European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness

Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness. The ERS task force comprised 16...

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Vydáno v:The European respiratory journal Ročník 63; číslo 6
Hlavní autoři: Holland, Anne E, Spathis, Anna, Marsaa, Kristoffer, Bausewein, Claudia, Ahmadi, Zainab, Burge, Angela T, Pascoe, Amy, Gadowski, Adelle M, Collis, Phil, Jelen, Tessa, Reilly, Charles C, Reinke, Lynn F, Romero, Lorena, Russell, Anne-Marie, Saggu, Ravijyot, Solheim, John, Vagheggini, Guido, Vandendungen, Chantal, Wijsenbeek, Marlies, Tonia, Thomy, Smallwood, Natasha, Ekström, Magnus
Médium: Journal Article
Jazyk:angličtina
Vydáno: England 01.06.2024
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ISSN:1399-3003, 1399-3003
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Abstract Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness. The ERS task force comprised 16 members, including representatives of people with serious respiratory illness and informal caregivers. Seven questions were formulated, six in the PICO (Population, Intervention, Comparison, Outcome) format, which were addressed with full systematic reviews and evidence assessed using GRADE (Grading of Recommendations Assessment, Development and Evaluation). One question was addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. To treat symptoms in people with serious respiratory illness, the task force suggests the use of graded exercise therapy (conditional recommendation, low certainty of evidence); and suggests the use of a multicomponent services, handheld fan and breathing techniques (conditional recommendations, very low certainty of evidence). The task force suggests not to use opioids (conditional recommendation, very low certainty of evidence); and suggests either administering or not administering supplemental oxygen therapy (conditional recommendation, low certainty of evidence). The task force suggests that needs assessment tools may be used as part of a comprehensive needs assessment, but do not replace patient-centred care and shared decision making (conditional recommendation, low certainty of evidence). The low certainty of evidence, modest impact of interventions on patient-centred outcomes, and absence of effective strategies to ameliorate cough highlight the need for new approaches to reduce symptoms and enhance wellbeing for individuals who live with serious respiratory illness.
AbstractList Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness. The ERS task force comprised 16 members, including representatives of people with serious respiratory illness and informal caregivers. Seven questions were formulated, six in the PICO (Population, Intervention, Comparison, Outcome) format, which were addressed with full systematic reviews and evidence assessed using GRADE (Grading of Recommendations Assessment, Development and Evaluation). One question was addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. To treat symptoms in people with serious respiratory illness, the task force suggests the use of graded exercise therapy (conditional recommendation, low certainty of evidence); and suggests the use of a multicomponent services, handheld fan and breathing techniques (conditional recommendations, very low certainty of evidence). The task force suggests not to use opioids (conditional recommendation, very low certainty of evidence); and suggests either administering or not administering supplemental oxygen therapy (conditional recommendation, low certainty of evidence). The task force suggests that needs assessment tools may be used as part of a comprehensive needs assessment, but do not replace patient-centred care and shared decision making (conditional recommendation, low certainty of evidence). The low certainty of evidence, modest impact of interventions on patient-centred outcomes, and absence of effective strategies to ameliorate cough highlight the need for new approaches to reduce symptoms and enhance wellbeing for individuals who live with serious respiratory illness.Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness. The ERS task force comprised 16 members, including representatives of people with serious respiratory illness and informal caregivers. Seven questions were formulated, six in the PICO (Population, Intervention, Comparison, Outcome) format, which were addressed with full systematic reviews and evidence assessed using GRADE (Grading of Recommendations Assessment, Development and Evaluation). One question was addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. To treat symptoms in people with serious respiratory illness, the task force suggests the use of graded exercise therapy (conditional recommendation, low certainty of evidence); and suggests the use of a multicomponent services, handheld fan and breathing techniques (conditional recommendations, very low certainty of evidence). The task force suggests not to use opioids (conditional recommendation, very low certainty of evidence); and suggests either administering or not administering supplemental oxygen therapy (conditional recommendation, low certainty of evidence). The task force suggests that needs assessment tools may be used as part of a comprehensive needs assessment, but do not replace patient-centred care and shared decision making (conditional recommendation, low certainty of evidence). The low certainty of evidence, modest impact of interventions on patient-centred outcomes, and absence of effective strategies to ameliorate cough highlight the need for new approaches to reduce symptoms and enhance wellbeing for individuals who live with serious respiratory illness.
Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness. The ERS task force comprised 16 members, including representatives of people with serious respiratory illness and informal caregivers. Seven questions were formulated, six in the PICO (Population, Intervention, Comparison, Outcome) format, which were addressed with full systematic reviews and evidence assessed using GRADE (Grading of Recommendations Assessment, Development and Evaluation). One question was addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. To treat symptoms in people with serious respiratory illness, the task force suggests the use of graded exercise therapy (conditional recommendation, low certainty of evidence); and suggests the use of a multicomponent services, handheld fan and breathing techniques (conditional recommendations, very low certainty of evidence). The task force suggests not to use opioids (conditional recommendation, very low certainty of evidence); and suggests either administering or not administering supplemental oxygen therapy (conditional recommendation, low certainty of evidence). The task force suggests that needs assessment tools may be used as part of a comprehensive needs assessment, but do not replace patient-centred care and shared decision making (conditional recommendation, low certainty of evidence). The low certainty of evidence, modest impact of interventions on patient-centred outcomes, and absence of effective strategies to ameliorate cough highlight the need for new approaches to reduce symptoms and enhance wellbeing for individuals who live with serious respiratory illness.
Author Reinke, Lynn F
Solheim, John
Bausewein, Claudia
Burge, Angela T
Wijsenbeek, Marlies
Pascoe, Amy
Ekström, Magnus
Tonia, Thomy
Collis, Phil
Ahmadi, Zainab
Jelen, Tessa
Smallwood, Natasha
Russell, Anne-Marie
Saggu, Ravijyot
Vagheggini, Guido
Marsaa, Kristoffer
Spathis, Anna
Reilly, Charles C
Gadowski, Adelle M
Romero, Lorena
Vandendungen, Chantal
Holland, Anne E
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  organization: Institute for Breathing and Sleep, Melbourne, Australia
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  givenname: Anna
  surname: Spathis
  fullname: Spathis, Anna
  organization: Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK
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  givenname: Kristoffer
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  organization: Department of Multidisease, North Zealand Hospital, Copenhagen University, Hilleroed, Denmark
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  organization: Respiratory Medicine, Allergology and Palliative Medicine, Department of Clinical Sciences Lund, Lund University, Lund, Sweden
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  givenname: Angela T
  surname: Burge
  fullname: Burge, Angela T
  organization: Department of Physiotherapy, Alfred Health, Melbourne, Australia
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  givenname: Amy
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  surname: Pascoe
  fullname: Pascoe, Amy
  organization: School of Translational Medicine, Monash University, Melbourne, Australia
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  givenname: Adelle M
  surname: Gadowski
  fullname: Gadowski, Adelle M
  organization: School of Translational Medicine, Monash University, Melbourne, Australia
– sequence: 9
  givenname: Phil
  surname: Collis
  fullname: Collis, Phil
  organization: Patient Advisory Group, European Lung Foundation, Sheffield, UK
– sequence: 10
  givenname: Tessa
  surname: Jelen
  fullname: Jelen, Tessa
  organization: Patient Advisory Group, European Lung Foundation, Sheffield, UK
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  givenname: Charles C
  orcidid: 0000-0003-2520-2859
  surname: Reilly
  fullname: Reilly, Charles C
  organization: Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK
– sequence: 12
  givenname: Lynn F
  surname: Reinke
  fullname: Reinke, Lynn F
  organization: College of Nursing, University of Utah, Salt Lake City, UT, USA
– sequence: 13
  givenname: Lorena
  surname: Romero
  fullname: Romero, Lorena
  organization: The Ian Potter Library, Alfred Health, Melbourne, Australia
– sequence: 14
  givenname: Anne-Marie
  orcidid: 0000-0002-0468-3537
  surname: Russell
  fullname: Russell, Anne-Marie
  organization: Birmingham Regional NHS Interstitial Lung Disease and Occupational Lung Disease Service, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
– sequence: 15
  givenname: Ravijyot
  surname: Saggu
  fullname: Saggu, Ravijyot
  organization: Pharmacy Medicines Management Team, Central London Community Healthcare Trust, London, UK
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  givenname: John
  surname: Solheim
  fullname: Solheim, John
  organization: LHL-IPF, Jessheim, Norway
– sequence: 17
  givenname: Guido
  orcidid: 0000-0001-6733-2809
  surname: Vagheggini
  fullname: Vagheggini, Guido
  organization: Fondazione Volterra Ricerche ONLUS, Volterra, Italy
– sequence: 18
  givenname: Chantal
  surname: Vandendungen
  fullname: Vandendungen, Chantal
  organization: ABFFP - Association Belge Francophone Contre la Fibrose Pulmonaire, Rebecq, Belgium
– sequence: 19
  givenname: Marlies
  surname: Wijsenbeek
  fullname: Wijsenbeek, Marlies
  organization: Department of Respiratory Medicine, Erasmus University Medical Center, Center of Excellence for Interstitial Lung Disease, Rotterdam, The Netherlands
– sequence: 20
  givenname: Thomy
  surname: Tonia
  fullname: Tonia, Thomy
  organization: Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland
– sequence: 21
  givenname: Natasha
  surname: Smallwood
  fullname: Smallwood, Natasha
  organization: Joint last authors
– sequence: 22
  givenname: Magnus
  surname: Ekström
  fullname: Ekström, Magnus
  organization: Joint last authors
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References 39915045 - Eur Respir J. 2025 Feb 6;65(2):2402244. doi: 10.1183/13993003.02244-2024.
39915046 - Eur Respir J. 2025 Feb 6;65(2):2402463. doi: 10.1183/13993003.02463-2024.
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– reference: 39915046 - Eur Respir J. 2025 Feb 6;65(2):2402463. doi: 10.1183/13993003.02463-2024.
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Snippet Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task...
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SubjectTerms Adult
Analgesics, Opioid - therapeutic use
Europe
Evidence-Based Medicine
Exercise Therapy
Humans
Needs Assessment
Oxygen Inhalation Therapy
Patient-Centered Care
Pulmonary Medicine - standards
Quality of Life
Societies, Medical
Title European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness
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