic Child and Youth Care Sciences, University of Amsterdam, the Netherlands
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intellectual disabilities
qualitative research
inclusive research
methodology
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SubjectTerms Adult
Female
Humans
Intellectual Disability - psychology
Male
Middle Aged
Narration
Persons with Intellectual Disabilities - psychology
Photography - methods
Qualitative Research
Young Adult
Title Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice
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