Inconclusive Cystic Fibrosis neonatal screening results: long-term psychosocial effects on parents

Aim: Cystic Fibrosis (CF) Newborn Screening occasionally identifies neonates where a CF diagnosis can neither be confirmed nor excluded. To assess how parents of these infants cope with this ambiguous situation. Methods: Parents of 11 children with Ambiguous Diagnosis (group AD) were compared with...

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Bibliographic Details
Published in:	Acta Paediatrica Vol. 98; no. 12; pp. 1927 - 1934
Main Authors:	Perobelli, Sandra, Zanolla, Luisa, Tamanini, Anna, Rizzotti, Paolo, Maurice Assael, Baroukh, Castellani, Carlo
Format:	Journal Article
Language:	English
Published:	Oxford, UK Blackwell Publishing Ltd 01.12.2009 Blackwell
Subjects:	Adaptation, Psychological Anxiety - etiology Attitude to Health Biological and medical sciences Case-Control Studies CFTR Cystic Fibrosis - diagnosis Cystic Fibrosis - psychology Diagnosis Errors of metabolism Family Planning Services Female General aspects Humans Infant, Newborn Male Medical sciences Metabolic diseases Miscellaneous hereditary metabolic disorders Neonatal Screening - methods Neonatal Screening - psychology Newborn screening Parent-Child Relations Parents - psychology Prevention and actions Psychosocial Public health. Hygiene Public health. Hygiene-occupational medicine Sensitivity and Specificity Stress, Psychological - etiology Surveys and Questionnaires Human Pediatrics Neonatal Psychosocial Respiratory disease Parent Psychology Metabolic diseases Cystic fibrosis Medical screening Psychosocial factor Long term Genetic disease Result Newborn Newborn screening Digestive diseases Diagnosis Social aspect Public health CFTR Pancreatic disease
ISSN:	0803-5253, 1651-2227, 1651-2227
Online Access:	Get full text
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