Voices of Alzheimer Caregivers on Positive Aspects of Caregiving

To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease. Fifty-seven Hong Kong Chinese primary caregivers provided 669 diary recordings over an 8-week period, describing daily events and experiences in which positive gains were achieved. The diaries...

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Vydáno v:The Gerontologist Ročník 56; číslo 3; s. 451
Hlavní autoři: Cheng, Sheung-Tak, Mak, Emily P M, Lau, Rosanna W L, Ng, Natalie S S, Lam, Linda C W
Médium: Journal Article
Jazyk:angličtina
Vydáno: United States 01.06.2016
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ISSN:1758-5341, 1758-5341
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Abstract To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease. Fifty-seven Hong Kong Chinese primary caregivers provided 669 diary recordings over an 8-week period, describing daily events and experiences in which positive gains were achieved. The diaries were analyzed independently by two researchers using thematic analysis. Ten themes related to positive gains were identified: (a) insights about dementia and acceptance of the condition, (b) a sense of purpose and commitment to the caregiving role, (c) feelings of gratification when the care-recipient (CR) was functioning relatively well, (d) mastering skills to handle the CR, (e) increased patience and tolerance, (f) cultivating positive meanings and humor amidst difficult circumstances, (g) letting go of things, such as when the CR's qualities had been lost or personal agenda had become unrealistic, (h) developing a closer relationship with the CR, (i) finding support, and (j) feeling useful helping other caregivers. In addition to treating negative outcomes such as depression, practitioners and researchers should, identify means to promote positive gains. Strategies mentioned in the caregivers' diaries, such as reframing stressful situations in a more positive light, may provide input into the design of such interventions.
AbstractList To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease. Fifty-seven Hong Kong Chinese primary caregivers provided 669 diary recordings over an 8-week period, describing daily events and experiences in which positive gains were achieved. The diaries were analyzed independently by two researchers using thematic analysis. Ten themes related to positive gains were identified: (a) insights about dementia and acceptance of the condition, (b) a sense of purpose and commitment to the caregiving role, (c) feelings of gratification when the care-recipient (CR) was functioning relatively well, (d) mastering skills to handle the CR, (e) increased patience and tolerance, (f) cultivating positive meanings and humor amidst difficult circumstances, (g) letting go of things, such as when the CR's qualities had been lost or personal agenda had become unrealistic, (h) developing a closer relationship with the CR, (i) finding support, and (j) feeling useful helping other caregivers. In addition to treating negative outcomes such as depression, practitioners and researchers should, identify means to promote positive gains. Strategies mentioned in the caregivers' diaries, such as reframing stressful situations in a more positive light, may provide input into the design of such interventions.
To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease.PURPOSETo discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease.Fifty-seven Hong Kong Chinese primary caregivers provided 669 diary recordings over an 8-week period, describing daily events and experiences in which positive gains were achieved. The diaries were analyzed independently by two researchers using thematic analysis.DESIGN AND METHODSFifty-seven Hong Kong Chinese primary caregivers provided 669 diary recordings over an 8-week period, describing daily events and experiences in which positive gains were achieved. The diaries were analyzed independently by two researchers using thematic analysis.Ten themes related to positive gains were identified: (a) insights about dementia and acceptance of the condition, (b) a sense of purpose and commitment to the caregiving role, (c) feelings of gratification when the care-recipient (CR) was functioning relatively well, (d) mastering skills to handle the CR, (e) increased patience and tolerance, (f) cultivating positive meanings and humor amidst difficult circumstances, (g) letting go of things, such as when the CR's qualities had been lost or personal agenda had become unrealistic, (h) developing a closer relationship with the CR, (i) finding support, and (j) feeling useful helping other caregivers.RESULTSTen themes related to positive gains were identified: (a) insights about dementia and acceptance of the condition, (b) a sense of purpose and commitment to the caregiving role, (c) feelings of gratification when the care-recipient (CR) was functioning relatively well, (d) mastering skills to handle the CR, (e) increased patience and tolerance, (f) cultivating positive meanings and humor amidst difficult circumstances, (g) letting go of things, such as when the CR's qualities had been lost or personal agenda had become unrealistic, (h) developing a closer relationship with the CR, (i) finding support, and (j) feeling useful helping other caregivers.In addition to treating negative outcomes such as depression, practitioners and researchers should, identify means to promote positive gains. Strategies mentioned in the caregivers' diaries, such as reframing stressful situations in a more positive light, may provide input into the design of such interventions.IMPLICATIONSIn addition to treating negative outcomes such as depression, practitioners and researchers should, identify means to promote positive gains. Strategies mentioned in the caregivers' diaries, such as reframing stressful situations in a more positive light, may provide input into the design of such interventions.
Author Cheng, Sheung-Tak
Ng, Natalie S S
Mak, Emily P M
Lam, Linda C W
Lau, Rosanna W L
Author_xml – sequence: 1
  givenname: Sheung-Tak
  surname: Cheng
  fullname: Cheng, Sheung-Tak
  email: takcheng@ied.edu.hk
  organization: Department of Health and Physical Education, Hong Kong Institute of Education, Tai Po, Hong Kong. Department of Clinical Psychology, Norwich Medical School, University of East Anglia, Norwich, United Kingdom. takcheng@ied.edu.hk
– sequence: 2
  givenname: Emily P M
  surname: Mak
  fullname: Mak, Emily P M
  organization: Department of Health and Physical Education, Hong Kong Institute of Education, Tai Po, Hong Kong
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  givenname: Rosanna W L
  surname: Lau
  fullname: Lau, Rosanna W L
  organization: Department of Health and Physical Education, Hong Kong Institute of Education, Tai Po, Hong Kong. Department of Clinical Psychology, Norwich Medical School, University of East Anglia, Norwich, United Kingdom
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  givenname: Natalie S S
  surname: Ng
  fullname: Ng, Natalie S S
  organization: Department of Health and Physical Education, Hong Kong Institute of Education, Tai Po, Hong Kong
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  givenname: Linda C W
  surname: Lam
  fullname: Lam, Linda C W
  organization: Department of Psychiatry, Chinese University of Hong Kong, Tai Po, Hong Kong
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Issue 3
Keywords Positive aspects of caregiving
Qualitative methods
Hong Kong Chinese
Alzheimer’s disease
Language English
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Snippet To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease. Fifty-seven Hong Kong Chinese primary caregivers provided...
To discover positive gains as constructed by family caregivers of relatives with Alzheimer's disease.PURPOSETo discover positive gains as constructed by family...
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SubjectTerms Adaptation, Psychological
Aged
Aged, 80 and over
Alzheimer Disease - nursing
Asian Continental Ancestry Group
Caregivers - psychology
Dementia - nursing
Depression
Female
Hong Kong
Humans
Interviews as Topic
Male
Middle Aged
Qualitative Research
Stress, Psychological
Surveys and Questionnaires
Title Voices of Alzheimer Caregivers on Positive Aspects of Caregiving
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