Longitudinal Cohort Study of the Relationship Between Illness Perception, Perceived Social Support, and Psychosocial Quality of Life in Adolescents and Young Adults Newly Diagnosed with Cancer: Outcomes from a BRIGHTLIGHT Study
Background/objectives: Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illnes...
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| Vydáno v: | Cancers Ročník 17; číslo 12; s. 1918 |
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09.06.2025
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| Abstract | Background/objectives: Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central. Methods: We explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study. Results: BRIGHTLIGHT followed 830 young people aged 13–24 across five time points (6–36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to −68.55). Greater perceived support from friends was associated with poorer PSQOL (β: −0.77, 95% CI: −1.007 to −0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to −0.02), longer diagnostic intervals (β: −0.009, 95% CI: −0.02 to −0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to −1.03). A patient interpretation exercise with BRIGHTLIGHT’s Young Advisory Panel contextualized these findings. Conclusions: While peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs’ unique psychosocial needs. |
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| AbstractList | Background/objectives: Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central. Methods: We explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study. Results: BRIGHTLIGHT followed 830 young people aged 13–24 across five time points (6–36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to −68.55). Greater perceived support from friends was associated with poorer PSQOL (β: −0.77, 95% CI: −1.007 to −0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to −0.02), longer diagnostic intervals (β: −0.009, 95% CI: −0.02 to −0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to −1.03). A patient interpretation exercise with BRIGHTLIGHT’s Young Advisory Panel contextualized these findings. Conclusions: While peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs’ unique psychosocial needs. Adolescents and young adults with cancer often face emotional and social challenges, distinct from those experienced by older adults. We explored how young people’s understanding of their cancer and the social support they receive can affect their psychosocial wellbeing over time. Using data from a large national study, we followed cancer patients aged 13 to 24 for three years after diagnosis. While overall wellbeing improved, it remained lower for females. Greater social support from friends was linked to poorer psychosocial wellbeing and perceptions about cancer. A patient interpretation exercise showed this was often due to feeling overwhelmed, isolated, or misunderstood. Social support from friends plays a unique role in mediating psychosocial wellbeing in this population, as it can help maintain normalcy. However, its impact depends on timing and quality. Support systems must be adapted to meet the specific needs of this group, guiding both service provision and future research. Background/objectives: Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central. Methods: We explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study. Results: BRIGHTLIGHT followed 830 young people aged 13–24 across five time points (6–36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to −68.55). Greater perceived support from friends was associated with poorer PSQOL (β: −0.77, 95% CI: −1.007 to −0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to −0.02), longer diagnostic intervals (β: −0.009, 95% CI: −0.02 to −0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to −1.03). A patient interpretation exercise with BRIGHTLIGHT’s Young Advisory Panel contextualized these findings. Conclusions: While peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs’ unique psychosocial needs. Adolescents and young adults with cancer often face emotional and social challenges, distinct from those experienced by older adults. We explored how young people’s understanding of their cancer and the social support they receive can affect their psychosocial wellbeing over time. Using data from a large national study, we followed cancer patients aged 13 to 24 for three years after diagnosis. While overall wellbeing improved, it remained lower for females. Greater social support from friends was linked to poorer psychosocial wellbeing and perceptions about cancer. A patient interpretation exercise showed this was often due to feeling overwhelmed, isolated, or misunderstood. Social support from friends plays a unique role in mediating psychosocial wellbeing in this population, as it can help maintain normalcy. However, its impact depends on timing and quality. Support systems must be adapted to meet the specific needs of this group, guiding both service provision and future research. Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central.BACKGROUND/OBJECTIVESSocial support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central.We explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study.METHODSWe explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study.BRIGHTLIGHT followed 830 young people aged 13-24 across five time points (6-36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to -68.55). Greater perceived support from friends was associated with poorer PSQOL (β: -0.77, 95% CI: -1.007 to -0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to -0.02), longer diagnostic intervals (β: -0.009, 95% CI: -0.02 to -0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to -1.03). A patient interpretation exercise with BRIGHTLIGHT's Young Advisory Panel contextualized these findings.RESULTSBRIGHTLIGHT followed 830 young people aged 13-24 across five time points (6-36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to -68.55). Greater perceived support from friends was associated with poorer PSQOL (β: -0.77, 95% CI: -1.007 to -0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to -0.02), longer diagnostic intervals (β: -0.009, 95% CI: -0.02 to -0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to -1.03). A patient interpretation exercise with BRIGHTLIGHT's Young Advisory Panel contextualized these findings.While peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs' unique psychosocial needs.CONCLUSIONSWhile peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs' unique psychosocial needs. Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face unique psychosocial challenges that intersect with key developmental milestones. Theoretical models propose that illness perceptions and social support are key determinants of coping strategies and long-term health outcomes in this context. These may be especially salient for AYAs, for whom peer relationships and identity formation are central. We explored how perceived social support and illness perceptions influence PSQOL over time in AYA cancer patients through a secondary analysis of the BRIGHTLIGHT longitudinal cohort study. BRIGHTLIGHT followed 830 young people aged 13-24 across five time points (6-36 months post-diagnosis). Multi-level modelling revealed that PSQOL improved over time but remained consistently lower in females (mean: 69.62, 95% CI: 70.69 to -68.55). Greater perceived support from friends was associated with poorer PSQOL (β: -0.77, 95% CI: -1.007 to -0.54) and linked to negative illness perceptions, longer hospital stays (β: 0.01, 95% CI: 0.00 to -0.02), longer diagnostic intervals (β: -0.009, 95% CI: -0.02 to -0.00), and poorer clinical communication (β: 0.52, 95% CI: 0.01 to -1.03). A patient interpretation exercise with BRIGHTLIGHT's Young Advisory Panel contextualized these findings. While peer support could promote normalcy, it could also intensify distress through emotional pressure or social isolation. Future research should address not only access to social support but its quality and relevance to AYAs' unique psychosocial needs. |
| Audience | Academic |
| Author | Taylor, Rachel M. Wickramasinghe, Bethany Fern, Lorna A. Feltbower, Richard G. |
| AuthorAffiliation | 4 Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds LS2 9JT, UK; r.g.feltbower@leeds.ac.uk 1 Department of Targeted Intervention, University College London, London WC1E 6BT, UK; bethany.wickramasinghe.19@alumni.ucl.ac.uk 2 Cancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK; lorna.fern@nhs.net 3 Centre for Nurse, Midwife and Allied Health Profession Research (CNMAR), University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK |
| AuthorAffiliation_xml | – name: 2 Cancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK; lorna.fern@nhs.net – name: 4 Leeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds LS2 9JT, UK; r.g.feltbower@leeds.ac.uk – name: 3 Centre for Nurse, Midwife and Allied Health Profession Research (CNMAR), University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK – name: 1 Department of Targeted Intervention, University College London, London WC1E 6BT, UK; bethany.wickramasinghe.19@alumni.ucl.ac.uk |
| Author_xml | – sequence: 1 givenname: Bethany orcidid: 0009-0002-3855-0625 surname: Wickramasinghe fullname: Wickramasinghe, Bethany – sequence: 2 givenname: Lorna A. orcidid: 0000-0003-4821-8466 surname: Fern fullname: Fern, Lorna A. – sequence: 3 givenname: Rachel M. orcidid: 0000-0002-0853-0925 surname: Taylor fullname: Taylor, Rachel M. – sequence: 4 givenname: Richard G. orcidid: 0000-0002-1728-9408 surname: Feltbower fullname: Feltbower, Richard G. |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/40563568$$D View this record in MEDLINE/PubMed |
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| ContentType | Journal Article |
| Copyright | COPYRIGHT 2025 MDPI AG 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. 2025 by the authors. 2025 |
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| Keywords | BRIGHTLIGHT social support adolescent young adult cancer psychosocial quality of life illness perception peer support |
| Language | English |
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| Snippet | Background/objectives: Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults... Social support can enhance psychosocial health-related quality of life (PSQOL) in adult cancer patients. Adolescents and young adults (AYAs) with cancer face... Adolescents and young adults with cancer often face emotional and social challenges, distinct from those experienced by older adults. We explored how young... |
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| SubjectTerms | Adolescents Cancer Cancer patients Care and treatment Diagnosis Emotions Health aspects Patients Perceptions Psychological aspects Quality of life Social aspects Social interactions Social networks Social support Teenagers Young adults Youth |
| Title | Longitudinal Cohort Study of the Relationship Between Illness Perception, Perceived Social Support, and Psychosocial Quality of Life in Adolescents and Young Adults Newly Diagnosed with Cancer: Outcomes from a BRIGHTLIGHT Study |
| URI | https://www.ncbi.nlm.nih.gov/pubmed/40563568 https://www.proquest.com/docview/3223881254 https://www.proquest.com/docview/3224257934 https://pubmed.ncbi.nlm.nih.gov/PMC12190661 |
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