Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums

Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest...

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Vydané v:	International journal of impotence research Ročník 35; číslo 6; s. 533 - 538
Hlavní autori:	Low, Patrick, Wang, Lin, Li, Kevin D., Shibley, W. Patrick, Cedars, Benjamin E., Holler, Jordan T., Enriquez, Anthony, Sadeghi-Nejad, Hossein, Amend, Gregory M., Breyer, Benjamin N.
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	London Nature Publishing Group UK 01.09.2023 Nature Publishing Group
Predmet:	692/1807/2782 692/699/2768/1575 692/699/2768/515 Connective tissue diseases Erectile dysfunction Medicine Medicine & Public Health Mens health Mental depression Pain Penis Qualitative research Reproductive Medicine rology Sexual disorders Social isolation Social networks Social support Urology
ISSN:	0955-9930, 1476-5489, 1476-5489
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Abstract	Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood ( n = 75, 33.3%) and feelings of isolation ( n = 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction ( n = 11, 21.2%) and dyspareunia ( n = 4, 7.7%). Relationships experienced disruption ( n = 14, 5.1%) or termination ( n = 10, 3.6%). Posters received psychological treatment including psychotherapy ( n = 20, 8.9%) and antidepressants ( n = 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.
AbstractList	Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (n = 75, 33.3%) and feelings of isolation (n = 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (n = 11, 21.2%) and dyspareunia (n = 4, 7.7%). Relationships experienced disruption (n = 14, 5.1%) or termination (n = 10, 3.6%). Posters received psychological treatment including psychotherapy (n = 20, 8.9%) and antidepressants (n = 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management. Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood ( n = 75, 33.3%) and feelings of isolation ( n = 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction ( n = 11, 21.2%) and dyspareunia ( n = 4, 7.7%). Relationships experienced disruption ( n = 14, 5.1%) or termination ( n = 10, 3.6%). Posters received psychological treatment including psychotherapy ( n = 20, 8.9%) and antidepressants ( n = 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management. Peyronie's disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (n = 75, 33.3%) and feelings of isolation (n = 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (n = 11, 21.2%) and dyspareunia (n = 4, 7.7%). Relationships experienced disruption (n = 14, 5.1%) or termination (n = 10, 3.6%). Posters received psychological treatment including psychotherapy (n = 20, 8.9%) and antidepressants (n = 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.Peyronie's disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (n = 75, 33.3%) and feelings of isolation (n = 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (n = 11, 21.2%) and dyspareunia (n = 4, 7.7%). Relationships experienced disruption (n = 14, 5.1%) or termination (n = 10, 3.6%). Posters received psychological treatment including psychotherapy (n = 20, 8.9%) and antidepressants (n = 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.
Author	Li, Kevin D. Cedars, Benjamin E. Amend, Gregory M. Shibley, W. Patrick Enriquez, Anthony Breyer, Benjamin N. Low, Patrick Wang, Lin Holler, Jordan T. Sadeghi-Nejad, Hossein
Author_xml	– sequence: 1 givenname: Patrick orcidid: 0000-0003-4319-4290 surname: Low fullname: Low, Patrick organization: Department of Urology, University of California – sequence: 2 givenname: Lin surname: Wang fullname: Wang, Lin organization: Department of Pathology, Montefiore Medical Center – sequence: 3 givenname: Kevin D. surname: Li fullname: Li, Kevin D. organization: Department of Urology, University of California – sequence: 4 givenname: W. Patrick surname: Shibley fullname: Shibley, W. Patrick organization: Department of Urology, University of California – sequence: 5 givenname: Benjamin E. surname: Cedars fullname: Cedars, Benjamin E. organization: Department of Urology, University of California – sequence: 6 givenname: Jordan T. surname: Holler fullname: Holler, Jordan T. organization: Department of Urology, University of California – sequence: 7 givenname: Anthony surname: Enriquez fullname: Enriquez, Anthony organization: Department of Urology, University of California – sequence: 8 givenname: Hossein surname: Sadeghi-Nejad fullname: Sadeghi-Nejad, Hossein organization: Department of Surgery, Division of Urology, Rutgers New Jersey Medical School and Hackensack University Medical Center – sequence: 9 givenname: Gregory M. surname: Amend fullname: Amend, Gregory M. organization: Department of Urology, University of California – sequence: 10 givenname: Benjamin N. surname: Breyer fullname: Breyer, Benjamin N. email: benjamin.breyer@ucsf.edu organization: Department of Urology, University of California, Department of Epidemiology and Biostatistics, University of California
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Snippet	Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction.... Peyronie's disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction....
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SubjectTerms	692/1807/2782 692/699/2768/1575 692/699/2768/515 Connective tissue diseases Erectile dysfunction Medicine Medicine & Public Health Mens health Mental depression Pain Penis Qualitative research Reproductive Medicine rology Sexual disorders Social isolation Social networks Social support Urology
Title	Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums
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