Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group

Lack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of “patient engagement in resea...

Full description

Saved in:

Bibliographic Details
Published in:	Value in health Vol. 23; no. 6; pp. 677 - 688
Main Authors:	Harrington, Rachel L., Hanna, Maya L., Oehrlein, Elisabeth M., Camp, Rob, Wheeler, Russell, Cooblall, Clarissa, Tesoro, Theresa, Scott, Amie M., von Gizycki, Rainald, Nguyen, Francis, Hareendran, Asha, Patrick, Donald L., Perfetto, Eleanor M.
Format:	Journal Article
Language:	English
Published:	Lawrenceville Elsevier Inc 01.06.2020 Elsevier Science Ltd
Subjects:	Clinical outcomes definition Definitions Health care Health care delivery Health economics Health services Internal Medicine Literary criticism Literature reviews Meta-analysis outcomes research patient centered patient centric patient engagement Patient participation patient research Patient safety Patient-centered care Patients Systematic review patient research patient centric definition outcomes research patient engagement patient centered health economics
ISSN:	1098-3015, 1524-4733, 1524-4733
Online Access:	Get full text
Tags:	Add Tag No Tags, Be the first to tag this record!

Abstract	Lack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of “patient engagement in research.” A systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings. Of 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: “patient-centered” (30.5%), “patient engagement” (15.5%), and “patient participation” (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of “patient engagement,” the most common themes were “active process,” “patient involvement,” and “patient as participant.” In the research setting, the top themes were “patient as partner,” “patient involvement,” and “active process”; these did not appear in the top 3 themes of nonresearch definitions. Distinct themes are associated with the term “patient engagement” and with engagement in the “research” setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of “patient engagement in research.” •The topic of patient engagement has become increasingly recognized in recent years as an important contribution to improved outcomes in the health research continuum. Until this point, the approach taken to defining and assessing engagement has not been systematic, with considerable differences among the definitions that do exist. Even fewer of those attempts at a definition have incorporated patient input.•Through a robust systematic review and qualitative-analysis process, a definition of patient engagement in research was generated that incorporates the most vital elements derived from our analysis. The aim of the definition is to meet the needs of, and support implementation by, a multistakeholder audience.•This proposed definition can act as a core statement of principles around which research decision making can be aligned. This includes the importance of inclusion, respect, and equality in the interactions between patients and researchers. Results of this work provide a concept against which the implementation of patient engagement in research can be evaluated and a starting point for further guidelines on “best practices” for patient engagement in the research process.A companion article from the study team's patient researchers discussing their experience working on this project and the definition's implications for patients will be in the July/August 2020 issue of ISPOR Value and Outcomes Spotlight.
AbstractList	Lack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of “patient engagement in research.” A systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings. Of 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: “patient-centered” (30.5%), “patient engagement” (15.5%), and “patient participation” (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of “patient engagement,” the most common themes were “active process,” “patient involvement,” and “patient as participant.” In the research setting, the top themes were “patient as partner,” “patient involvement,” and “active process”; these did not appear in the top 3 themes of nonresearch definitions. Distinct themes are associated with the term “patient engagement” and with engagement in the “research” setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of “patient engagement in research.” •The topic of patient engagement has become increasingly recognized in recent years as an important contribution to improved outcomes in the health research continuum. Until this point, the approach taken to defining and assessing engagement has not been systematic, with considerable differences among the definitions that do exist. Even fewer of those attempts at a definition have incorporated patient input.•Through a robust systematic review and qualitative-analysis process, a definition of patient engagement in research was generated that incorporates the most vital elements derived from our analysis. The aim of the definition is to meet the needs of, and support implementation by, a multistakeholder audience.•This proposed definition can act as a core statement of principles around which research decision making can be aligned. This includes the importance of inclusion, respect, and equality in the interactions between patients and researchers. Results of this work provide a concept against which the implementation of patient engagement in research can be evaluated and a starting point for further guidelines on “best practices” for patient engagement in the research process.A companion article from the study team's patient researchers discussing their experience working on this project and the definition's implications for patients will be in the July/August 2020 issue of ISPOR Value and Outcomes Spotlight. AbstractObjectivesLack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of “patient engagement in research.” MethodsA systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings. ResultsOf 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: “patient-centered” (30.5%), “patient engagement” (15.5%), and “patient participation” (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of “patient engagement,” the most common themes were “active process,” “patient involvement,” and “patient as participant.” In the research setting, the top themes were “patient as partner,” “patient involvement,” and “active process”; these did not appear in the top 3 themes of nonresearch definitions. ConclusionDistinct themes are associated with the term “patient engagement” and with engagement in the “research” setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of “patient engagement in research.” Objectives Lack of clarity on the definition of "patient engagement" has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of "patient engagement in research." Methods A systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings. Results Of 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: "patient-centered" (30.5%), "patient engagement" (15.5%), and "patient participation" (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of "patient engagement," the most common themes were "active process," "patient involvement," and "patient as participant." In the research setting, the top themes were "patient as partner," "patient involvement," and "active process"; these did not appear in the top 3 themes of nonresearch definitions. Conclusion Distinct themes are associated with the term "patient engagement" and with engagement in the "research" setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of "patient engagement in research." Lack of clarity on the definition of "patient engagement" has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of "patient engagement in research."OBJECTIVESLack of clarity on the definition of "patient engagement" has been highlighted as a barrier to fully implementing patient engagement in research. This study identified themes within existing definitions related to patient engagement and proposes a consensus definition of "patient engagement in research."A systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings.METHODSA systematic review was conducted to identify definitions of patient engagement and related terms in published literature (2006-2018). Definitions were extracted and qualitatively analyzed to identify themes and characteristics. A multistakeholder approach, including academia, industry, and patient representation, was taken at all stages. A proposed definition is offered based on a synthesis of the findings.Of 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: "patient-centered" (30.5%), "patient engagement" (15.5%), and "patient participation" (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of "patient engagement," the most common themes were "active process," "patient involvement," and "patient as participant." In the research setting, the top themes were "patient as partner," "patient involvement," and "active process"; these did not appear in the top 3 themes of nonresearch definitions.RESULTSOf 1821 abstracts identified and screened for eligibility, 317 were selected for full-text review. Of these, 169 articles met inclusion criteria, from which 244 distinct definitions were extracted for analysis. The most frequently defined terms were: "patient-centered" (30.5%), "patient engagement" (15.5%), and "patient participation" (13.4%). The majority of definitions were specific to the healthcare delivery setting (70.5%); 11.9% were specific to research. Among the definitions of "patient engagement," the most common themes were "active process," "patient involvement," and "patient as participant." In the research setting, the top themes were "patient as partner," "patient involvement," and "active process"; these did not appear in the top 3 themes of nonresearch definitions.Distinct themes are associated with the term "patient engagement" and with engagement in the "research" setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of "patient engagement in research."CONCLUSIONDistinct themes are associated with the term "patient engagement" and with engagement in the "research" setting. Based on an analysis of existing literature and review by patient, industry, and academic stakeholders, we propose a scalable consensus definition of "patient engagement in research."
Author	Perfetto, Eleanor M. Harrington, Rachel L. Wheeler, Russell Cooblall, Clarissa Camp, Rob Oehrlein, Elisabeth M. Scott, Amie M. Hanna, Maya L. Nguyen, Francis Patrick, Donald L. von Gizycki, Rainald Hareendran, Asha Tesoro, Theresa
Author_xml	– sequence: 1 givenname: Rachel L. surname: Harrington fullname: Harrington, Rachel L. email: harrington@ncqa.org organization: National Committee for Quality Assurance, Washington, DC, USA – sequence: 2 givenname: Maya L. surname: Hanna fullname: Hanna, Maya L. organization: Boehringer Ingelheim Pharmaceuticals Inc., Ridgefield, CT USA – sequence: 3 givenname: Elisabeth M. surname: Oehrlein fullname: Oehrlein, Elisabeth M. organization: National Health Council, Washington, DC, USA – sequence: 4 givenname: Rob surname: Camp fullname: Camp, Rob organization: Community Advisory Board Programme, EURORDIS, Barcelona, Spain – sequence: 5 givenname: Russell surname: Wheeler fullname: Wheeler, Russell organization: Leber’s Hereditary Optic Neuropathy, Merusac, France – sequence: 6 givenname: Clarissa surname: Cooblall fullname: Cooblall, Clarissa organization: Scientific & Health Policy Initiatives, ISPOR, Lawrenceville, NJ, USA – sequence: 7 givenname: Theresa surname: Tesoro fullname: Tesoro, Theresa organization: Scientific & Health Policy Initiatives, ISPOR, Lawrenceville, NJ, USA – sequence: 8 givenname: Amie M. surname: Scott fullname: Scott, Amie M. organization: Consulting, New York, NY, USA – sequence: 9 givenname: Rainald surname: von Gizycki fullname: von Gizycki, Rainald organization: PRO RETINA Deutschland e.V., Aachen, Germany – sequence: 10 givenname: Francis surname: Nguyen fullname: Nguyen, Francis organization: Bayer Healthcare Pharmaceuticals, Jersey City, NJ, USA – sequence: 11 givenname: Asha surname: Hareendran fullname: Hareendran, Asha organization: Evidera, London, England, UK – sequence: 12 givenname: Donald L. surname: Patrick fullname: Patrick, Donald L. organization: University of Washington, Seattle, Washington, USA – sequence: 13 givenname: Eleanor M. surname: Perfetto fullname: Perfetto, Eleanor M. organization: National Health Council, Washington, DC, USA
BookMark	eNqFkt9rFDEQxxepYFv9B3wK-OLLnpNkf2SLCOVa60GhpafPIZedvebcy65JtnJ_hv9xk576cGCFYTIJ388Mk5mT7MgOFrPsLYUZBVp92Mw2D6qfMWAwAxqteZEd05IVeVFzfhRjaETOgZavshPvNwBQcVYeZ78usDPW2DW5VcGgDeTSrtUatyk0ltyhR-X0_VmKpj54MnREkeXOB9xGQsf3B4M_ibItObeq33njk3gcXEjacI9ksby9uftTIJ9Hhw5bshxRG9WTxdPdB3Llhml8nb3sVO_xze_zNPv2-fLr_Et-fXO1mJ9f57ooRMjLWtXQ0lLTrqlw1QjkRdeqsgQRjXKx0oKtStF0nNWgVnXDQaiuihBXQDU_zd7v845u-DHF8nJrvMa-VxaHyUtW0AJACFFG6bsD6WaYXGw2qThnDatpFVVir9Ju8N5hJ7UJsefBBqdMLynINCu5kWlWMs1KAo3WRJQdoKMzW-V2z0Mf9xDGX4ozcNLr-MEaW-NQB9kO5nn80wGu-7gJWvXfcYf-b4dUeiZBLtMGpQViEH1BRUxw9u8E_6v-CILH17g
CitedBy_id	crossref_primary_10_1016_j_ebiom_2021_103484 crossref_primary_10_1371_journal_pone_0273727 crossref_primary_10_3390_healthcare12030360 crossref_primary_10_1097_WCO_0000000000000989 crossref_primary_10_1186_s40900_022_00389_z crossref_primary_10_1007_s40120_022_00408_x crossref_primary_10_1007_s40273_023_01340_0 crossref_primary_10_1080_21678421_2024_2328599 crossref_primary_10_1080_09638288_2025_2479657 crossref_primary_10_1080_27707571_2024_2340157 crossref_primary_10_1164_rccm_202407_1320ST crossref_primary_10_1080_03007995_2023_2295984 crossref_primary_10_3390_oral3040041 crossref_primary_10_1177_23743735241293618 crossref_primary_10_1371_journal_pone_0295080 crossref_primary_10_1007_s40271_023_00630_1 crossref_primary_10_1097_j_pain_0000000000002600 crossref_primary_10_1186_s40900_025_00686_3 crossref_primary_10_2196_65485 crossref_primary_10_1136_bmjopen_2024_088914 crossref_primary_10_1111_jocn_16709 crossref_primary_10_1111_hex_70144 crossref_primary_10_1007_s41669_024_00530_6 crossref_primary_10_1016_j_hctj_2025_100111 crossref_primary_10_1136_bmjopen_2024_089930 crossref_primary_10_3389_fpubh_2025_1655189 crossref_primary_10_1016_j_qrmh_2025_100016 crossref_primary_10_1186_s12939_025_02431_4 crossref_primary_10_1016_j_ejpb_2023_02_005 crossref_primary_10_1186_s12874_025_02565_7 crossref_primary_10_1186_s40900_024_00566_2 crossref_primary_10_1177_15269248241241164 crossref_primary_10_1186_s12961_024_01106_w crossref_primary_10_1097_TXD_0000000000001446 crossref_primary_10_1016_j_cct_2022_106770 crossref_primary_10_4102_hsag_v28i0_2245 crossref_primary_10_1016_j_jpain_2025_105358 crossref_primary_10_1016_j_zefq_2020_07_003 crossref_primary_10_1186_s40900_024_00651_6 crossref_primary_10_1186_s40900_023_00488_5 crossref_primary_10_1093_scipol_scad040 crossref_primary_10_1136_bmjopen_2023_072091 crossref_primary_10_1186_s13063_022_06521_4 crossref_primary_10_1186_s40900_023_00504_8 crossref_primary_10_1111_medu_15462 crossref_primary_10_1007_s11606_021_07126_4 crossref_primary_10_1016_j_jval_2025_03_013 crossref_primary_10_1097_01_ASM_0000795168_75245_f6 crossref_primary_10_1016_j_zefq_2022_06_001 crossref_primary_10_1111_hex_70112 crossref_primary_10_1136_bmjopen_2020_045515 crossref_primary_10_1186_s13023_022_02357_y crossref_primary_10_1016_j_annepidem_2021_04_009 crossref_primary_10_1186_s40900_021_00317_7 crossref_primary_10_1097_j_pain_0000000000003121 crossref_primary_10_1186_s40900_024_00558_2 crossref_primary_10_1111_1467_9566_13588 crossref_primary_10_1186_s41687_023_00566_y crossref_primary_10_1200_EDBK_100035 crossref_primary_10_1080_03007995_2025_2482668 crossref_primary_10_1111_hex_70369 crossref_primary_10_1007_s40290_022_00458_4 crossref_primary_10_1016_j_jval_2022_10_002 crossref_primary_10_1136_bmjopen_2023_073953 crossref_primary_10_1016_j_ajhg_2024_10_015 crossref_primary_10_1177_16094069251321211 crossref_primary_10_1007_s12152_022_09502_1 crossref_primary_10_1186_s40900_021_00254_5 crossref_primary_10_1007_s40273_021_01110_w crossref_primary_10_1016_j_whi_2022_08_004 crossref_primary_10_1177_01632787231203346 crossref_primary_10_3390_bs13020152 crossref_primary_10_1177_26330040251339204 crossref_primary_10_1186_s40900_024_00607_w crossref_primary_10_1371_journal_pone_0291066 crossref_primary_10_1007_s40271_020_00485_w crossref_primary_10_1016_j_yebeh_2024_110238 crossref_primary_10_1186_s40900_024_00546_6 crossref_primary_10_62680_FA0824 crossref_primary_10_1186_s40900_021_00268_z crossref_primary_10_3389_fmed_2023_1141685 crossref_primary_10_1016_j_jval_2025_06_014 crossref_primary_10_1016_j_drudis_2023_103702 crossref_primary_10_3233_JPD_230436 crossref_primary_10_1007_s40271_024_00713_7 crossref_primary_10_1016_j_jclinane_2025_111876 crossref_primary_10_1016_j_socscimed_2024_116773 crossref_primary_10_1177_2633556521999508 crossref_primary_10_1007_s40271_024_00685_8 crossref_primary_10_2196_70487 crossref_primary_10_1186_s12913_023_09098_z crossref_primary_10_1016_j_chest_2021_10_028 crossref_primary_10_1080_03007995_2025_2537888 crossref_primary_10_1186_s40900_022_00354_w
Cites_doi	10.1080/09593985.2017.1357151 10.1111/j.1369-7625.2011.00718.x 10.1108/JHOM-08-2013-0160 10.1377/hlthaff.2012.1075 10.1377/hlthaff.2012.1120 10.2217/cer.14.79 10.2196/jmir.4255 10.1007/s11606-009-1119-1 10.1111/j.1745-7599.2008.00360.x 10.1111/j.1471-6712.2011.00904.x 10.1080/13648470.2014.914804 10.1371/journal.pone.0026255 10.1016/j.pec.2012.09.006 10.1177/0969733013486796 10.1016/j.eatbeh.2014.04.003 10.1080/13698570600677266 10.1377/hlthaff.2012.1061 10.1016/j.ijnurstu.2014.04.003 10.1017/S0959259813000014 10.1016/j.pec.2005.10.005 10.1111/j.1553-2712.2010.00939.x 10.1007/s11606-012-2037-1 10.1007/s11136-014-0796-3 10.1080/15265161.2014.900139 10.1001/jama.2012.500 10.1136/bmj.j4218 10.1108/JHOM-05-2015-0078 10.1001/jama.2014.11100 10.1378/chest.130.1_suppl.73S 10.1136/bmjqs-2012-001447 10.1016/j.pec.2009.08.008 10.1016/j.bpobgyn.2013.04.006 10.2340/16501977-1136 10.1016/j.zefq.2011.04.003 10.1002/rnj.164 10.1111/j.1369-7625.2011.00713.x 10.5812/ircmj.12454 10.1111/j.1365-2648.2012.05965.x 10.1186/1472-6963-12-14 10.1111/jocn.12184 10.2217/cer-2017-0060 10.1136/amiajnl-2013-002141 10.1016/j.sapharm.2008.01.001 10.1136/bmj.k4738 10.1007/s11606-014-2895-9 10.1001/jamainternmed.2014.2170 10.1016/j.pec.2012.03.022 10.1007/s40271-017-0264-6 10.1177/1049732305276687 10.1586/ern.11.161 10.1007/s11136-014-0846-x 10.1007/s11136-014-0845-y 10.1093/ageing/afu109 10.1177/2168479015580384 10.1111/jocn.12395 10.1097/QMH.0b013e31825e870d 10.1111/j.1471-6712.2007.00471.x 10.1111/j.1365-2923.2007.02789.x 10.1089/tmj.2009.0156 10.1016/j.socscimed.2014.06.051 10.1016/j.ijnurstu.2009.05.021 10.1016/j.pec.2006.05.002 10.1111/jgs.15655 10.1093/intqhc/mzr024 10.1179/2050287714Z.00000000051 10.1111/j.1369-7625.2008.00488.x 10.1016/j.pec.2011.01.011 10.1136/amiajnl-2014-003176 10.1016/j.jval.2014.12.015 10.1097/PTS.0b013e318267c56e 10.1080/10398560701320113 10.1002/jhm.480 10.1080/10410236.2011.552482 10.1186/s13023-015-0281-2 10.1111/nin.12078 10.1080/15524256.2012.685440 10.1111/j.1369-7625.2011.00683.x 10.1017/S0266462307051549 10.1111/j.1365-2923.2010.03632.x 10.1016/j.ijrobp.2015.07.1831 10.2165/11586090-000000000-00000 10.1108/14777260710778970 10.1111/j.1365-2648.2012.06064.x 10.1158/1078-0432.CCR-15-0827 10.1111/j.1369-7625.2011.00743.x 10.1177/1049732314524487 10.1097/NUR.0b013e3181e3605f 10.5172/conu.2006.23.1.135 10.12927/hcq.2014.24023 10.12968/bjon.2006.15.13.21478 10.1007/s10728-008-0099-3 10.1016/j.pec.2014.01.016 10.1186/gm533 10.1007/s13187-014-0657-3 10.1586/14737167.2014.901890 10.1111/j.1369-7625.2010.00634.x 10.1183/09059180.00001614 10.1186/s12910-018-0260-y 10.1016/j.pec.2010.02.002 10.7812/TPP/13-165 10.1016/j.socscimed.2013.07.026 10.1111/jgs.13867 10.1371/journal.pone.0141978 10.1093/fampra/cmr129 10.1111/j.1365-2648.2012.06021.x 10.1111/j.1369-7625.2012.00766.x 10.1186/1472-6963-14-271 10.1186/1472-6963-14-175 10.1111/jgs.13866 10.1191/0969733006nej898oa 10.1001/jamaoncol.2015.0530 10.1111/hex.12020 10.1111/j.1369-7625.2010.00647.x 10.1016/j.pec.2007.09.009 10.1007/s11136-014-0893-3 10.1097/JTN.0b013e3182a172a0 10.3122/jabfm.2012.02.100235 10.1111/cch.12197 10.1177/0969733013490593 10.2174/1573397111666150619094420 10.1007/s40271-014-0044-5 10.1093/humrep/der277 10.1136/qshc.2008.029397 10.1371/journal.pone.0122499 10.1126/scitranslmed.aac6023 10.3109/14992027.2013.847286 10.1111/j.1365-2702.2008.02519.x 10.1177/0163278706293406 10.1371/journal.pone.0126553 10.1371/journal.pone.0107828 10.1093/fampra/cmr104 10.1191/0969733006ne883oa 10.1136/ard.2010.135129 10.1093/intqhc/mzu022 10.1186/1472-6963-13-231 10.1002/pon.3573 10.1007/s11136-016-1465-5 10.1186/s12916-015-0437-x 10.1586/14737167.7.3.281 10.1111/hex.12010 10.1111/dme.12600 10.1038/sc.2013.98 10.1186/1472-6963-14-89 10.1111/j.1365-2702.2006.01587.x 10.3109/09638288.2014.933899 10.1016/j.iccn.2006.03.002 10.1111/j.1365-3156.2007.01858.x 10.1016/j.acra.2006.08.010 10.1002/nur.20197 10.2217/cer-2016-0062 10.1177/2168479017716715 10.3109/13814788.2010.481018 10.1377/hlthaff.2012.1133 10.1111/j.1744-618X.2009.01141.x 10.1016/j.pec.2009.03.025 10.1016/j.pec.2007.03.025 10.1111/j.1748-3743.2010.00245.x 10.1177/2168479013484159 10.12927/hcpap.2012.22978 10.1111/j.1525-1497.2006.00399.x 10.1136/bmjqs-2012-001769 10.1016/j.pec.2006.09.008 10.1177/0272989X09342279 10.1016/j.jval.2016.11.014 10.1080/13814780600766253 10.1097/NCC.0b013e31829193c8 10.1097/MLR.0000000000000273 10.1111/j.1475-6773.2006.00684.x
ContentType	Journal Article
Copyright	2020 ISPOR–The Professional Society for Health Economics and Outcomes Research ISPOR–The Professional Society for Health Economics and Outcomes Research Copyright Elsevier Science Ltd. Jun 2020 Copyright © 2020 ISPOR–The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc. All rights reserved.
Copyright_xml	– notice: 2020 ISPOR–The Professional Society for Health Economics and Outcomes Research – notice: ISPOR–The Professional Society for Health Economics and Outcomes Research – notice: Copyright Elsevier Science Ltd. Jun 2020 – notice: Copyright © 2020 ISPOR–The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc. All rights reserved.
DBID	AAYXX CITATION 7QJ 7X8
DOI	10.1016/j.jval.2020.01.019
DatabaseName	CrossRef Applied Social Sciences Index & Abstracts (ASSIA) MEDLINE - Academic
DatabaseTitle	CrossRef Applied Social Sciences Index and Abstracts (ASSIA) MEDLINE - Academic
DatabaseTitleList	Applied Social Sciences Index and Abstracts (ASSIA) MEDLINE - Academic
Database_xml	– sequence: 1 dbid: 7X8 name: MEDLINE - Academic url: https://search.proquest.com/medline sourceTypes: Aggregation Database
DeliveryMethod	fulltext_linktorsrc
Discipline	Medicine Pharmacy, Therapeutics, & Pharmacology
EISSN	1524-4733
EndPage	688
ExternalDocumentID	10_1016_j_jval_2020_01_019 S1098301520301418 1_s2_0_S1098301520301418
GroupedDBID	--- --K --M .1- .3N .FO .GA .Y3 .~1 0R~ 10A 123 1OC 1P~ 1~. 29Q 31~ 36B 4.4 44B 457 4G. 51W 51X 52N 52P 52R 52S 52X 53G 5LA 5VS 66C 6PF 7-5 7PT 8-1 8P~ 8UM AAEDT AAEDW AAFJI AAFWJ AAIKJ AAKOC AALRI AAMMB AAOAW AAPFB AAQFI AAQXK AATTM AAWTL AAXKI AAXUO AAYWO ABBQC ABCQN ABDBF ABEML ABIVO ABJNI ABMAC ABMMH ABMZM ABWVN ABXDB ACDAQ ACGFS ACHQT ACIEU ACLOT ACPRK ACRLP ACRPL ACUHS ACVFH ACXQS ADBBV ADCNI ADEZE ADFHU ADMUD ADNMO ADVLN AEBSH AEFGJ AEIPS AEKER AENEX AEUPX AEVXI AEXQZ AEYQN AFBPY AFEBI AFJKZ AFPUW AFRHN AFTJW AFXIZ AFZJQ AGHFR AGQPQ AGTHC AGUBO AGXDD AGYEJ AIDQK AIDYY AIEXJ AIGII AIIAU AIIUN AIKHN AITUG AJAOE AJRQY AJUYK AKBMS AKRWK AKYEP ALMA_UNASSIGNED_HOLDINGS AMRAJ ANKPU ANZVX AOMHK APXCP ASPBG AVARZ AVWKF AXJTR AXLSJ AZFZN BAWUL BFHJK BKOJK BLXMC BNPGV BY8 CAG CO8 COF CS3 DCZOG DIK DU5 EAD EAP EBS EFJIC EFKBS EFLBG EJD EMB EMK EMOBN ESX F5P FDB FEDTE FGOYB FIRID FNPLU FYGXN GBLVA HF~ HVGLF HZI HZ~ IHE IXB KOM LH4 M41 MO0 N9A O-L O9- OAUVE OIG OK1 OVD P-8 P-9 P2P PC. PQQKQ PRBVW Q38 QB0 R2- ROL SDF SEL SES SPCBC SSB SSF SSH SSO SSZ SV3 T5K TEORI TUS W99 WIN WYUIH XG1 YFH Z5R ~G- ~HD 0SF 6I. AACTN AAFTH AAHHS ABVKL ACCFJ AEEZP AEQDE AFCTW AFKWA AIWBW AJBDE AJOXV AMFUW NCXOZ RIG SUPJJ AAIAV ABLVK ABYKQ AJBFU AKYCK IXIXF LCYCR AAYXX ALUQN CITATION O8X 7QJ 7X8
ID	FETCH-LOGICAL-c448t-57a70d15c1f96eb98e34fda5508508138bc82b589f3270ab79308af670d3a01c3
ISSN	1098-3015 1524-4733
IngestDate	Sun Sep 28 05:54:47 EDT 2025 Mon Nov 24 22:12:02 EST 2025 Tue Nov 18 22:30:30 EST 2025 Sat Nov 29 07:05:26 EST 2025 Fri Feb 23 02:45:50 EST 2024 Tue Feb 25 19:59:22 EST 2025 Tue Oct 14 19:37:30 EDT 2025
IsDoiOpenAccess	true
IsOpenAccess	true
IsPeerReviewed	true
IsScholarly	true
Issue	6
Keywords	patient research patient centric definition outcomes research patient engagement patient centered health economics
Language	English
License	This article is made available under the Elsevier license.
LinkModel	OpenURL
MergedId	FETCHMERGED-LOGICAL-c448t-57a70d15c1f96eb98e34fda5508508138bc82b589f3270ab79308af670d3a01c3
Notes	ObjectType-Article-2 SourceType-Scholarly Journals-1 content type line 14 ObjectType-Feature-3 ObjectType-Evidence Based Healthcare-1 ObjectType-Article-1 ObjectType-Feature-2 content type line 23 ObjectType-Undefined-3
OpenAccessLink	https://www.clinicalkey.com/#!/content/1-s2.0-S1098301520301418
PQID	2433292716
PQPubID	105593
PageCount	12
ParticipantIDs	proquest_miscellaneous_2414008885 proquest_journals_2433292716 crossref_citationtrail_10_1016_j_jval_2020_01_019 crossref_primary_10_1016_j_jval_2020_01_019 elsevier_sciencedirect_doi_10_1016_j_jval_2020_01_019 elsevier_clinicalkeyesjournals_1_s2_0_S1098301520301418 elsevier_clinicalkey_doi_10_1016_j_jval_2020_01_019
PublicationCentury	2000
PublicationDate	2020-06-01
PublicationDateYYYYMMDD	2020-06-01
PublicationDate_xml	– month: 06 year: 2020 text: 2020-06-01 day: 01
PublicationDecade	2020
PublicationPlace	Lawrenceville
PublicationPlace_xml	– name: Lawrenceville
PublicationTitle	Value in health
PublicationYear	2020
Publisher	Elsevier Inc Elsevier Science Ltd
Publisher_xml	– name: Elsevier Inc – name: Elsevier Science Ltd
References	Norfolk, Birdi, Walsh (bib79) 2007; 41 Cegala, Chisolm, Nwomeh (bib153) 2012; 89 Constand, MacDermid, Dal Bello-Haas, Law (bib84) 2014; 14 Tambuyzer, Pieters, Van Audenhove (bib148) 2014; 17 Beal, Hernandez, Doty (bib100) 2009; 24 Kates, Hutchison, O’Brien, Fraser, Wheeler, Chapman (bib116) 2012; 12 Marlett, Shklarov, Marshall, Santana, Wasylak (bib118) 2015; 24 Gagnon, Gagnon, St-Pierre (bib137) 2012; 12 Beaver, Craven, Witham (bib75) 2007; 16 Loukanova, Molnar, Bridges (bib182) 2007; 7 Wuyts, Peccatori, Russell (bib90) 2014; 23 Grenness, Hickson, Laplante-Levesque, Davidson (bib72) 2014; 53 Rogers, Howard (bib122) 2014; 17 Perfetto, Oehrlein, Boutin, Reid, Gascho (bib2) 2017; 20 Barr, Scholl, Bravo, Faber, Elwyn, McAllister (bib174) 2015; 10 Van Berckelaer, DiRocco, Ferguson, Gray, Marcus, Day (bib65) 2012; 25 Dent, Pahor (bib108) 2015; 29 Li, Porock (bib54) 2014; 51 Cegala (bib152) 2011; 26 Beach, Keruly, Moore (bib189) 2006; 21 Bridges, Jones (bib175) 2007; 23 Lyttle, Ryan (bib165) 2010; 5 McCarley (bib184) 2009; 36 Elberse, Caron-Flinterman, Broerse (bib154) 2011; 14 Buckman-Garner, Gill, Larkindale, Anderson (bib43) van der Weijden, van Veenendaal, Timmermans (bib169) 2007; 101 Balbale, Morris, LaVela (bib56) 2014; 7 Irwin, Richardson (bib211) 2006; 130 Aujoulat, d’Hoore, Deccache (bib173) 2007; 66 Bolster, Manias (bib201) 2010; 47 Lavallee, Wicks, Alfonso Cristancho, Mullins (bib74) 2014; 14 Gerrits (bib67) 2014; 21 Lawrence, Kinn (bib68) 2012; 15 Berger, Brito, Ospina (bib28) 2017; 359 Haywood, Lyddiatt, Brace-McDonnell, Staniszewska, Salek (bib29) 2017; 26 Entwistle, Watt (bib133) 2006; 63 Happell, Roper (bib215) 2007; 15 Gardiner (bib6) 2008; 137 Blanton (bib102) 2015; 76 Alpay, Henkemans, Otten, Rovekamp, Dumay (bib171) 2010; 16 van de Bovenkamp, Trappenburg (bib73) 2009; 17 Christensen, Hewitt-Taylor (bib176) 2006; 15 Cleemput, Christiaens, Kohn, Leonard, Daue, Denis (bib131) 2015; 18 Collier (bib105) 2015; 76 Rise, Solbjor, Lara, Westerlund, Grimstad, Steinsbekk (bib147) 2013; 16 Heggland, Mikkelsen, Ogaard, Hausken (bib159) 2014; 23 French, Purificacion, Brown (bib111) 2015; 93 Pomey, Ghadiri, Karazivan, Fernandez, Clavel (bib121) 2015; 10 Luxford, Safran, Delbanco (bib77) 2011; 23 Furlong, Bridges, Charnas (bib12) 2015; 10 Kovacs Burns, Bellows, Eigenseher, Gallivan (bib117) 2014; 14 Vahdat, Hamzehgardeshi, Hessam, Hamzehgardeshi (bib168) 2014; 16 Frank, Forsythe, Ellis (bib214) 2015; 24 Marshall, Kitson, Zeitz (bib91) 2012; 68 Patel, Rajasingam (bib120) 2013; 27 Bastiaens, Van Royen, Pavlic, Raposo, Baker (bib130) 2007; 68 Mathers, Chesson, Proctor, McKenzie, Robertson (bib82) 2006; 13 Bélisle-Pipon, Rouleau, Birko (bib125) 2018; 19 Collins, Gazarian, Stade (bib106) 2014; 2014 Gagnon, Desmartis, Gagnon (bib136) 2014; 17 Lindberg, Kreuter, Person, Taft (bib204) 2013; 51 Lejbkowicz, Caspi, Miller (bib181) 2012; 12 Eldh, Ekman, Ehnfors (bib156) 2008; 11 Holzmueller, Wu, Pronovost (bib55) 2012; 8 Tham, Letendre (bib71) 2014; 20 Grande, Faber, Durand, Thompson, Elwyn (bib112) 2014; 95 Redfern, Christopher, Wolfe (bib59) 2007; 8 Stewart (bib35) 2003 Kasper, Heesen, Kopke, Fulcher, Geiger (bib142) 2011; 6 Kvangarsnes, Torheim, Hole, Ohlund (bib163) 2013; 69 Teunissen, Visse, de Boer, Abma (bib187) 2013; 16 Martin, Navne, Lipczak (bib143) 2013; 22 Wijma, Bletterman, Clark (bib200) 2017; 33 Robb, Seddon (bib88) 2006; 119 Selby, Beal, Frank (bib1) 2012; 307 Carman, Dardess, Maurer (bib19) 2013; 32 Corbin, Strauss (bib32) 2018 Fredericks, Lapum, Schwind, Beanlands, Romaniuk, McCay (bib87) 2012; 21 Hung, Baas, Bekelman, Fitz-Randolph, Mullins (bib41) 2017 Happ, Swigart, Tate, Hoffman, Arnold (bib139) 2007; 30 Petit-Zeman, Philpots, Denegri (bib146) 2010; 33 Troya, Bartlam, Chew-Graham (bib22) 2018; 42 Concannon, Meissner, Grunbaum (bib24) 2012; 27 Masi, Vincent (bib78) 2015; 11 Groene, Lombarts, Klazinga, Alonso, Thompson, Sunol (bib94) 2009; 18 Frith, Bashir, Elliott, Newton (bib135) 2014; 43 Scholl, Zill, Harter, Dirmaier (bib197) 2014; 9 Macdonald, Heilemann, MacKinnon (bib81) 2014; 24 Hibbard, Greene (bib114) 2013; 32 Basch, Geoghegan, Coons (bib11) 2015; 1 Robinson, Callister, Berry, Dearing (bib64) 2008; 20 Yang (bib23) Lacy, Backer (bib86) 2008; 40 Tzeng, Yin (bib96) 2015; 33 Hommel, van Gurp, Tack (bib193) 2015; 32 Baker (bib129) 2007; 21 Wicks, Hixson (bib37) Berger, Flickinger, Pfoh, Martinez, Dy (bib101) 2014; 23 Nazario (bib62) 2009; 4 (bib34) 2001 Bernabeo, Holmboe (bib190) 2013; 32 Mason, Sox, Whitlock (bib3) 2019; 67 Kitson, Marshall, Bassett, Zeitz (bib92) 2013; 69 Haywood, Marshall, Fitzpatrick (bib140) 2006; 63 Haywood, Brett, Salek (bib113) 2015; 24 Cegala, Post (bib66) 2009; 77 Helgesen, Larsson, Athlin (bib161) 2014; 21 Govindarajan, Larkin, Rhodes (bib58) 2010; 17 Domecq, Prutsky, Elraiyah (bib33) 2014; 14 bib36 Law, Harrington, Alexander, Saha, Oehrlein, Perfetto (bib50) 2018; 7 Barham (bib216) 2011; 4 Gagliardi, Lemieux-Charles, Brown, Sullivan, Goel (bib63) 2008; 70 Westphal, Alkema, Seidel, Chernof (bib208) 2016; 64 Bellows, Young, Chase (bib210) 2014; 18 Holzel, Kriston, Harter (bib141) 2013; 13 McCaffery, Smith, Wolf (bib144) 2010; 30 Kofahl, Trojan, Knesebeck, Nickel (bib195) 2014; 123 Van Royen, Beyer, Chevallier (bib53) 2010; 16 Rathert, Williams, McCaughey, Ishqaidef (bib95) 2015; 18 de Wit, Berlo, Aanerud (bib132) 2011; 70 bib40 Williamson (bib149) 2014; 14 Abma (bib151) 2006; 29 Wiig, Storm, Aase (bib198) 2013; 13 Rosvik, Brooker, Mjorud, Kirkevold (bib206) 2013; 23 bib47 Levack, Dean, Siegert, McPherson (bib196) 2011; 85 bib45 bib46 bib44 bib42 Harrington, Hareendran, Scott (bib27) 2016; 2 Bjorkman, Bernsten, Sanner (bib191) 2008; 4 bib38 bib39 Hahn, Hoffmann, Felzien, LeMaster, Xu, Fagnan (bib124) 2017; 34 Dwamena, Holmes-Rovner, Gaulden (bib85) 2012; 12 Brennan, Valdez, Alexander (bib103) 2015; 22 Slater (bib207) 2006; 23 de-Graft (bib178) 2014; 103 Eldh, Ekman, Ehnfors (bib157) 2010; 21 Robbins, Curro, Fox (bib213) 2003; 47 Te Boveldt, Vernooij-Dassen, Leppink, Samwel, Vissers, Engels (bib186) 2014; 23 Forsythe, Szydlowski, Murad (bib110) 2014; 29 Anderson, McCleary (bib9) 2015; 7 Perfetto, Burke, Oehrlein, Epstein (bib13) 2015; 53 Esmail, Moore, Rein (bib109) 2015; 4 Goodyear-Smith (bib25) 2017; 34 Macq, Torfoss, Getahun (bib183) 2007; 12 Prey, Woollen, Wilcox (bib80) 2014; 21 Hoos, Anderson, Boutin (bib7) 2015; 49 Hasse (bib61) 2013; 20 Thorarinsdottir, Kristjansson (bib167) 2014; 21 Gruman, Rovner, French (bib218) 2010; 78 O’Brien, Charles, Whelan, Ellis, Gafni, Lovrics (bib145) 2013; 21 Goss, Mosconi, Renzi, Deledda (bib158) 2011; 105 Bailey, Boddy, Briscoe, Morris (bib128) 2015; 41 Wang, Thombs, Schmid (bib188) 2014; 17 Ishikawa, Hashimoto, Kiuchi (bib194) 2013; 96 Uijen, Schers, Schellevis, van den Bosch (bib98) 2012; 29 Dancet, Ameye, Sermeus (bib76) 2011; 26 Barello, Graffigna (bib99) 2015; 24 Duncan, Ables (bib217) 2013; 62 Lord, Gale (bib70) 2014; 28 Kirkendall, Waldrop, Moone (bib203) 2012; 8 Cunningham (bib107) 2014; 174 Ammenwerth, Schnell-Inderst, Hoerbst (bib172) 2011; 165 Lenert (bib212) 2010; 153 Nasser, van Weel, van Binsbergen, van de Laar (bib209) 2012; 29 Christensen, Hewitt-Taylor (bib177) 2007; 23 Nordin, Gard, Fjellman-Wiklund (bib166) 2013; 45 Koberich, Farin (bib69) 2015; 22 Aaen Geest, Wetzels, Wensing, Cohen Castel, Olesen (bib126) 2006; 12 Heath, Castillo, Majid (bib48) 2016; 25 Macdonald (bib93) 2010; 24 Frank, Basch, Selby (bib18) 2014; 312 Abrahams, Foti, Kean (bib51) 2015; 21 McMurray, Chaboyer, Wallis, Johnson, Gehrke (bib83) 2011; 18 Groene, Sunol, Klazinga (bib138) 2014; 26 Pushparajah (bib8) 2018; 11 Lindstrom, Gaston-Johansson, Danielson (bib57) 2006; 13 Holmstrom, Roing (bib179) 2010; 79 Crocker, Ricci-Cabello, Parker (bib4) 2018; 363 Koch (bib180) 2012; 180 Hsieh, Shannon (bib30) 2005; 15 Olander, Berg, McCourt, Carlstrom, Dencker (bib205) 2015; 15 Goodwin (bib89) 1998; 94 Simmons, Wolever, Bechard, Snyderman (bib123) 2014; 6 Baart, Abma (bib127) 2011; 14 Aasen, Kvangarsnes, Heggen (bib150) 2012; 26 Kim, Suh, Lee, Yang (bib162) 2014; 37 Aardoom, Dingemans, Boogaard, Van Furth (bib170) 2014; 15 bib14 Knier, Stichler, Ferber, Catterall (bib52) 2015; 40 bib15 bib10 Irizarry, DeVito Dabbs, Curran (bib115) 2015; 17 Zill, Scholl, Harter, Dirmaier (bib199) 2015; 10 Eldh, Ekman, Ehnfors (bib155) 2006; 13 Schulz, Nakamoto (bib185) 2013; 90 Bradley, Curry, Devers (bib31) 2007; 42 Bright, Kayes, Worrall, McPherson (bib104) 2015; 37 Forbat, Hubbard, Kearney (bib134) 2009; 18 Larsson, Sahlsten, Sjostrom, Lindencrona, Plos (bib164) 2007; 21 Levitan, Getz, Eisenstein (bib5) 2018; 52 Heggland, Hausken (bib160) 2014; 23 bib26 Forsythe, Frank, Workman, Hilliard, Harwell, Fayish (bib49) 2017; 6 bib21 Greenhalgh, Snow, Ryan, Rees, Salisbury (bib60) 2015; 13 Islam, Opoku, Apenteng (bib97) 2014; 29 bib20 Hauer, Boscardin, Gesundheit, Nevins, Srinivasan, Fernandez (bib192) 2010; 44 bib16 Nease, Glave Frazee, Zarin, Miller (bib119) 2013; 32 bib17 (bib202) 2016; 64 Perfetto (10.1016/j.jval.2020.01.019_bib13) 2015; 53 Hsieh (10.1016/j.jval.2020.01.019_bib30) 2005; 15 Nease (10.1016/j.jval.2020.01.019_bib119) 2013; 32 Ammenwerth (10.1016/j.jval.2020.01.019_bib172) 2011; 165 Constand (10.1016/j.jval.2020.01.019_bib84) 2014; 14 Heath (10.1016/j.jval.2020.01.019_bib48) 2016; 25 Tham (10.1016/j.jval.2020.01.019_bib71) 2014; 20 Gagliardi (10.1016/j.jval.2020.01.019_bib63) 2008; 70 Knier (10.1016/j.jval.2020.01.019_bib52) 2015; 40 van der Weijden (10.1016/j.jval.2020.01.019_bib169) 2007; 101 Forbat (10.1016/j.jval.2020.01.019_bib134) 2009; 18 Norfolk (10.1016/j.jval.2020.01.019_bib79) 2007; 41 Teunissen (10.1016/j.jval.2020.01.019_bib187) 2013; 16 Hasse (10.1016/j.jval.2020.01.019_bib61) 2013; 20 Esmail (10.1016/j.jval.2020.01.019_bib109) 2015; 4 Heggland (10.1016/j.jval.2020.01.019_bib160) 2014; 23 de-Graft (10.1016/j.jval.2020.01.019_bib178) 2014; 103 Beaver (10.1016/j.jval.2020.01.019_bib75) 2007; 16 Law (10.1016/j.jval.2020.01.019_bib50) 2018; 7 Basch (10.1016/j.jval.2020.01.019_bib11) 2015; 1 Happell (10.1016/j.jval.2020.01.019_bib215) 2007; 15 McCaffery (10.1016/j.jval.2020.01.019_bib144) 2010; 30 Slater (10.1016/j.jval.2020.01.019_bib207) 2006; 23 Hahn (10.1016/j.jval.2020.01.019_bib124) 2017; 34 Wicks (10.1016/j.jval.2020.01.019_bib37) Marshall (10.1016/j.jval.2020.01.019_bib91) 2012; 68 Groene (10.1016/j.jval.2020.01.019_bib94) 2009; 18 Islam (10.1016/j.jval.2020.01.019_bib97) 2014; 29 Cegala (10.1016/j.jval.2020.01.019_bib152) 2011; 26 Te Boveldt (10.1016/j.jval.2020.01.019_bib186) 2014; 23 Kates (10.1016/j.jval.2020.01.019_bib116) 2012; 12 Pomey (10.1016/j.jval.2020.01.019_bib121) 2015; 10 Wiig (10.1016/j.jval.2020.01.019_bib198) 2013; 13 Nazario (10.1016/j.jval.2020.01.019_bib62) 2009; 4 Crocker (10.1016/j.jval.2020.01.019_bib4) 2018; 363 Haywood (10.1016/j.jval.2020.01.019_bib113) 2015; 24 Robinson (10.1016/j.jval.2020.01.019_bib64) 2008; 20 Frith (10.1016/j.jval.2020.01.019_bib135) 2014; 43 Cegala (10.1016/j.jval.2020.01.019_bib153) 2012; 89 O’Brien (10.1016/j.jval.2020.01.019_bib145) 2013; 21 Haywood (10.1016/j.jval.2020.01.019_bib140) 2006; 63 Holzmueller (10.1016/j.jval.2020.01.019_bib55) 2012; 8 Barham (10.1016/j.jval.2020.01.019_bib216) 2011; 4 Simmons (10.1016/j.jval.2020.01.019_bib123) 2014; 6 Nordin (10.1016/j.jval.2020.01.019_bib166) 2013; 45 Martin (10.1016/j.jval.2020.01.019_bib143) 2013; 22 Bolster (10.1016/j.jval.2020.01.019_bib201) 2010; 47 Olander (10.1016/j.jval.2020.01.019_bib205) 2015; 15 Troya (10.1016/j.jval.2020.01.019_bib22) 2018; 42 Bailey (10.1016/j.jval.2020.01.019_bib128) 2015; 41 Haywood (10.1016/j.jval.2020.01.019_bib29) 2017; 26 Levack (10.1016/j.jval.2020.01.019_bib196) 2011; 85 Zill (10.1016/j.jval.2020.01.019_bib199) 2015; 10 Vahdat (10.1016/j.jval.2020.01.019_bib168) 2014; 16 Eldh (10.1016/j.jval.2020.01.019_bib157) 2010; 21 Kofahl (10.1016/j.jval.2020.01.019_bib195) 2014; 123 Scholl (10.1016/j.jval.2020.01.019_bib197) 2014; 9 Collier (10.1016/j.jval.2020.01.019_bib105) 2015; 76 Greenhalgh (10.1016/j.jval.2020.01.019_bib60) 2015; 13 Forsythe (10.1016/j.jval.2020.01.019_bib110) 2014; 29 Tambuyzer (10.1016/j.jval.2020.01.019_bib148) 2014; 17 Rosvik (10.1016/j.jval.2020.01.019_bib206) 2013; 23 Beach (10.1016/j.jval.2020.01.019_bib189) 2006; 21 Forsythe (10.1016/j.jval.2020.01.019_bib49) 2017; 6 Hibbard (10.1016/j.jval.2020.01.019_bib114) 2013; 32 Kim (10.1016/j.jval.2020.01.019_bib162) 2014; 37 Macdonald (10.1016/j.jval.2020.01.019_bib93) 2010; 24 Bridges (10.1016/j.jval.2020.01.019_bib175) 2007; 23 Aasen (10.1016/j.jval.2020.01.019_bib150) 2012; 26 Lawrence (10.1016/j.jval.2020.01.019_bib68) 2012; 15 (10.1016/j.jval.2020.01.019_bib34) 2001 Brennan (10.1016/j.jval.2020.01.019_bib103) 2015; 22 Heggland (10.1016/j.jval.2020.01.019_bib159) 2014; 23 Alpay (10.1016/j.jval.2020.01.019_bib171) 2010; 16 Blanton (10.1016/j.jval.2020.01.019_bib102) 2015; 76 Selby (10.1016/j.jval.2020.01.019_bib1) 2012; 307 Elberse (10.1016/j.jval.2020.01.019_bib154) 2011; 14 Lord (10.1016/j.jval.2020.01.019_bib70) 2014; 28 Wijma (10.1016/j.jval.2020.01.019_bib200) 2017; 33 Bastiaens (10.1016/j.jval.2020.01.019_bib130) 2007; 68 Macdonald (10.1016/j.jval.2020.01.019_bib81) 2014; 24 McMurray (10.1016/j.jval.2020.01.019_bib83) 2011; 18 Holzel (10.1016/j.jval.2020.01.019_bib141) 2013; 13 Stewart (10.1016/j.jval.2020.01.019_bib35) 2003 Cleemput (10.1016/j.jval.2020.01.019_bib131) 2015; 18 Kovacs Burns (10.1016/j.jval.2020.01.019_bib117) 2014; 14 Groene (10.1016/j.jval.2020.01.019_bib138) 2014; 26 Robbins (10.1016/j.jval.2020.01.019_bib213) 2003; 47 Govindarajan (10.1016/j.jval.2020.01.019_bib58) 2010; 17 Hommel (10.1016/j.jval.2020.01.019_bib193) 2015; 32 Duncan (10.1016/j.jval.2020.01.019_bib217) 2013; 62 Dwamena (10.1016/j.jval.2020.01.019_bib85) 2012; 12 Christensen (10.1016/j.jval.2020.01.019_bib176) 2006; 15 Dancet (10.1016/j.jval.2020.01.019_bib76) 2011; 26 Furlong (10.1016/j.jval.2020.01.019_bib12) 2015; 10 Abma (10.1016/j.jval.2020.01.019_bib151) 2006; 29 Marlett (10.1016/j.jval.2020.01.019_bib118) 2015; 24 Anderson (10.1016/j.jval.2020.01.019_bib9) 2015; 7 Koch (10.1016/j.jval.2020.01.019_bib180) 2012; 180 Eldh (10.1016/j.jval.2020.01.019_bib156) 2008; 11 Corbin (10.1016/j.jval.2020.01.019_bib32) 2018 Williamson (10.1016/j.jval.2020.01.019_bib149) 2014; 14 Goodyear-Smith (10.1016/j.jval.2020.01.019_bib25) 2017; 34 Lavallee (10.1016/j.jval.2020.01.019_bib74) 2014; 14 Lenert (10.1016/j.jval.2020.01.019_bib212) 2010; 153 Baker (10.1016/j.jval.2020.01.019_bib129) 2007; 21 Nasser (10.1016/j.jval.2020.01.019_bib209) 2012; 29 Hoos (10.1016/j.jval.2020.01.019_bib7) 2015; 49 Frank (10.1016/j.jval.2020.01.019_bib18) 2014; 312 Van Berckelaer (10.1016/j.jval.2020.01.019_bib65) 2012; 25 Bjorkman (10.1016/j.jval.2020.01.019_bib191) 2008; 4 Baart (10.1016/j.jval.2020.01.019_bib127) 2011; 14 Kvangarsnes (10.1016/j.jval.2020.01.019_bib163) 2013; 69 Rathert (10.1016/j.jval.2020.01.019_bib95) 2015; 18 Grenness (10.1016/j.jval.2020.01.019_bib72) 2014; 53 Uijen (10.1016/j.jval.2020.01.019_bib98) 2012; 29 Larsson (10.1016/j.jval.2020.01.019_bib164) 2007; 21 de Wit (10.1016/j.jval.2020.01.019_bib132) 2011; 70 Berger (10.1016/j.jval.2020.01.019_bib28) 2017; 359 Van Royen (10.1016/j.jval.2020.01.019_bib53) 2010; 16 Berger (10.1016/j.jval.2020.01.019_bib101) 2014; 23 Ishikawa (10.1016/j.jval.2020.01.019_bib194) 2013; 96 Rogers (10.1016/j.jval.2020.01.019_bib122) 2014; 17 Schulz (10.1016/j.jval.2020.01.019_bib185) 2013; 90 Kasper (10.1016/j.jval.2020.01.019_bib142) 2011; 6 French (10.1016/j.jval.2020.01.019_bib111) 2015; 93 Levitan (10.1016/j.jval.2020.01.019_bib5) 2018; 52 Irizarry (10.1016/j.jval.2020.01.019_bib115) 2015; 17 Frank (10.1016/j.jval.2020.01.019_bib214) 2015; 24 Lindstrom (10.1016/j.jval.2020.01.019_bib57) 2006; 13 Bélisle-Pipon (10.1016/j.jval.2020.01.019_bib125) 2018; 19 Lindberg (10.1016/j.jval.2020.01.019_bib204) 2013; 51 Wang (10.1016/j.jval.2020.01.019_bib188) 2014; 17 Gardiner (10.1016/j.jval.2020.01.019_bib6) 2008; 137 Holmstrom (10.1016/j.jval.2020.01.019_bib179) 2010; 79 Kitson (10.1016/j.jval.2020.01.019_bib92) 2013; 69 Barello (10.1016/j.jval.2020.01.019_bib99) 2015; 24 Gerrits (10.1016/j.jval.2020.01.019_bib67) 2014; 21 Christensen (10.1016/j.jval.2020.01.019_bib177) 2007; 23 Lejbkowicz (10.1016/j.jval.2020.01.019_bib181) 2012; 12 Bernabeo (10.1016/j.jval.2020.01.019_bib190) 2013; 32 Fredericks (10.1016/j.jval.2020.01.019_bib87) 2012; 21 Petit-Zeman (10.1016/j.jval.2020.01.019_bib146) 2010; 33 Gagnon (10.1016/j.jval.2020.01.019_bib136) 2014; 17 Tzeng (10.1016/j.jval.2020.01.019_bib96) 2015; 33 Collins (10.1016/j.jval.2020.01.019_bib106) 2014; 2014 Pushparajah (10.1016/j.jval.2020.01.019_bib8) 2018; 11 Buckman-Garner (10.1016/j.jval.2020.01.019_bib43) Cunningham (10.1016/j.jval.2020.01.019_bib107) 2014; 174 Luxford (10.1016/j.jval.2020.01.019_bib77) 2011; 23 Lacy (10.1016/j.jval.2020.01.019_bib86) 2008; 40 Loukanova (10.1016/j.jval.2020.01.019_bib182) 2007; 7 Lyttle (10.1016/j.jval.2020.01.019_bib165) 2010; 5 Harrington (10.1016/j.jval.2020.01.019_bib27) 2016; 2 Mason (10.1016/j.jval.2020.01.019_bib3) 2019; 67 Westphal (10.1016/j.jval.2020.01.019_bib208) 2016; 64 (10.1016/j.jval.2020.01.019_bib202) 2016; 64 Prey (10.1016/j.jval.2020.01.019_bib80) 2014; 21 Bright (10.1016/j.jval.2020.01.019_bib104) 2015; 37 Goss (10.1016/j.jval.2020.01.019_bib158) 2011; 105 Goodwin (10.1016/j.jval.2020.01.019_bib89) 1998; 94 Balbale (10.1016/j.jval.2020.01.019_bib56) 2014; 7 Beal (10.1016/j.jval.2020.01.019_bib100) 2009; 24 Patel (10.1016/j.jval.2020.01.019_bib120) 2013; 27 Gruman (10.1016/j.jval.2020.01.019_bib218) 2010; 78 Mathers (10.1016/j.jval.2020.01.019_bib82) 2006; 13 Happ (10.1016/j.jval.2020.01.019_bib139) 2007; 30 Aujoulat (10.1016/j.jval.2020.01.019_bib173) 2007; 66 Barr (10.1016/j.jval.2020.01.019_bib174) 2015; 10 Li (10.1016/j.jval.2020.01.019_bib54) 2014; 51 McCarley (10.1016/j.jval.2020.01.019_bib184) 2009; 36 Abrahams (10.1016/j.jval.2020.01.019_bib51) 2015; 21 Koberich (10.1016/j.jval.2020.01.019_bib69) 2015; 22 Concannon (10.1016/j.jval.2020.01.019_bib24) 2012; 27 Carman (10.1016/j.jval.2020.01.019_bib19) 2013; 32 Eldh (10.1016/j.jval.2020.01.019_bib155) 2006; 13 Kirkendall (10.1016/j.jval.2020.01.019_bib203) 2012; 8 Helgesen (10.1016/j.jval.2020.01.019_bib161) 2014; 21 van de Bovenkamp (10.1016/j.jval.2020.01.019_bib73) 2009; 17 Hung (10.1016/j.jval.2020.01.019_bib41) 2017 Macq (10.1016/j.jval.2020.01.019_bib183) 2007; 12 Irwin (10.1016/j.jval.2020.01.019_bib211) 2006; 130 Robb (10.1016/j.jval.2020.01.019_bib88) 2006; 119 Hauer (10.1016/j.jval.2020.01.019_bib192) 2010; 44 Domecq (10.1016/j.jval.2020.01.019_bib33) 2014; 14 Dent (10.1016/j.jval.2020.01.019_bib108) 2015; 29 Yang (10.1016/j.jval.2020.01.019_bib23) Aaen Geest (10.1016/j.jval.2020.01.019_bib126) 2006; 12 Rise (10.1016/j.jval.2020.01.019_bib147) 2013; 16 Perfetto (10.1016/j.jval.2020.01.019_bib2) 2017; 20 Wuyts (10.1016/j.jval.2020.01.019_bib90) 2014; 23 Gagnon (10.1016/j.jval.2020.01.019_bib137) 2012; 12 Grande (10.1016/j.jval.2020.01.019_bib112) 2014; 95 Thorarinsdottir (10.1016/j.jval.2020.01.019_bib167) 2014; 21 Aardoom (10.1016/j.jval.2020.01.019_bib170) 2014; 15 Bradley (10.1016/j.
References_xml	– volume: 13 start-page: 1394 year: 2006 end-page: 1404 ident: bib82 article-title: The use of patient-centered outcome measures in radiology: a systematic review publication-title: Acad Radiol – volume: 36 start-page: 409 year: 2009 end-page: 413 ident: bib184 article-title: Patient empowerment and motivational interviewing: engaging patients to self-manage their own care publication-title: Nephrol Nurs J – ident: bib20 article-title: What is EUPATI? EUPATI – volume: 312 start-page: 1513 year: 2014 end-page: 1514 ident: bib18 article-title: The PCORI perspective on patient-centered outcomes research publication-title: JAMA – volume: 23 start-page: 548 year: 2014 end-page: 555 ident: bib101 article-title: Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review publication-title: BMJ Qual Saf – volume: 26 start-page: 1393 year: 2017 end-page: 1404 ident: bib29 article-title: Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective publication-title: Qual Life Res – volume: 96 start-page: 147 year: 2013 end-page: 153 ident: bib194 article-title: The evolving concept of “patient-centeredness” in patient-physician communication research publication-title: Soc Sci Med – volume: 103 year: 2014 ident: bib178 article-title: Barriers to patient empowerment in sub-Saharan Africa: a social psychological evaluation publication-title: Diabetes Res Clin Pract – volume: 90 start-page: 4 year: 2013 end-page: 11 ident: bib185 article-title: Health literacy and patient empowerment in health communication: the importance of separating conjoined twins publication-title: Patient Educ Couns – volume: 29 start-page: 796 year: 2014 end-page: 801 ident: bib97 article-title: Engaging patients and caregivers in patient-centered outcomes research on advanced stage lung cancer: insights from patients, caregivers, and providers publication-title: J Cancer Educ – volume: 32 start-page: 250 year: 2013 end-page: 258 ident: bib190 article-title: Patients, providers, and systems need to acquire a specific set of competencies to achieve truly patient-centered care publication-title: Health Aff (Millwood) – volume: 78 start-page: 350 year: 2010 end-page: 356 ident: bib218 article-title: From patient education to patient engagement: implications for the field of patient education publication-title: Patient Educ Couns – volume: 23 start-page: 156 year: 2007 end-page: 161 ident: bib177 article-title: Patient empowerment: does it still occur in the ICU? publication-title: Intensive Crit Care Nurs – volume: 66 start-page: 13 year: 2007 end-page: 20 ident: bib173 article-title: Patient empowerment in theory and practice: polysemy or cacophony? publication-title: Patient Educ Couns – ident: bib46 article-title: DIA considerations guide to implementing patient-centric initiatives in health care product development – volume: 76 start-page: 168 year: 2015 end-page: 170 ident: bib105 article-title: Culture change to promote patient engagement: it isn’t how... it’s who publication-title: N C Med J – volume: 16 year: 2014 ident: bib168 article-title: Patient involvement in health care decision making: a review publication-title: Iran Red Crescent Med J – volume: 51 start-page: 838 year: 2013 end-page: 842 ident: bib204 article-title: Patient participation in rehabilitation questionnaire (PPRQ)-development and psychometric evaluation publication-title: Spinal Cord – volume: 34 start-page: 290 year: 2017 end-page: 295 ident: bib124 article-title: Tokenism in patient engagement publication-title: Fam Pract – volume: 13 start-page: 231 year: 2013 ident: bib141 article-title: Patient preference for involvement, experienced involvement, decisional conflict, and satisfaction with physician: a structural equation model test publication-title: BMC Health Serv Res – volume: 18 start-page: 477 year: 2015 end-page: 483 ident: bib131 article-title: Acceptability and perceived benefits and risks of public and patient involvement in health care policy: a Delphi survey in Belgian stakeholders publication-title: Value Health – volume: 77 start-page: 202 year: 2009 end-page: 208 ident: bib66 article-title: The impact of patients’ participation on physicians’ patient-centered communication publication-title: Patient Educ Couns – volume: 33 start-page: 249 year: 2010 end-page: 256 ident: bib146 article-title: “Natural ground” for medical research charities: public and patient involvement in research funding publication-title: J Ambul Care Manage – volume: 23 start-page: 1203 year: 2014 end-page: 1211 ident: bib186 article-title: Patient empowerment in cancer pain management: an integrative literature review publication-title: Psychooncology – year: 2018 ident: bib32 article-title: Basics of Qualitative Research (3rd Ed.): Techniques and Procedures for Developing Grounded Theory – volume: 15 start-page: 350 year: 2014 end-page: 356 ident: bib170 article-title: Internet and patient empowerment in individuals with symptoms of an eating disorder: a cross-sectional investigation of a pro-recovery focused e-community publication-title: Eat Behav – volume: 123 start-page: 217 year: 2014 end-page: 225 ident: bib195 article-title: Self-help friendliness: a German approach for strengthening the cooperation between self-help groups and health care professionals publication-title: Soc Sci Med – volume: 62 start-page: E1 year: 2013 end-page: E5 ident: bib217 article-title: Do drug treatment POEMs report data in clinically useful ways? publication-title: J Fam Pract – year: 2001 ident: bib34 article-title: Crossing the Quality Chasm: A New Health System for the 21st Century – volume: 24 start-page: 1087 year: 2015 end-page: 1096 ident: bib99 article-title: Engaging patients to recover life projectuality: an Italian cross-disease framework publication-title: Qual Life Res – volume: 32 start-page: 207 year: 2013 end-page: 214 ident: bib114 article-title: What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs publication-title: Health Aff (Millwood) – volume: 14 start-page: 335 year: 2014 end-page: 344 ident: bib74 article-title: Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech? publication-title: Expert Rev Pharmacoecon Outcomes Res – volume: 89 start-page: 25 year: 2012 end-page: 30 ident: bib153 article-title: Further examination of the impact of patient participation on physicians’ communication style publication-title: Patient Educ Couns – volume: 6 start-page: 231 year: 2017 end-page: 244 ident: bib49 article-title: Patient, caregiver and clinician views on engagement in comparative effectiveness research publication-title: J Comp Eff Res – volume: 12 start-page: CD003267 year: 2012 ident: bib85 article-title: Interventions for providers to promote a patient-centred approach in clinical consultations publication-title: Cochrane Database Syst Rev – volume: 119 start-page: U2174 year: 2006 ident: bib88 article-title: Effective Practice Informatics and Quality (EPIQ). Quality improvement in New Zealand healthcare. Part 6: keeping the patient front and centre to improve healthcare quality publication-title: N Z Med J – volume: 10 start-page: 82 year: 2015 ident: bib12 article-title: How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration publication-title: Orphanet J Rare Dis – volume: 41 start-page: 505 year: 2015 end-page: 514 ident: bib128 article-title: Involving disabled children and young people as partners in research: a systematic review publication-title: Child Care Health Dev – volume: 101 start-page: 241 year: 2007 end-page: 246 ident: bib169 article-title: Shared decision-making in the Netherlands--current state and future perspectives publication-title: Z Arztl Fortbild Qualitatssich – volume: 9 year: 2014 ident: bib197 article-title: An integrative model of patient-centeredness - a systematic review and concept analysis publication-title: PloS One – volume: 23 start-page: 155 year: 2013 end-page: 163 ident: bib206 article-title: What is person-centred care in dementia? Clinical reviews into practice: the development of the VIPS practice model publication-title: Rev Clin Gerontol – volume: 21 start-page: 108 year: 2014 end-page: 118 ident: bib161 article-title: Patient participation in special care units for persons with dementia: A losing principle? publication-title: Nurs Ethics – volume: 68 start-page: 2664 year: 2012 end-page: 2673 ident: bib91 article-title: Patients’ views of patient-centred care: a phenomenological case study in one surgical unit publication-title: J Adv Nurs – volume: 17 start-page: 70 year: 2014 end-page: 73 ident: bib122 article-title: Patient and community engagement: the approach at university health network publication-title: Healthc Q Tor Ont – volume: 24 start-page: 1057 year: 2015 end-page: 1067 ident: bib118 article-title: Building new roles and relationships in research: a model of patient engagement research publication-title: Qual Life Res – volume: 33 start-page: 326 year: 2015 end-page: 334 ident: bib96 article-title: Patient engagement in hospital fall prevention publication-title: Nurs Econ – volume: 53 start-page: S60 year: 2014 end-page: S67 ident: bib72 article-title: Patient-centred care: a review for rehabilitative audiologists publication-title: Int J Audiol – volume: 67 start-page: 21 year: 2019 end-page: 28 ident: bib3 article-title: A patient-centered approach to comparative effectiveness research focused on older adults: lessons from the Patient-Centered Outcomes Research Institute publication-title: J Am Geriatr Soc – volume: 14 year: 2014 ident: bib84 article-title: Scoping review of patient-centered care approaches in healthcare publication-title: BMC Health Serv Res – volume: 69 start-page: 425 year: 2013 end-page: 434 ident: bib163 article-title: Intensive care unit nurses’ perceptions of patient participation in the acute phase of chronic obstructive pulmonary disease exacerbation: an interview study publication-title: J Adv Nurs – volume: 25 start-page: 192 year: 2012 end-page: 198 ident: bib65 article-title: Building a patient-centered medical home: obtaining the patient’s voice publication-title: J Am Board Fam Med – volume: 42 start-page: 1758 year: 2007 end-page: 1772 ident: bib31 article-title: Qualitative data analysis for health services research: developing taxonomy, themes, and theory publication-title: Health Serv Res – volume: 12 start-page: 873 year: 2007 end-page: 885 ident: bib183 article-title: Patient empowerment in tuberculosis control: reflecting on past documented experiences publication-title: Trop Med Int Health – volume: 15 start-page: 295 year: 2012 end-page: 326 ident: bib68 article-title: Defining and measuring patient-centred care: an example from a mixed-methods systematic review of the stroke literature publication-title: Health Expect – volume: 23 start-page: 482 year: 2014 end-page: 491 ident: bib159 article-title: Measuring patient participation in surgical treatment decision-making from healthcare professionals’ perspective publication-title: J Clin Nurs – volume: 24 start-page: 196 year: 2010 end-page: 201 ident: bib93 article-title: Patient safety: examining the adequacy of the 5 rights of medication administration publication-title: Clin Nurse Spec CNS – volume: 29 start-page: 264 year: 2012 end-page: 271 ident: bib98 article-title: How unique is continuity of care? A review of continuity and related concepts publication-title: Fam Pract – volume: 93 start-page: E502 year: 2015 ident: bib111 article-title: Each cancer journey begins with one shared step: patient engagement and radiation therapy publication-title: Int J Radiat Oncol Biol Phys – ident: bib21 article-title: What we do – volume: 130 start-page: 73S year: 2006 end-page: 82S ident: bib211 article-title: Patient-focused care: using the right tools publication-title: Chest – volume: 16 start-page: 266 year: 2013 end-page: 276 ident: bib147 article-title: Same description, different values. How service users and providers define patient and public involvement in health care publication-title: Health Expect – volume: 21 start-page: 742 year: 2014 end-page: 750 ident: bib80 article-title: Patient engagement in the inpatient setting: a systematic review publication-title: J Am Med Inform Assoc – volume: 33 start-page: 825 year: 2017 end-page: 840 ident: bib200 article-title: Patient-centeredness in physiotherapy: what does it entail? A systematic review of qualitative studies publication-title: Physiother Theory Pract – volume: 85 start-page: 206 year: 2011 end-page: 213 ident: bib196 article-title: Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities publication-title: Patient Educ Couns – volume: 76 start-page: 157 year: 2015 end-page: 160 ident: bib102 article-title: The Patient engagement prescription publication-title: N C Med J – volume: 17 start-page: e148 year: 2015 ident: bib115 article-title: Patient portals and patient engagement: a state of the science review publication-title: J Med Internet Res – volume: 17 start-page: 888 year: 2014 end-page: 900 ident: bib136 article-title: Introducing the patient’s perspective in hospital health technology assessment (HTA): the views of HTA producers, hospital managers and patients publication-title: Health Expect – volume: 4 start-page: 133 year: 2015 end-page: 145 ident: bib109 article-title: Evaluating patient and stakeholder engagement in research: moving from theory to practice publication-title: J Comp Eff Res – volume: 6 year: 2011 ident: bib142 article-title: Patients’ and observers’ perceptions of involvement differ. Validation study on inter-relating measures for shared decision making publication-title: PloS One – volume: 174 start-page: 1291 year: 2014 end-page: 1298 ident: bib107 article-title: Patient engagement during medical visits and smoking cessation counseling publication-title: JAMA Intern Med – volume: 37 start-page: 643 year: 2015 end-page: 654 ident: bib104 article-title: A conceptual review of engagement in healthcare and rehabilitation publication-title: Disabil Rehabil – volume: 21 start-page: 313 year: 2007 end-page: 320 ident: bib164 article-title: Patient participation in nursing care from a patient perspective: a Grounded Theory study publication-title: Scand J Caring Sci – volume: 94 start-page: 36 year: 1998 ident: bib89 article-title: Partnership in action publication-title: Nurs Times – volume: 13 year: 2015 ident: bib60 article-title: Six “biases” against patients and carers in evidence-based medicine publication-title: BMC Med – volume: 15 start-page: 1277 year: 2005 end-page: 1288 ident: bib30 article-title: Three approaches to qualitative content analysis publication-title: Qual Health Res – volume: 14 start-page: 225 year: 2011 end-page: 239 ident: bib154 article-title: Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives publication-title: Health Expect – volume: 64 start-page: 15 year: 2016 end-page: 18 ident: bib202 article-title: Person-Centered care: a definition and essential elements publication-title: J Am Geriatr Soc – volume: 11 start-page: 86 year: 2015 end-page: 95 ident: bib78 article-title: A historical and clinical perspective endorsing person-centered management of fibromyalgia syndrome publication-title: Curr Rheumatol Rev – ident: bib17 article-title: Get involved - patients. IMI - Innovative Medicines Initiative – volume: 24 start-page: 514 year: 2009 end-page: 520 ident: bib100 article-title: Latino access to the patient-centered medical home publication-title: J Gen Intern Med – volume: 27 start-page: 597 year: 2013 end-page: 608 ident: bib120 article-title: User engagement in the delivery and design of maternity services publication-title: Best Pract Res Obstet Gynaecol – volume: 10 year: 2015 ident: bib199 article-title: Which dimensions of patient-centeredness matter? - results of a web-based expert Delphi survey publication-title: PloS One – volume: 8 start-page: 123 year: 2007 end-page: 141 ident: bib59 article-title: Risk management after stroke: the limits of a patient-centred approach publication-title: Health Risk Soc – volume: 8 start-page: 135 year: 2012 end-page: 150 ident: bib203 article-title: Caring for people with intellectual disabilities and life-limiting illness: merging person-centered planning and patient-centered, family-focused care publication-title: J Soc Work End Life Palliat Care – ident: bib26 article-title: Reports—expanding the science of patient input: the power of language – volume: 4 start-page: 332 year: 2008 end-page: 342 ident: bib191 article-title: Care ideologies reflected in 4 conceptions of pharmaceutical care publication-title: Res Soc Adm Pharm – ident: bib44 article-title: Frameworks & principles – volume: 14 start-page: 175 year: 2014 ident: bib117 article-title: “Practical” resources to support patient and family engagement in healthcare decisions: a scoping review publication-title: BMC Health Serv Res – volume: 10 year: 2015 ident: bib121 article-title: Patients as partners: a qualitative study of patients’ engagement in their health care publication-title: PloS One – year: 2003 ident: bib35 article-title: Patient-Centered Medicine: Transforming the Clinical Method – volume: 23 start-page: 1430 year: 2014 end-page: 1444 ident: bib160 article-title: Patient participation, decision-makers and information flow in surgical treatment publication-title: J Clin Nurs – volume: 307 start-page: 1583 year: 2012 end-page: 1584 ident: bib1 article-title: The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda publication-title: JAMA – volume: 21 start-page: 127 year: 2012 end-page: 134 ident: bib87 article-title: Discussion of patient-centered care in health care organizations publication-title: Qual Manag Health Care – volume: 47 start-page: 154 year: 2010 end-page: 165 ident: bib201 article-title: Person-centred interactions between nurses and patients during medication activities in an acute hospital setting: qualitative observation and interview study publication-title: Int J Nurs Stud – volume: 15 year: 2015 ident: bib205 article-title: Person-centred care in interventions to limit weight gain in pregnant women with obesity - a systematic review publication-title: BMC Pregnancy Childbirth – volume: 18 start-page: 19 year: 2011 end-page: 26 ident: bib83 article-title: Patients’ perspectives of bedside nursing handover publication-title: Coll R Coll Nurs Aust – volume: 165 start-page: 63 year: 2011 end-page: 67 ident: bib172 article-title: Patient empowerment by electronic health records: first results of a systematic review on the benefit of patient portals publication-title: Stud Health Technol Inform – volume: 53 start-page: 9 year: 2015 end-page: 17 ident: bib13 article-title: Patient-focused drug development: a new direction for collaboration publication-title: Med Care – volume: 40 start-page: 30 year: 2015 end-page: 39 ident: bib52 article-title: Patients’ perceptions of the quality of discharge teaching and readiness for discharge publication-title: Rehabil Nurs – volume: 20 start-page: 286 year: 2017 end-page: 291 ident: bib2 article-title: Value to whom? The patient voice in the value discussion publication-title: Value Health – volume: 63 start-page: 12 year: 2006 end-page: 23 ident: bib140 article-title: Patient participation in the consultation process: a structured review of intervention strategies publication-title: Patient Educ Couns – volume: 7 year: 2015 ident: bib9 article-title: From passengers to co-pilots: patient roles expand publication-title: Sci Transl Med – volume: 11 start-page: 263 year: 2008 end-page: 271 ident: bib156 article-title: Considering patient non-participation in health care publication-title: Health Expect – ident: bib15 article-title: Partners & networks - patients and consumers – volume: 8 start-page: 161 year: 2012 end-page: 164 ident: bib55 article-title: A framework for encouraging patient engagement in medical decision making publication-title: J Patient Saf – volume: 4 start-page: 1 year: 2011 end-page: 10 ident: bib216 article-title: Public and patient involvement at the UK National Institute for Health and Clinical Excellence publication-title: Patient – volume: 10 year: 2015 ident: bib174 article-title: Assessment of patient empowerment--a systematic review of measures publication-title: PloS One – volume: 18 start-page: 90 year: 2014 end-page: 91 ident: bib210 article-title: Person-focused care at Kaiser Permanente publication-title: Perm J – volume: 22 start-page: 106 year: 2015 end-page: 120 ident: bib69 article-title: A systematic review of instruments measuring patients’ perceptions of patient-centred nursing care publication-title: Nurs Inq – volume: 41 start-page: 690 year: 2007 end-page: 697 ident: bib79 article-title: The role of empathy in establishing rapport in the consultation: a new model publication-title: Med Educ – volume: 47 start-page: 349 year: 2003 end-page: 355 ident: bib213 article-title: Defining patient-centricity: opportunities, challenges, and implications for clinical care and research publication-title: Ther Innov Regul Sci – ident: bib37 article-title: The Patient engagement pill: lessons from epilepsy – volume: 37 start-page: E10 year: 2014 end-page: E20 ident: bib162 article-title: The effects of patient participation-based dietary intervention on nutritional and functional status for patients with gastrectomy: a randomized controlled trial publication-title: Cancer Nurs – volume: 21 start-page: 129 year: 2014 end-page: 147 ident: bib167 article-title: Patients’ perspectives on person-centred participation in healthcare: a framework analysis publication-title: Nurs Ethics – volume: 21 start-page: 1717 year: 2013 end-page: 1723 ident: bib145 article-title: Women’s perceptions of their involvement in treatment decision making for early stage breast cancer publication-title: Support Care Cancer – volume: 4 start-page: 512 year: 2009 end-page: 514 ident: bib62 article-title: Medical humanities as tools for the teaching of patient-centered care publication-title: J Hosp Med – start-page: 137 year: 2017 end-page: 152 ident: bib41 article-title: Patient and stakeholder engagement in designing pragmatic clinical trials publication-title: Decision Making in a World of Comparative Effectiveness Research – volume: 51 start-page: 1395 year: 2014 end-page: 1415 ident: bib54 article-title: Resident outcomes of person-centered care in long-term care: a narrative review of interventional research publication-title: Int J Nurs Stud – volume: 20 start-page: 174 year: 2014 end-page: 185 ident: bib71 article-title: Health care decision making: cross-cultural analysis of the shift from the autonomous to the relational staff publication-title: New Bioeth – volume: 17 start-page: 138 year: 2014 end-page: 150 ident: bib148 article-title: Patient involvement in mental health care: one size does not fit all publication-title: Health Expect – volume: 95 start-page: 281 year: 2014 end-page: 287 ident: bib112 article-title: A classification model of patient engagement methods and assessment of their feasibility in real-world settings publication-title: Patient Educ Couns – volume: 52 start-page: 220 year: 2018 end-page: 229 ident: bib5 article-title: Assessing the financial value of patient engagement: a quantitative approach from CTTI’s patient groups and clinical trials project publication-title: Ther Innov Regul Sci – volume: 17 start-page: 198 year: 2009 end-page: 216 ident: bib73 article-title: Reconsidering patient participation in guideline development publication-title: Health Care Anal – volume: 21 start-page: 2263 year: 2015 end-page: 2267 ident: bib51 article-title: Accelerating the delivery of patient-centered, high-quality cancer care publication-title: Clin Cancer Res – volume: 30 start-page: 361 year: 2007 end-page: 372 ident: bib139 article-title: Patient involvement in health-related decisions during prolonged critical illness publication-title: Res Nurs Health – volume: 22 start-page: e2 year: 2015 end-page: e6 ident: bib103 article-title: Patient-centered care, collaboration, communication, and coordination: a report from AMIA’s 2013 Policy Meeting publication-title: J Am Med Inform Assoc – volume: 18 start-page: i44 year: 2009 end-page: i50 ident: bib94 article-title: Is patient-centredness in European hospitals related to existing quality improvement strategies? Analysis of a cross-sectional survey (MARQuIS study) publication-title: Qual Saf Health Care – ident: bib47 article-title: PCORI methodology standards – volume: 137 start-page: 241 year: 2008 end-page: 256 ident: bib6 article-title: The transition from “informed patient” care to “patient informed” care publication-title: Stud Health Technol Inform – volume: 5 start-page: 274 year: 2010 end-page: 282 ident: bib165 article-title: Factors influencing older patients’ participation in care: a review of the literature publication-title: Int J Older People Nurs – ident: bib38 article-title: Value+ Toolkit – volume: 153 start-page: 159 year: 2010 end-page: 175 ident: bib212 article-title: Transforming healthcare through patient empowerment publication-title: Stud Health Technol Inform – volume: 43 start-page: 865 year: 2014 end-page: 868 ident: bib135 article-title: Public and patient research priorities for orthostatic hypotension publication-title: Age Ageing – volume: 64 start-page: 19 year: 2016 end-page: 21 ident: bib208 article-title: How to get better care with lower costs? See the person, not the patient publication-title: J Am Geriatr Soc – volume: 17 start-page: 1322 year: 2010 end-page: 1329 ident: bib58 article-title: Patient-centered integrated networks of emergency care: consensus-based recommendations and future research priorities publication-title: Acad Emerg Med – volume: 12 start-page: 14 year: 2012 ident: bib137 article-title: Involving patients in HTA activities at local level: a study protocol based on the collaboration between researchers and knowledge users publication-title: BMC Health Serv Res – volume: 16 start-page: 113 year: 2010 end-page: 119 ident: bib53 article-title: The research agenda for general practice/family medicine and primary health care in Europe. Part 3. Results: person centred care, comprehensive and holistic approach publication-title: Eur J Gen Pract – volume: 23 start-page: 135 year: 2006 end-page: 144 ident: bib207 article-title: Person-centredness: a concept analysis publication-title: Contemp Nurse – volume: 24 start-page: 1033 year: 2015 end-page: 1041 ident: bib214 article-title: Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute publication-title: Qual Life Res – volume: 63 start-page: 268 year: 2006 end-page: 278 ident: bib133 article-title: Patient involvement in treatment decision-making: the case for a broader conceptual framework publication-title: Patient Educ Couns – volume: 363 start-page: k4738 year: 2018 ident: bib4 article-title: Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis publication-title: BMJ – volume: 105 start-page: 277 year: 2011 end-page: 282 ident: bib158 article-title: Participation of patients and citizens in healthcare decisions in Italy publication-title: Z Evidenz Fortbild Qual Gesundhwes – volume: 7 start-page: 181 year: 2018 end-page: 191 ident: bib50 article-title: Increasing uptake of comparative effectiveness and patient-centered outcomes research among stakeholders: insights from conference discussion publication-title: J Comp Eff Res – volume: 25 start-page: 47 year: 2016 ident: bib48 article-title: Patient engagement in observational pharmacoepidemiology research: where are we, where do we need to be, and what are the steps for getting there? publication-title: Pharmacoepidemiol Drug Saf – volume: 359 start-page: j4218 year: 2017 ident: bib28 article-title: Patient centred diagnosis: sharing diagnostic decisions with patients in clinical practice publication-title: BMJ – ident: bib10 article-title: Institute for Patient- and Family-Centered Care. About us – ident: bib14 article-title: Guidance for industry: patient-reported outcome measures: use in medical product development to support label claims – volume: 21 start-page: 460 year: 2007 end-page: 469 ident: bib129 article-title: Patient involvement in a professional body: reflections and commentary publication-title: J Health Organ Manag – volume: 7 start-page: 187 year: 2014 end-page: 195 ident: bib56 article-title: Using photovoice to explore patient perceptions of patient-centered care in the Veterans Affairs Health Care System publication-title: Patient – volume: 70 start-page: 722 year: 2011 end-page: 726 ident: bib132 article-title: European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects publication-title: Ann Rheum Dis – volume: 18 start-page: 2547 year: 2009 end-page: 2554 ident: bib134 article-title: Patient and public involvement: models and muddles publication-title: J Clin Nurs – volume: 11 start-page: 1 year: 2018 end-page: 8 ident: bib8 article-title: Making patient engagement a reality publication-title: Patient – volume: 34 start-page: 268 year: 2017 end-page: 271 ident: bib25 article-title: Collective enquiry and reflective action in research: towards a clarification of the terminology publication-title: Fam Pract – volume: 21 start-page: 21 year: 2010 end-page: 32 ident: bib157 article-title: A comparison of the concept of patient participation and patients’ descriptions as related to healthcare definitions publication-title: Int J Nurs Terminol Classif – volume: 26 start-page: 81 year: 2014 end-page: 91 ident: bib138 article-title: Involvement of patients or their representatives in quality management functions in EU hospitals: implementation and impact on patient-centred care strategies publication-title: Int J Qual Health Care – volume: 21 start-page: 661 year: 2006 end-page: 665 ident: bib189 article-title: Is the quality of the patient-provider relationship associated with better adherence and health outcomes for patients with HIV? publication-title: J Gen Intern Med – volume: 1 start-page: 375 year: 2015 end-page: 379 ident: bib11 article-title: Patient-reported outcomes in cancer drug development and US regulatory review: perspectives from industry, the Food and Drug Administration, and the patient publication-title: JAMA Oncol – volume: 6 start-page: 16 year: 2014 ident: bib123 article-title: Patient engagement as a risk factor in personalized health care: a systematic review of the literature on chronic disease publication-title: Genome Med – volume: 7 start-page: 281 year: 2007 end-page: 289 ident: bib182 article-title: Promoting patient empowerment in the healthcare system: highlighting the need for patient-centered drug policy publication-title: Expert Rev Pharmacoecon Outcomes Res – volume: 12 start-page: 8 year: 2012 end-page: 21 ident: bib116 article-title: Framework for advancing improvement in primary care publication-title: Healthc Pap – volume: 26 start-page: 61 year: 2012 end-page: 69 ident: bib150 article-title: Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit publication-title: Scand J Caring Sci – ident: bib36 article-title: Engagement rubric for applicants – ident: bib39 article-title: Plan for issuance of patient-focused drug development guidance under 21st Century Cures Act Title III Section 3002 – volume: 28 start-page: 714 year: 2014 end-page: 730 ident: bib70 article-title: Subjective experience or objective process: understanding the gap between values and practice for involving patients in designing patient-centred care publication-title: J Health Organ Manag – volume: 79 start-page: 167 year: 2010 end-page: 172 ident: bib179 article-title: The relation between patient-centeredness and patient empowerment: a discussion on concepts publication-title: Patient Educ Couns – volume: 24 start-page: 1069 year: 2015 end-page: 1076 ident: bib113 article-title: Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium publication-title: Qual Life Res – ident: bib23 article-title: Patient involvement in HTA in Taiwan. Presented at the ISPOR 22nd Annual International meeting – volume: 40 start-page: 417 year: 2008 end-page: 422 ident: bib86 article-title: Evidence-based and patient-centered care: results from an STFM group project publication-title: Fam Med – volume: 23 start-page: 231 year: 2014 end-page: 238 ident: bib90 article-title: Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models publication-title: Eur Respir Rev – volume: 16 start-page: 787 year: 2010 end-page: 791 ident: bib171 article-title: E-health applications and services for patient empowerment: directions for best practices in The Netherlands publication-title: Telemed J E Health – volume: 18 start-page: 199 year: 2015 end-page: 209 ident: bib95 article-title: Patient perceptions of patient-centred care: empirical test of a theoretical model publication-title: Health Expect – volume: 22 start-page: 836 year: 2013 end-page: 842 ident: bib143 article-title: Involvement of patients with cancer in patient safety: a qualitative study of current practices, potentials and barriers publication-title: BMJ Qual Saf – volume: 17 start-page: 396 year: 2014 end-page: 417 ident: bib188 article-title: The Swiss Health Literacy Survey: development and psychometric properties of a multidimensional instrument to assess competencies for health publication-title: Health Expect – ident: bib45 article-title: Genetic Alliance. Patient-focused drug development – recommended language for use in guidance document development – ident: bib40 article-title: what we mean by engagement – volume: 12 start-page: 343 year: 2012 end-page: 352 ident: bib181 article-title: Participatory medicine and patient empowerment towards personalized healthcare in multiple sclerosis publication-title: Expert Rev Neurother – volume: 14 start-page: 4 year: 2014 end-page: 16 ident: bib149 article-title: Patient and citizen participation in health: the need for improved ethical support publication-title: Am J Bioeth – volume: 49 start-page: 929 year: 2015 end-page: 939 ident: bib7 article-title: Partnering With patients in the development and lifecycle of medicines: a call for action publication-title: Ther Innov Regul Sci – volume: 29 start-page: 424 year: 2006 end-page: 439 ident: bib151 article-title: Patients as partners in a health research agenda setting: the feasibility of a participatory methodology publication-title: Eval Health Prof – volume: 15 start-page: 695 year: 2006 end-page: 699 ident: bib176 article-title: Empowerment in nursing: paternalism or maternalism? publication-title: Br J Nurs Mark Allen Publ – ident: bib42 article-title: National Health Council. The patient voice in value: The National Health Council patient-centered value model rubric – volume: 16 start-page: 308 year: 2013 end-page: 322 ident: bib187 article-title: Patient issues in health research and quality of care: an inventory and data synthesis publication-title: Health Expect – volume: 12 start-page: 3 year: 2006 end-page: 9 ident: bib126 article-title: Evaluation of an intervention designed to enhance involvement of older patients in their own care publication-title: Eur J Gen Pract – volume: 14 start-page: 240 year: 2011 end-page: 249 ident: bib127 article-title: Patient participation in fundamental psychiatric genomics research: a Dutch case study publication-title: Health Expect – volume: 20 start-page: 600 year: 2008 end-page: 607 ident: bib64 article-title: Patient-centered care and adherence: definitions and applications to improve outcomes publication-title: J Am Acad Nurse Pract – volume: 26 start-page: 2988 year: 2011 end-page: 2999 ident: bib76 article-title: The ENDOCARE questionnaire (ECQ): a valid and reliable instrument to measure the patient-centeredness of endometriosis care in Europe publication-title: Hum Reprod Oxf Engl – volume: 15 start-page: 237 year: 2007 end-page: 241 ident: bib215 article-title: Consumer participation in mental health research: articulating a model to guide practice publication-title: Australas Psychiatry – volume: 30 start-page: 35 year: 2010 end-page: 44 ident: bib144 article-title: The challenge of shared decision making among patients with lower literacy: a framework for research and development publication-title: Med Decis Making – volume: 13 year: 2013 ident: bib198 article-title: Investigating the use of patient involvement and patient experience in quality improvement in Norway: rhetoric or reality? publication-title: BMC Health Serv Res – volume: 29 start-page: S788 year: 2014 end-page: S800 ident: bib110 article-title: A systematic review of approaches for engaging patients for research on rare diseases publication-title: J Gen Intern Med – volume: 69 start-page: 4 year: 2013 end-page: 15 ident: bib92 article-title: What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing publication-title: J Adv Nurs – volume: 20 start-page: 163 year: 2013 end-page: 165 ident: bib61 article-title: Patient-centered care in adult trauma intensive care unit publication-title: J Trauma Nurs – volume: 32 start-page: 242 year: 2013 end-page: 249 ident: bib119 article-title: Choice architecture is a better strategy than engaging patients to spur behavior change publication-title: Health Aff (Millwood) – volume: 42 year: 2018 ident: bib22 article-title: Involving the public in health research in Latin America: making the case for mental health publication-title: Rev Panam Salud Pública – volume: 68 start-page: 33 year: 2007 end-page: 42 ident: bib130 article-title: Older people’s preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries publication-title: Patient Educ Couns – volume: 180 start-page: 25 year: 2012 end-page: 29 ident: bib180 article-title: Improving quality of life through eHealth - the patient perspective publication-title: Stud Health Technol Inform – volume: 23 start-page: 30 year: 2007 end-page: 35 ident: bib175 article-title: Patient-based health technology assessment: a vision of the future publication-title: Int J Technol Assess Health Care – volume: 19 start-page: 21 year: 2018 ident: bib125 article-title: Early-career researchers’ views on ethical dimensions of patient engagement in research publication-title: BMC Med Ethics – volume: 13 start-page: 503 year: 2006 end-page: 514 ident: bib155 article-title: Conditions for patient participation and non-participation in health care publication-title: Nurs Ethics – volume: 2014 start-page: 414 year: 2014 end-page: 423 ident: bib106 article-title: Clinical workflow observations to identify opportunities for nurse, physicians and patients to share a patient-centered plan of care publication-title: AMIA Annu Symp Proc – volume: 23 start-page: 510 year: 2011 end-page: 515 ident: bib77 article-title: Promoting patient-centered care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience publication-title: Int J Qual Health Care – volume: 44 start-page: 653 year: 2010 end-page: 661 ident: bib192 article-title: Impact of student ethnicity and patient-centredness on communication skills performance publication-title: Med Educ – volume: 13 start-page: 394 year: 2006 end-page: 403 ident: bib57 article-title: Documentation of patients’ participation in care at the end of life publication-title: Nurs Ethics – ident: bib43 article-title: Collaboration 2.0: exploring the future of research-by-collaboration in medical R&D. Presented at the FasterCures webinar – volume: 29 start-page: i94 year: 2012 end-page: i103 ident: bib209 article-title: Generalizability of systematic reviews of the effectiveness of health care interventions to primary health care: concepts, methods and future research publication-title: Fam Pract – volume: 2 year: 2016 ident: bib27 article-title: Patient engagement in outcomes research: a snapshot from the ISPOR community publication-title: Value Outcomes Spotlight – volume: 16 start-page: 725 year: 2007 end-page: 733 ident: bib75 article-title: Patient participation in decision making: views of health professionals caring for people with colorectal cancer publication-title: J Clin Nurs – volume: 32 start-page: 223 year: 2013 end-page: 231 ident: bib19 article-title: Patient and family engagement: a framework for understanding the elements and developing interventions and policies publication-title: Health Aff (Millwood) – volume: 29 start-page: 546 year: 2015 end-page: 555 ident: bib108 article-title: Patient involvement in Europe--a comparative framework publication-title: J Health Organ Manag – volume: 24 start-page: 536 year: 2014 end-page: 550 ident: bib81 article-title: Confirming delivery: understanding the role of the hospitalized patient in medication administration safety publication-title: Qual Health Res – volume: 26 start-page: 427 year: 2011 end-page: 436 ident: bib152 article-title: An exploration of factors promoting patient participation in primary care medical interviews publication-title: Health Commun – volume: 32 start-page: 561 year: 2015 end-page: 568 ident: bib193 article-title: Perioperative diabetes care: room for improving the person centredness publication-title: Diabet Med – volume: 21 start-page: 125 year: 2014 end-page: 135 ident: bib67 article-title: The ambiguity of patient-centred practices: the case of a Dutch fertility clinic publication-title: Anthropol Med – ident: bib16 article-title: FDA patient-focused drug development guidance series for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making – volume: 45 start-page: 580 year: 2013 end-page: 586 ident: bib166 article-title: Being in an exchange process: experiences of patient participation in multimodal pain rehabilitation publication-title: J Rehabil Med – volume: 70 start-page: 234 year: 2008 end-page: 241 ident: bib63 article-title: Barriers to patient involvement in health service planning and evaluation: an exploratory study publication-title: Patient Educ Couns – volume: 14 start-page: 89 year: 2014 ident: bib33 article-title: Patient engagement in research: a systematic review publication-title: BMC Health Serv Res – volume: 27 start-page: 985 year: 2012 end-page: 991 ident: bib24 article-title: A new taxonomy for stakeholder engagement in patient-centered outcomes research publication-title: J Gen Intern Med – volume: 33 start-page: 825 issue: 11 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib200 article-title: Patient-centeredness in physiotherapy: what does it entail? A systematic review of qualitative studies publication-title: Physiother Theory Pract doi: 10.1080/09593985.2017.1357151 – volume: 16 start-page: 308 issue: 4 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib187 article-title: Patient issues in health research and quality of care: an inventory and data synthesis publication-title: Health Expect doi: 10.1111/j.1369-7625.2011.00718.x – volume: 28 start-page: 714 issue: 6 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib70 article-title: Subjective experience or objective process: understanding the gap between values and practice for involving patients in designing patient-centred care publication-title: J Health Organ Manag doi: 10.1108/JHOM-08-2013-0160 – volume: 32 start-page: 242 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib119 article-title: Choice architecture is a better strategy than engaging patients to spur behavior change publication-title: Health Aff (Millwood) doi: 10.1377/hlthaff.2012.1075 – volume: 32 start-page: 250 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib190 article-title: Patients, providers, and systems need to acquire a specific set of competencies to achieve truly patient-centered care publication-title: Health Aff (Millwood) doi: 10.1377/hlthaff.2012.1120 – volume: 4 start-page: 133 issue: 2 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib109 article-title: Evaluating patient and stakeholder engagement in research: moving from theory to practice publication-title: J Comp Eff Res doi: 10.2217/cer.14.79 – volume: 17 start-page: e148 issue: 6 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib115 article-title: Patient portals and patient engagement: a state of the science review publication-title: J Med Internet Res doi: 10.2196/jmir.4255 – volume: 24 start-page: 514 issue: Suppl 3 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib100 article-title: Latino access to the patient-centered medical home publication-title: J Gen Intern Med doi: 10.1007/s11606-009-1119-1 – volume: 20 start-page: 600 issue: 12 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib64 article-title: Patient-centered care and adherence: definitions and applications to improve outcomes publication-title: J Am Acad Nurse Pract doi: 10.1111/j.1745-7599.2008.00360.x – volume: 26 start-page: 61 issue: 1 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib150 article-title: Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit publication-title: Scand J Caring Sci doi: 10.1111/j.1471-6712.2011.00904.x – volume: 21 start-page: 125 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib67 article-title: The ambiguity of patient-centred practices: the case of a Dutch fertility clinic publication-title: Anthropol Med doi: 10.1080/13648470.2014.914804 – volume: 6 issue: 10 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib142 article-title: Patients’ and observers’ perceptions of involvement differ. Validation study on inter-relating measures for shared decision making publication-title: PloS One doi: 10.1371/journal.pone.0026255 – volume: 90 start-page: 4 issue: 1 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib185 article-title: Health literacy and patient empowerment in health communication: the importance of separating conjoined twins publication-title: Patient Educ Couns doi: 10.1016/j.pec.2012.09.006 – volume: 21 start-page: 108 issue: 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib161 article-title: Patient participation in special care units for persons with dementia: A losing principle? publication-title: Nurs Ethics doi: 10.1177/0969733013486796 – volume: 15 start-page: 350 issue: 3 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib170 article-title: Internet and patient empowerment in individuals with symptoms of an eating disorder: a cross-sectional investigation of a pro-recovery focused e-community publication-title: Eat Behav doi: 10.1016/j.eatbeh.2014.04.003 – volume: 8 start-page: 123 issue: 2 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib59 article-title: Risk management after stroke: the limits of a patient-centred approach publication-title: Health Risk Soc doi: 10.1080/13698570600677266 – year: 2018 ident: 10.1016/j.jval.2020.01.019_bib32 – start-page: 137 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib41 article-title: Patient and stakeholder engagement in designing pragmatic clinical trials – volume: 32 start-page: 207 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib114 article-title: What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs publication-title: Health Aff (Millwood) doi: 10.1377/hlthaff.2012.1061 – ident: 10.1016/j.jval.2020.01.019_bib37 – volume: 51 start-page: 1395 issue: 10 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib54 article-title: Resident outcomes of person-centered care in long-term care: a narrative review of interventional research publication-title: Int J Nurs Stud doi: 10.1016/j.ijnurstu.2014.04.003 – volume: 13 issue: 206 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib198 article-title: Investigating the use of patient involvement and patient experience in quality improvement in Norway: rhetoric or reality? publication-title: BMC Health Serv Res – volume: 23 start-page: 155 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib206 article-title: What is person-centred care in dementia? Clinical reviews into practice: the development of the VIPS practice model publication-title: Rev Clin Gerontol doi: 10.1017/S0959259813000014 – volume: 63 start-page: 12 issue: 1-2 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib140 article-title: Patient participation in the consultation process: a structured review of intervention strategies publication-title: Patient Educ Couns doi: 10.1016/j.pec.2005.10.005 – volume: 17 start-page: 1322 issue: 12 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib58 article-title: Patient-centered integrated networks of emergency care: consensus-based recommendations and future research priorities publication-title: Acad Emerg Med doi: 10.1111/j.1553-2712.2010.00939.x – volume: 2 issue: 5 year: 2016 ident: 10.1016/j.jval.2020.01.019_bib27 article-title: Patient engagement in outcomes research: a snapshot from the ISPOR community publication-title: Value Outcomes Spotlight – volume: 27 start-page: 985 issue: 8 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib24 article-title: A new taxonomy for stakeholder engagement in patient-centered outcomes research publication-title: J Gen Intern Med doi: 10.1007/s11606-012-2037-1 – volume: 24 start-page: 1069 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib113 article-title: Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium publication-title: Qual Life Res doi: 10.1007/s11136-014-0796-3 – volume: 14 start-page: 4 issue: 6 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib149 article-title: Patient and citizen participation in health: the need for improved ethical support publication-title: Am J Bioeth doi: 10.1080/15265161.2014.900139 – volume: 307 start-page: 1583 issue: 15 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib1 article-title: The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda publication-title: JAMA doi: 10.1001/jama.2012.500 – volume: 359 start-page: j4218 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib28 article-title: Patient centred diagnosis: sharing diagnostic decisions with patients in clinical practice publication-title: BMJ doi: 10.1136/bmj.j4218 – volume: 29 start-page: 546 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib108 article-title: Patient involvement in Europe--a comparative framework publication-title: J Health Organ Manag doi: 10.1108/JHOM-05-2015-0078 – volume: 312 start-page: 1513 issue: 15 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib18 article-title: The PCORI perspective on patient-centered outcomes research publication-title: JAMA doi: 10.1001/jama.2014.11100 – volume: 130 start-page: 73S issue: 1 Suppl year: 2006 ident: 10.1016/j.jval.2020.01.019_bib211 article-title: Patient-focused care: using the right tools publication-title: Chest doi: 10.1378/chest.130.1_suppl.73S – volume: 165 start-page: 63 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib172 article-title: Patient empowerment by electronic health records: first results of a systematic review on the benefit of patient portals publication-title: Stud Health Technol Inform – volume: 22 start-page: 836 issue: 10 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib143 article-title: Involvement of patients with cancer in patient safety: a qualitative study of current practices, potentials and barriers publication-title: BMJ Qual Saf doi: 10.1136/bmjqs-2012-001447 – volume: 79 start-page: 167 issue: 2 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib179 article-title: The relation between patient-centeredness and patient empowerment: a discussion on concepts publication-title: Patient Educ Couns doi: 10.1016/j.pec.2009.08.008 – volume: 27 start-page: 597 issue: 4 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib120 article-title: User engagement in the delivery and design of maternity services publication-title: Best Pract Res Obstet Gynaecol doi: 10.1016/j.bpobgyn.2013.04.006 – volume: 45 start-page: 580 issue: 6 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib166 article-title: Being in an exchange process: experiences of patient participation in multimodal pain rehabilitation publication-title: J Rehabil Med doi: 10.2340/16501977-1136 – volume: 105 start-page: 277 issue: 4 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib158 article-title: Participation of patients and citizens in healthcare decisions in Italy publication-title: Z Evidenz Fortbild Qual Gesundhwes doi: 10.1016/j.zefq.2011.04.003 – volume: 40 start-page: 30 issue: 1 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib52 article-title: Patients’ perceptions of the quality of discharge teaching and readiness for discharge publication-title: Rehabil Nurs doi: 10.1002/rnj.164 – volume: 36 start-page: 409 issue: 4 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib184 article-title: Patient empowerment and motivational interviewing: engaging patients to self-manage their own care publication-title: Nephrol Nurs J – volume: 33 start-page: 249 issue: 3 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib146 article-title: “Natural ground” for medical research charities: public and patient involvement in research funding publication-title: J Ambul Care Manage – volume: 16 start-page: 266 issue: 3 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib147 article-title: Same description, different values. How service users and providers define patient and public involvement in health care publication-title: Health Expect doi: 10.1111/j.1369-7625.2011.00713.x – volume: 16 issue: 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib168 article-title: Patient involvement in health care decision making: a review publication-title: Iran Red Crescent Med J doi: 10.5812/ircmj.12454 – volume: 68 start-page: 2664 issue: 12 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib91 article-title: Patients’ views of patient-centred care: a phenomenological case study in one surgical unit publication-title: J Adv Nurs doi: 10.1111/j.1365-2648.2012.05965.x – volume: 12 start-page: 14 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib137 article-title: Involving patients in HTA activities at local level: a study protocol based on the collaboration between researchers and knowledge users publication-title: BMC Health Serv Res doi: 10.1186/1472-6963-12-14 – year: 2001 ident: 10.1016/j.jval.2020.01.019_bib34 – volume: 23 start-page: 482 issue: 3-4 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib159 article-title: Measuring patient participation in surgical treatment decision-making from healthcare professionals’ perspective publication-title: J Clin Nurs doi: 10.1111/jocn.12184 – volume: 7 start-page: 181 issue: 2 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib50 article-title: Increasing uptake of comparative effectiveness and patient-centered outcomes research among stakeholders: insights from conference discussion publication-title: J Comp Eff Res doi: 10.2217/cer-2017-0060 – volume: 21 start-page: 742 issue: 4 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib80 article-title: Patient engagement in the inpatient setting: a systematic review publication-title: J Am Med Inform Assoc doi: 10.1136/amiajnl-2013-002141 – volume: 4 start-page: 332 issue: 4 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib191 article-title: Care ideologies reflected in 4 conceptions of pharmaceutical care publication-title: Res Soc Adm Pharm doi: 10.1016/j.sapharm.2008.01.001 – volume: 363 start-page: k4738 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib4 article-title: Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis publication-title: BMJ doi: 10.1136/bmj.k4738 – volume: 153 start-page: 159 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib212 article-title: Transforming healthcare through patient empowerment publication-title: Stud Health Technol Inform – volume: 29 start-page: S788 issue: Suppl 3 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib110 article-title: A systematic review of approaches for engaging patients for research on rare diseases publication-title: J Gen Intern Med doi: 10.1007/s11606-014-2895-9 – volume: 174 start-page: 1291 issue: 8 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib107 article-title: Patient engagement during medical visits and smoking cessation counseling publication-title: JAMA Intern Med doi: 10.1001/jamainternmed.2014.2170 – volume: 89 start-page: 25 issue: 1 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib153 article-title: Further examination of the impact of patient participation on physicians’ communication style publication-title: Patient Educ Couns doi: 10.1016/j.pec.2012.03.022 – volume: 11 start-page: 1 issue: 1 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib8 article-title: Making patient engagement a reality publication-title: Patient doi: 10.1007/s40271-017-0264-6 – volume: 15 start-page: 1277 issue: 9 year: 2005 ident: 10.1016/j.jval.2020.01.019_bib30 article-title: Three approaches to qualitative content analysis publication-title: Qual Health Res doi: 10.1177/1049732305276687 – volume: 12 start-page: 343 issue: 3 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib181 article-title: Participatory medicine and patient empowerment towards personalized healthcare in multiple sclerosis publication-title: Expert Rev Neurother doi: 10.1586/ern.11.161 – volume: 24 start-page: 1087 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib99 article-title: Engaging patients to recover life projectuality: an Italian cross-disease framework publication-title: Qual Life Res doi: 10.1007/s11136-014-0846-x – volume: 24 start-page: 1057 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib118 article-title: Building new roles and relationships in research: a model of patient engagement research publication-title: Qual Life Res doi: 10.1007/s11136-014-0845-y – volume: 43 start-page: 865 issue: 6 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib135 article-title: Public and patient research priorities for orthostatic hypotension publication-title: Age Ageing doi: 10.1093/ageing/afu109 – volume: 49 start-page: 929 issue: 6 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib7 article-title: Partnering With patients in the development and lifecycle of medicines: a call for action publication-title: Ther Innov Regul Sci doi: 10.1177/2168479015580384 – volume: 23 start-page: 1430 issue: 9-10 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib160 article-title: Patient participation, decision-makers and information flow in surgical treatment publication-title: J Clin Nurs doi: 10.1111/jocn.12395 – volume: 21 start-page: 127 issue: 3 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib87 article-title: Discussion of patient-centered care in health care organizations publication-title: Qual Manag Health Care doi: 10.1097/QMH.0b013e31825e870d – volume: 21 start-page: 313 issue: 3 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib164 article-title: Patient participation in nursing care from a patient perspective: a Grounded Theory study publication-title: Scand J Caring Sci doi: 10.1111/j.1471-6712.2007.00471.x – volume: 41 start-page: 690 issue: 7 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib79 article-title: The role of empathy in establishing rapport in the consultation: a new model publication-title: Med Educ doi: 10.1111/j.1365-2923.2007.02789.x – volume: 16 start-page: 787 issue: 7 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib171 article-title: E-health applications and services for patient empowerment: directions for best practices in The Netherlands publication-title: Telemed J E Health doi: 10.1089/tmj.2009.0156 – volume: 101 start-page: 241 issue: 4 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib169 article-title: Shared decision-making in the Netherlands--current state and future perspectives publication-title: Z Arztl Fortbild Qualitatssich – volume: 123 start-page: 217 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib195 article-title: Self-help friendliness: a German approach for strengthening the cooperation between self-help groups and health care professionals publication-title: Soc Sci Med doi: 10.1016/j.socscimed.2014.06.051 – volume: 21 start-page: 1717 issue: 6 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib145 article-title: Women’s perceptions of their involvement in treatment decision making for early stage breast cancer publication-title: Support Care Cancer – volume: 47 start-page: 154 issue: 2 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib201 article-title: Person-centred interactions between nurses and patients during medication activities in an acute hospital setting: qualitative observation and interview study publication-title: Int J Nurs Stud doi: 10.1016/j.ijnurstu.2009.05.021 – volume: 63 start-page: 268 issue: 3 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib133 article-title: Patient involvement in treatment decision-making: the case for a broader conceptual framework publication-title: Patient Educ Couns doi: 10.1016/j.pec.2006.05.002 – volume: 76 start-page: 157 issue: 3 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib102 article-title: The Patient engagement prescription publication-title: N C Med J – volume: 67 start-page: 21 issue: 1 year: 2019 ident: 10.1016/j.jval.2020.01.019_bib3 article-title: A patient-centered approach to comparative effectiveness research focused on older adults: lessons from the Patient-Centered Outcomes Research Institute publication-title: J Am Geriatr Soc doi: 10.1111/jgs.15655 – volume: 23 start-page: 510 issue: 5 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib77 article-title: Promoting patient-centered care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience publication-title: Int J Qual Health Care doi: 10.1093/intqhc/mzr024 – volume: 20 start-page: 174 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib71 article-title: Health care decision making: cross-cultural analysis of the shift from the autonomous to the relational staff publication-title: New Bioeth doi: 10.1179/2050287714Z.00000000051 – volume: 11 start-page: 263 issue: 3 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib156 article-title: Considering patient non-participation in health care publication-title: Health Expect doi: 10.1111/j.1369-7625.2008.00488.x – volume: 85 start-page: 206 issue: 2 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib196 article-title: Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities publication-title: Patient Educ Couns doi: 10.1016/j.pec.2011.01.011 – volume: 22 start-page: e2 issue: e1 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib103 article-title: Patient-centered care, collaboration, communication, and coordination: a report from AMIA’s 2013 Policy Meeting publication-title: J Am Med Inform Assoc doi: 10.1136/amiajnl-2014-003176 – volume: 12 start-page: CD003267 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib85 article-title: Interventions for providers to promote a patient-centred approach in clinical consultations publication-title: Cochrane Database Syst Rev – volume: 18 start-page: 477 issue: 4 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib131 article-title: Acceptability and perceived benefits and risks of public and patient involvement in health care policy: a Delphi survey in Belgian stakeholders publication-title: Value Health doi: 10.1016/j.jval.2014.12.015 – volume: 8 start-page: 161 issue: 4 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib55 article-title: A framework for encouraging patient engagement in medical decision making publication-title: J Patient Saf doi: 10.1097/PTS.0b013e318267c56e – volume: 15 start-page: 237 issue: 3 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib215 article-title: Consumer participation in mental health research: articulating a model to guide practice publication-title: Australas Psychiatry doi: 10.1080/10398560701320113 – volume: 62 start-page: E1 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib217 article-title: Do drug treatment POEMs report data in clinically useful ways? publication-title: J Fam Pract – volume: 4 start-page: 512 issue: 8 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib62 article-title: Medical humanities as tools for the teaching of patient-centered care publication-title: J Hosp Med doi: 10.1002/jhm.480 – volume: 26 start-page: 427 issue: 5 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib152 article-title: An exploration of factors promoting patient participation in primary care medical interviews publication-title: Health Commun doi: 10.1080/10410236.2011.552482 – volume: 10 start-page: 82 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib12 article-title: How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration publication-title: Orphanet J Rare Dis doi: 10.1186/s13023-015-0281-2 – volume: 22 start-page: 106 issue: 2 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib69 article-title: A systematic review of instruments measuring patients’ perceptions of patient-centred nursing care publication-title: Nurs Inq doi: 10.1111/nin.12078 – volume: 8 start-page: 135 issue: 2 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib203 article-title: Caring for people with intellectual disabilities and life-limiting illness: merging person-centered planning and patient-centered, family-focused care publication-title: J Soc Work End Life Palliat Care doi: 10.1080/15524256.2012.685440 – volume: 15 start-page: 295 issue: 3 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib68 article-title: Defining and measuring patient-centred care: an example from a mixed-methods systematic review of the stroke literature publication-title: Health Expect doi: 10.1111/j.1369-7625.2011.00683.x – volume: 33 start-page: 326 issue: 6 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib96 article-title: Patient engagement in hospital fall prevention publication-title: Nurs Econ – volume: 23 start-page: 30 issue: 1 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib175 article-title: Patient-based health technology assessment: a vision of the future publication-title: Int J Technol Assess Health Care doi: 10.1017/S0266462307051549 – volume: 44 start-page: 653 issue: 7 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib192 article-title: Impact of student ethnicity and patient-centredness on communication skills performance publication-title: Med Educ doi: 10.1111/j.1365-2923.2010.03632.x – ident: 10.1016/j.jval.2020.01.019_bib43 – volume: 93 start-page: E502 issue: 3 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib111 article-title: Each cancer journey begins with one shared step: patient engagement and radiation therapy publication-title: Int J Radiat Oncol Biol Phys doi: 10.1016/j.ijrobp.2015.07.1831 – volume: 4 start-page: 1 issue: 1 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib216 article-title: Public and patient involvement at the UK National Institute for Health and Clinical Excellence publication-title: Patient doi: 10.2165/11586090-000000000-00000 – volume: 21 start-page: 460 issue: 4-5 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib129 article-title: Patient involvement in a professional body: reflections and commentary publication-title: J Health Organ Manag doi: 10.1108/14777260710778970 – volume: 69 start-page: 4 issue: 1 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib92 article-title: What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing publication-title: J Adv Nurs doi: 10.1111/j.1365-2648.2012.06064.x – volume: 21 start-page: 2263 issue: 10 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib51 article-title: Accelerating the delivery of patient-centered, high-quality cancer care publication-title: Clin Cancer Res doi: 10.1158/1078-0432.CCR-15-0827 – volume: 17 start-page: 138 issue: 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib148 article-title: Patient involvement in mental health care: one size does not fit all publication-title: Health Expect doi: 10.1111/j.1369-7625.2011.00743.x – volume: 24 start-page: 536 issue: 4 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib81 article-title: Confirming delivery: understanding the role of the hospitalized patient in medication administration safety publication-title: Qual Health Res doi: 10.1177/1049732314524487 – volume: 24 start-page: 196 issue: 4 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib93 article-title: Patient safety: examining the adequacy of the 5 rights of medication administration publication-title: Clin Nurse Spec CNS doi: 10.1097/NUR.0b013e3181e3605f – volume: 23 start-page: 135 issue: 1 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib207 article-title: Person-centredness: a concept analysis publication-title: Contemp Nurse doi: 10.5172/conu.2006.23.1.135 – volume: 17 start-page: 70 issue: 3 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib122 article-title: Patient and community engagement: the approach at university health network publication-title: Healthc Q Tor Ont doi: 10.12927/hcq.2014.24023 – volume: 15 start-page: 695 issue: 13 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib176 article-title: Empowerment in nursing: paternalism or maternalism? publication-title: Br J Nurs Mark Allen Publ doi: 10.12968/bjon.2006.15.13.21478 – volume: 17 start-page: 198 issue: 3 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib73 article-title: Reconsidering patient participation in guideline development publication-title: Health Care Anal doi: 10.1007/s10728-008-0099-3 – volume: 95 start-page: 281 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib112 article-title: A classification model of patient engagement methods and assessment of their feasibility in real-world settings publication-title: Patient Educ Couns doi: 10.1016/j.pec.2014.01.016 – volume: 103 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib178 article-title: Barriers to patient empowerment in sub-Saharan Africa: a social psychological evaluation publication-title: Diabetes Res Clin Pract – volume: 6 start-page: 16 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib123 article-title: Patient engagement as a risk factor in personalized health care: a systematic review of the literature on chronic disease publication-title: Genome Med doi: 10.1186/gm533 – volume: 29 start-page: 796 issue: 4 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib97 article-title: Engaging patients and caregivers in patient-centered outcomes research on advanced stage lung cancer: insights from patients, caregivers, and providers publication-title: J Cancer Educ doi: 10.1007/s13187-014-0657-3 – volume: 14 start-page: 335 issue: 3 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib74 article-title: Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech? publication-title: Expert Rev Pharmacoecon Outcomes Res doi: 10.1586/14737167.2014.901890 – volume: 76 start-page: 168 issue: 3 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib105 article-title: Culture change to promote patient engagement: it isn’t how... it’s who publication-title: N C Med J – volume: 14 start-page: 240 issue: 3 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib127 article-title: Patient participation in fundamental psychiatric genomics research: a Dutch case study publication-title: Health Expect doi: 10.1111/j.1369-7625.2010.00634.x – volume: 15 issue: 50 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib205 article-title: Person-centred care in interventions to limit weight gain in pregnant women with obesity - a systematic review publication-title: BMC Pregnancy Childbirth – volume: 23 start-page: 231 issue: 132 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib90 article-title: Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models publication-title: Eur Respir Rev doi: 10.1183/09059180.00001614 – volume: 19 start-page: 21 issue: 1 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib125 article-title: Early-career researchers’ views on ethical dimensions of patient engagement in research publication-title: BMC Med Ethics doi: 10.1186/s12910-018-0260-y – volume: 78 start-page: 350 issue: 3 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib218 article-title: From patient education to patient engagement: implications for the field of patient education publication-title: Patient Educ Couns doi: 10.1016/j.pec.2010.02.002 – volume: 18 start-page: 90 issue: 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib210 article-title: Person-focused care at Kaiser Permanente publication-title: Perm J doi: 10.7812/TPP/13-165 – volume: 96 start-page: 147 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib194 article-title: The evolving concept of “patient-centeredness” in patient-physician communication research publication-title: Soc Sci Med doi: 10.1016/j.socscimed.2013.07.026 – volume: 64 start-page: 19 issue: 1 year: 2016 ident: 10.1016/j.jval.2020.01.019_bib208 article-title: How to get better care with lower costs? See the person, not the patient publication-title: J Am Geriatr Soc doi: 10.1111/jgs.13867 – volume: 10 issue: 11 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib199 article-title: Which dimensions of patient-centeredness matter? - results of a web-based expert Delphi survey publication-title: PloS One doi: 10.1371/journal.pone.0141978 – volume: 29 start-page: i94 issue: Suppl 1 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib209 article-title: Generalizability of systematic reviews of the effectiveness of health care interventions to primary health care: concepts, methods and future research publication-title: Fam Pract doi: 10.1093/fampra/cmr129 – volume: 69 start-page: 425 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib163 article-title: Intensive care unit nurses’ perceptions of patient participation in the acute phase of chronic obstructive pulmonary disease exacerbation: an interview study publication-title: J Adv Nurs doi: 10.1111/j.1365-2648.2012.06021.x – volume: 17 start-page: 396 issue: 3 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib188 article-title: The Swiss Health Literacy Survey: development and psychometric properties of a multidimensional instrument to assess competencies for health publication-title: Health Expect doi: 10.1111/j.1369-7625.2012.00766.x – volume: 14 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib84 article-title: Scoping review of patient-centered care approaches in healthcare publication-title: BMC Health Serv Res doi: 10.1186/1472-6963-14-271 – volume: 14 start-page: 175 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib117 article-title: “Practical” resources to support patient and family engagement in healthcare decisions: a scoping review publication-title: BMC Health Serv Res doi: 10.1186/1472-6963-14-175 – volume: 64 start-page: 15 issue: 1 year: 2016 ident: 10.1016/j.jval.2020.01.019_bib202 article-title: Person-Centered care: a definition and essential elements publication-title: J Am Geriatr Soc doi: 10.1111/jgs.13866 – volume: 13 start-page: 503 issue: 5 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib155 article-title: Conditions for patient participation and non-participation in health care publication-title: Nurs Ethics doi: 10.1191/0969733006nej898oa – volume: 1 start-page: 375 issue: 3 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib11 article-title: Patient-reported outcomes in cancer drug development and US regulatory review: perspectives from industry, the Food and Drug Administration, and the patient publication-title: JAMA Oncol doi: 10.1001/jamaoncol.2015.0530 – volume: 180 start-page: 25 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib180 article-title: Improving quality of life through eHealth - the patient perspective publication-title: Stud Health Technol Inform – volume: 2014 start-page: 414 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib106 article-title: Clinical workflow observations to identify opportunities for nurse, physicians and patients to share a patient-centered plan of care publication-title: AMIA Annu Symp Proc – volume: 34 start-page: 290 issue: 3 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib124 article-title: Tokenism in patient engagement publication-title: Fam Pract – volume: 18 start-page: 199 issue: 2 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib95 article-title: Patient perceptions of patient-centred care: empirical test of a theoretical model publication-title: Health Expect doi: 10.1111/hex.12020 – volume: 14 start-page: 225 issue: 3 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib154 article-title: Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives publication-title: Health Expect doi: 10.1111/j.1369-7625.2010.00647.x – volume: 70 start-page: 234 issue: 2 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib63 article-title: Barriers to patient involvement in health service planning and evaluation: an exploratory study publication-title: Patient Educ Couns doi: 10.1016/j.pec.2007.09.009 – volume: 24 start-page: 1033 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib214 article-title: Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute publication-title: Qual Life Res doi: 10.1007/s11136-014-0893-3 – volume: 20 start-page: 163 issue: 3 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib61 article-title: Patient-centered care in adult trauma intensive care unit publication-title: J Trauma Nurs doi: 10.1097/JTN.0b013e3182a172a0 – volume: 25 start-page: 192 issue: 2 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib65 article-title: Building a patient-centered medical home: obtaining the patient’s voice publication-title: J Am Board Fam Med doi: 10.3122/jabfm.2012.02.100235 – volume: 41 start-page: 505 issue: 4 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib128 article-title: Involving disabled children and young people as partners in research: a systematic review publication-title: Child Care Health Dev doi: 10.1111/cch.12197 – volume: 21 start-page: 129 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib167 article-title: Patients’ perspectives on person-centred participation in healthcare: a framework analysis publication-title: Nurs Ethics doi: 10.1177/0969733013490593 – volume: 11 start-page: 86 issue: 2 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib78 article-title: A historical and clinical perspective endorsing person-centered management of fibromyalgia syndrome publication-title: Curr Rheumatol Rev doi: 10.2174/1573397111666150619094420 – year: 2003 ident: 10.1016/j.jval.2020.01.019_bib35 – volume: 42 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib22 article-title: Involving the public in health research in Latin America: making the case for mental health publication-title: Rev Panam Salud Pública – volume: 7 start-page: 187 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib56 article-title: Using photovoice to explore patient perceptions of patient-centered care in the Veterans Affairs Health Care System publication-title: Patient doi: 10.1007/s40271-014-0044-5 – volume: 26 start-page: 2988 issue: 11 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib76 article-title: The ENDOCARE questionnaire (ECQ): a valid and reliable instrument to measure the patient-centeredness of endometriosis care in Europe publication-title: Hum Reprod Oxf Engl doi: 10.1093/humrep/der277 – volume: 18 start-page: i44 issue: Suppl 1 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib94 article-title: Is patient-centredness in European hospitals related to existing quality improvement strategies? Analysis of a cross-sectional survey (MARQuIS study) publication-title: Qual Saf Health Care doi: 10.1136/qshc.2008.029397 – volume: 34 start-page: 268 issue: 3 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib25 article-title: Collective enquiry and reflective action in research: towards a clarification of the terminology publication-title: Fam Pract – volume: 10 issue: 4 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib121 article-title: Patients as partners: a qualitative study of patients’ engagement in their health care publication-title: PloS One doi: 10.1371/journal.pone.0122499 – volume: 7 issue: 291 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib9 article-title: From passengers to co-pilots: patient roles expand publication-title: Sci Transl Med doi: 10.1126/scitranslmed.aac6023 – volume: 137 start-page: 241 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib6 article-title: The transition from “informed patient” care to “patient informed” care publication-title: Stud Health Technol Inform – volume: 53 start-page: S60 issue: Suppl 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib72 article-title: Patient-centred care: a review for rehabilitative audiologists publication-title: Int J Audiol doi: 10.3109/14992027.2013.847286 – volume: 18 start-page: 2547 issue: 18 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib134 article-title: Patient and public involvement: models and muddles publication-title: J Clin Nurs doi: 10.1111/j.1365-2702.2008.02519.x – volume: 29 start-page: 424 issue: 4 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib151 article-title: Patients as partners in a health research agenda setting: the feasibility of a participatory methodology publication-title: Eval Health Prof doi: 10.1177/0163278706293406 – volume: 10 issue: 5 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib174 article-title: Assessment of patient empowerment--a systematic review of measures publication-title: PloS One doi: 10.1371/journal.pone.0126553 – volume: 9 issue: 9 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib197 article-title: An integrative model of patient-centeredness - a systematic review and concept analysis publication-title: PloS One doi: 10.1371/journal.pone.0107828 – volume: 29 start-page: 264 issue: 3 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib98 article-title: How unique is continuity of care? A review of continuity and related concepts publication-title: Fam Pract doi: 10.1093/fampra/cmr104 – volume: 13 start-page: 394 issue: 4 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib57 article-title: Documentation of patients’ participation in care at the end of life publication-title: Nurs Ethics doi: 10.1191/0969733006ne883oa – volume: 70 start-page: 722 issue: 5 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib132 article-title: European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects publication-title: Ann Rheum Dis doi: 10.1136/ard.2010.135129 – volume: 26 start-page: 81 issue: Suppl 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib138 article-title: Involvement of patients or their representatives in quality management functions in EU hospitals: implementation and impact on patient-centred care strategies publication-title: Int J Qual Health Care doi: 10.1093/intqhc/mzu022 – volume: 13 start-page: 231 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib141 article-title: Patient preference for involvement, experienced involvement, decisional conflict, and satisfaction with physician: a structural equation model test publication-title: BMC Health Serv Res doi: 10.1186/1472-6963-13-231 – volume: 23 start-page: 1203 issue: 11 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib186 article-title: Patient empowerment in cancer pain management: an integrative literature review publication-title: Psychooncology doi: 10.1002/pon.3573 – volume: 26 start-page: 1393 issue: 6 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib29 article-title: Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective publication-title: Qual Life Res doi: 10.1007/s11136-016-1465-5 – volume: 13 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib60 article-title: Six “biases” against patients and carers in evidence-based medicine publication-title: BMC Med doi: 10.1186/s12916-015-0437-x – volume: 18 start-page: 19 issue: 1 year: 2011 ident: 10.1016/j.jval.2020.01.019_bib83 article-title: Patients’ perspectives of bedside nursing handover publication-title: Coll R Coll Nurs Aust – volume: 7 start-page: 281 issue: 3 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib182 article-title: Promoting patient empowerment in the healthcare system: highlighting the need for patient-centered drug policy publication-title: Expert Rev Pharmacoecon Outcomes Res doi: 10.1586/14737167.7.3.281 – volume: 17 start-page: 888 issue: 6 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib136 article-title: Introducing the patient’s perspective in hospital health technology assessment (HTA): the views of HTA producers, hospital managers and patients publication-title: Health Expect doi: 10.1111/hex.12010 – volume: 32 start-page: 561 issue: 4 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib193 article-title: Perioperative diabetes care: room for improving the person centredness publication-title: Diabet Med doi: 10.1111/dme.12600 – volume: 51 start-page: 838 issue: 11 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib204 article-title: Patient participation in rehabilitation questionnaire (PPRQ)-development and psychometric evaluation publication-title: Spinal Cord doi: 10.1038/sc.2013.98 – volume: 14 start-page: 89 issue: 1 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib33 article-title: Patient engagement in research: a systematic review publication-title: BMC Health Serv Res doi: 10.1186/1472-6963-14-89 – volume: 16 start-page: 725 issue: 4 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib75 article-title: Patient participation in decision making: views of health professionals caring for people with colorectal cancer publication-title: J Clin Nurs doi: 10.1111/j.1365-2702.2006.01587.x – volume: 37 start-page: 643 issue: 8 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib104 article-title: A conceptual review of engagement in healthcare and rehabilitation publication-title: Disabil Rehabil doi: 10.3109/09638288.2014.933899 – volume: 23 start-page: 156 issue: 3 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib177 article-title: Patient empowerment: does it still occur in the ICU? publication-title: Intensive Crit Care Nurs doi: 10.1016/j.iccn.2006.03.002 – ident: 10.1016/j.jval.2020.01.019_bib23 – volume: 12 start-page: 873 issue: 7 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib183 article-title: Patient empowerment in tuberculosis control: reflecting on past documented experiences publication-title: Trop Med Int Health doi: 10.1111/j.1365-3156.2007.01858.x – volume: 40 start-page: 417 issue: 6 year: 2008 ident: 10.1016/j.jval.2020.01.019_bib86 article-title: Evidence-based and patient-centered care: results from an STFM group project publication-title: Fam Med – volume: 13 start-page: 1394 issue: 11 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib82 article-title: The use of patient-centered outcome measures in radiology: a systematic review publication-title: Acad Radiol doi: 10.1016/j.acra.2006.08.010 – volume: 30 start-page: 361 issue: 4 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib139 article-title: Patient involvement in health-related decisions during prolonged critical illness publication-title: Res Nurs Health doi: 10.1002/nur.20197 – volume: 6 start-page: 231 issue: 3 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib49 article-title: Patient, caregiver and clinician views on engagement in comparative effectiveness research publication-title: J Comp Eff Res doi: 10.2217/cer-2016-0062 – volume: 52 start-page: 220 issue: 2 year: 2018 ident: 10.1016/j.jval.2020.01.019_bib5 article-title: Assessing the financial value of patient engagement: a quantitative approach from CTTI’s patient groups and clinical trials project publication-title: Ther Innov Regul Sci doi: 10.1177/2168479017716715 – volume: 16 start-page: 113 issue: 2 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib53 article-title: The research agenda for general practice/family medicine and primary health care in Europe. Part 3. Results: person centred care, comprehensive and holistic approach publication-title: Eur J Gen Pract doi: 10.3109/13814788.2010.481018 – volume: 25 start-page: 47 issue: Suppl 3 year: 2016 ident: 10.1016/j.jval.2020.01.019_bib48 article-title: Patient engagement in observational pharmacoepidemiology research: where are we, where do we need to be, and what are the steps for getting there? publication-title: Pharmacoepidemiol Drug Saf – volume: 32 start-page: 223 issue: 2 year: 2013 ident: 10.1016/j.jval.2020.01.019_bib19 article-title: Patient and family engagement: a framework for understanding the elements and developing interventions and policies publication-title: Health Aff (Millwood) doi: 10.1377/hlthaff.2012.1133 – volume: 21 start-page: 21 issue: 1 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib157 article-title: A comparison of the concept of patient participation and patients’ descriptions as related to healthcare definitions publication-title: Int J Nurs Terminol Classif doi: 10.1111/j.1744-618X.2009.01141.x – volume: 77 start-page: 202 issue: 2 year: 2009 ident: 10.1016/j.jval.2020.01.019_bib66 article-title: The impact of patients’ participation on physicians’ patient-centered communication publication-title: Patient Educ Couns doi: 10.1016/j.pec.2009.03.025 – volume: 68 start-page: 33 issue: 1 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib130 article-title: Older people’s preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries publication-title: Patient Educ Couns doi: 10.1016/j.pec.2007.03.025 – volume: 5 start-page: 274 issue: 4 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib165 article-title: Factors influencing older patients’ participation in care: a review of the literature publication-title: Int J Older People Nurs doi: 10.1111/j.1748-3743.2010.00245.x – volume: 47 start-page: 349 issue: 3 year: 2003 ident: 10.1016/j.jval.2020.01.019_bib213 article-title: Defining patient-centricity: opportunities, challenges, and implications for clinical care and research publication-title: Ther Innov Regul Sci doi: 10.1177/2168479013484159 – volume: 94 start-page: 36 issue: 29 year: 1998 ident: 10.1016/j.jval.2020.01.019_bib89 article-title: Partnership in action publication-title: Nurs Times – volume: 12 start-page: 8 issue: 2 year: 2012 ident: 10.1016/j.jval.2020.01.019_bib116 article-title: Framework for advancing improvement in primary care publication-title: Healthc Pap doi: 10.12927/hcpap.2012.22978 – volume: 21 start-page: 661 issue: 6 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib189 article-title: Is the quality of the patient-provider relationship associated with better adherence and health outcomes for patients with HIV? publication-title: J Gen Intern Med doi: 10.1111/j.1525-1497.2006.00399.x – volume: 23 start-page: 548 issue: 7 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib101 article-title: Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review publication-title: BMJ Qual Saf doi: 10.1136/bmjqs-2012-001769 – volume: 66 start-page: 13 issue: 1 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib173 article-title: Patient empowerment in theory and practice: polysemy or cacophony? publication-title: Patient Educ Couns doi: 10.1016/j.pec.2006.09.008 – volume: 30 start-page: 35 issue: 1 year: 2010 ident: 10.1016/j.jval.2020.01.019_bib144 article-title: The challenge of shared decision making among patients with lower literacy: a framework for research and development publication-title: Med Decis Making doi: 10.1177/0272989X09342279 – volume: 20 start-page: 286 issue: 2 year: 2017 ident: 10.1016/j.jval.2020.01.019_bib2 article-title: Value to whom? The patient voice in the value discussion publication-title: Value Health doi: 10.1016/j.jval.2016.11.014 – volume: 12 start-page: 3 issue: 1 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib126 article-title: Evaluation of an intervention designed to enhance involvement of older patients in their own care publication-title: Eur J Gen Pract doi: 10.1080/13814780600766253 – volume: 37 start-page: E10 issue: 2 year: 2014 ident: 10.1016/j.jval.2020.01.019_bib162 article-title: The effects of patient participation-based dietary intervention on nutritional and functional status for patients with gastrectomy: a randomized controlled trial publication-title: Cancer Nurs doi: 10.1097/NCC.0b013e31829193c8 – volume: 119 start-page: U2174 issue: 1242 year: 2006 ident: 10.1016/j.jval.2020.01.019_bib88 article-title: Effective Practice Informatics and Quality (EPIQ). Quality improvement in New Zealand healthcare. Part 6: keeping the patient front and centre to improve healthcare quality publication-title: N Z Med J – volume: 53 start-page: 9 issue: 1 year: 2015 ident: 10.1016/j.jval.2020.01.019_bib13 article-title: Patient-focused drug development: a new direction for collaboration publication-title: Med Care doi: 10.1097/MLR.0000000000000273 – volume: 42 start-page: 1758 issue: 4 year: 2007 ident: 10.1016/j.jval.2020.01.019_bib31 article-title: Qualitative data analysis for health services research: developing taxonomy, themes, and theory publication-title: Health Serv Res doi: 10.1111/j.1475-6773.2006.00684.x
SSID	ssj0006325
Score	2.5732872
Snippet	Lack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in research. This study... AbstractObjectivesLack of clarity on the definition of “patient engagement” has been highlighted as a barrier to fully implementing patient engagement in... Objectives Lack of clarity on the definition of "patient engagement" has been highlighted as a barrier to fully implementing patient engagement in research.... Lack of clarity on the definition of "patient engagement" has been highlighted as a barrier to fully implementing patient engagement in research. This study...
SourceID	proquest crossref elsevier
SourceType	Aggregation Database Enrichment Source Index Database Publisher
StartPage	677
SubjectTerms	Clinical outcomes definition Definitions Health care Health care delivery Health economics Health services Internal Medicine Literary criticism Literature reviews Meta-analysis outcomes research patient centered patient centric patient engagement Patient participation patient research Patient safety Patient-centered care Patients Systematic review
Title	Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group
URI	https://www.clinicalkey.com/#!/content/1-s2.0-S1098301520301418 https://www.clinicalkey.es/playcontent/1-s2.0-S1098301520301418 https://dx.doi.org/10.1016/j.jval.2020.01.019 https://www.proquest.com/docview/2433292716 https://www.proquest.com/docview/2414008885
Volume	23
hasFullText	1
inHoldings	1
isFullTextHit
isPrint
journalDatabaseRights	– providerCode: PRVESC databaseName: Elsevier SD Freedom Collection Journals 2021 customDbUrl: eissn: 1524-4733 dateEnd: 20201231 omitProxy: false ssIdentifier: ssj0006325 issn: 1098-3015 databaseCode: AIEXJ dateStart: 20191101 isFulltext: true titleUrlDefault: https://www.sciencedirect.com providerName: Elsevier
link	http://cvtisr.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwtV1tb9MwELa6DiG-IBggCmMyEtqXLZOdNzt8m6ATQ3uptg71m-UkjrYpykpfpvVn8H_4cZxjO9nGGOMDUhRV7rmudE_O58vdcwh9IDljaVyEHskkHFByRr000o5cwpSMeZQTw66_xw4O-GiUDDqdn64W5rJkVcWvrpLxf1U1jIGydensP6i7-VEYgM-gdLiD2uH-IMV_VkXd9EGz7-tiR005aDNcdHDDpdqZTLjpvDTJHNJyl9cErpZtX8fUHWmJEdfOussq2D0eHB65RTwdJdZtP11DexNqhC3nWnTL-sDfZDmvqUpMDWZrAyeTNp3_SBNNlxttaFxWpnptXy5kO3yoTiel7dfZLzVfsJqdbtx4s2Lzx6-HN3zSpmE5i-yHXsgMW8aWumPMmnFTtmzhet0mx6ZPzG97hQlbnG-dg4639NI1f6s14DeIuQ8Oxc7J3p4Y9kfD9fF3T_cs0-_2bQOXJbTsw7GLd9Hy9m5_9LXxBOKgbvrb_F1btGXyC28v-yfH6JaLUPs9w2foqT2w4G0DtOeoo6oV9HjfpmSsoPWBIT9fbOJhW8s33cTreNDSoi9eoB8OmNhiBrfAxGcVdsD8iC0s8UWBJW5hiQ0sMcASO1hqYQ1KLQugxDUo8W1QYgtK7ECJa1C-RCc7_eGnL55tCOJlYchnXsQkIzmNMloksUoTroKwyCUcsjlcNOBpxn0wNUkR-IzIFPYewmURw6RAEpoFr1C3uqjUa4RTknOZ-2FKsyjMYppyGvKEZAVTSSRp3kPUaUNkli1fN20phUuLPBdag0JrUBAKV9JDG82cseGKuVc6cEoWrgoa9m0B8Lx3FrtrlppaCzQVVEx9QcQxJQmH3Tvy66gJ5T0UNTOtd2285r-uuOoQKJpFfE17mPiMxj30vvkadib9ulFW6mKuZSg4CJzz6M0DZN6iJ-3jv4q6s8lcvUOPssvZ2XSyhpbYiK_Z5-sXWroHCA
linkProvider	Elsevier
openUrl	ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Defining+Patient+Engagement+in+Research%3A+Results+of+a+Systematic+Review+and+Analysis%3A+Report+of+the+ISPOR+Patient-Centered+Special+Interest+Group&rft.jtitle=Value+in+health&rft.au=Harrington%2C+Rachel+L&rft.au=Hanna%2C+Maya+L&rft.au=Oehrlein%2C+Elisabeth+M&rft.au=Camp%2C+Rob&rft.date=2020-06-01&rft.issn=1524-4733&rft.eissn=1524-4733&rft.volume=23&rft.issue=6&rft.spage=677&rft_id=info:doi/10.1016%2Fj.jval.2020.01.019&rft.externalDBID=NO_FULL_TEXT
thumbnail_m	http://cvtisr.summon.serialssolutions.com/2.0.0/image/custom?url=https%3A%2F%2Fcdn.clinicalkey.com%2Fck-thumbnails%2F10983015%2FS1098301520X00088%2Fcov150h.gif