Development of a PROM set for patients with Guillain–Barré syndrome (GBS) and chronic inflammatory demyelinating polyneuropathy (CIDP): study protocol

Background Guillain–Barré syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) are rare immune-mediated disorders of the peripheral nervous system. They cause significant physical and mental symptoms and functional impairments that impact patients’ daily lives. Current treatme...

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Veröffentlicht in:	Health and quality of life outcomes Jg. 23; H. 1; S. 91 - 9
Hauptverfasser:	Pelouto, Farah, Haagsma, Juanita. A., Jacobs, Bart C., Terwee, Caroline B.
Format:	Journal Article
Sprache:	Englisch
Veröffentlicht:	London BioMed Central 29.09.2025 Springer Nature B.V BMC
Schlagworte:	Check lists Chronic inflammatory demyelinating polyneuropathy Collaboration Committees Demyelination Disease Evaluation Guillain-Barre syndrome Guillain–Barré syndrome Health services Inflammation Medicine Medicine & Public Health Meetings Mental disorders Nervous system Participation Patient-Reported outcome measure Patient-Reported outcomes Patients Peripheral nervous system Polyneuropathy Quality of life Quality of Life Research Questionnaires Signs and symptoms Stakeholders Study Protocol Guillain–Barré syndrome Patient-Reported outcome measure Patient-Reported outcomes Chronic inflammatory demyelinating polyneuropathy
ISSN:	1477-7525, 1477-7525
Online-Zugang:	Volltext
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