The Young Carers’ Journey: A Systematic Review and Meta Ethnography
Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers’ experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carer...
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| Vydáno v: | International journal of environmental research and public health Ročník 19; číslo 10; s. 5826 |
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| Médium: | Journal Article |
| Jazyk: | angličtina |
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Switzerland
MDPI AG
10.05.2022
MDPI |
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| ISSN: | 1660-4601, 1661-7827, 1660-4601 |
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| Abstract | Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers’ experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers’ experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map. |
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| AbstractList | Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers’ experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers’ experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map. Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers' experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers' experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map.Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers' experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers' experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map. |
| Author | Frew, Melissa Saragosa, Marianne Hahn-Goldberg, Shoshana Orchanian-Cheff, Ani Okrainec, Karen Abrams, Howard |
| AuthorAffiliation | 4 The Institute for Education Research, University Health Network, Toronto, ON M4P 1E4, Canada 6 Department of Medicine, University of Toronto, Toronto, ON M5S 1A1, Canada 3 Health Sciences Library, University Health Network, Toronto, ON M5G 2C4, Canada; ani.orchanian-cheff@uhn.ca 5 General Internal Medicine, University Health Network, Toronto, ON M4P 1E4, Canada 1 OpenLab, University Health Network, Toronto, ON M4P 1E4, Canada; melissa.frew@uhn.ca (M.F.); shoshana.hahn-goldberg@uhn.ca (S.H.-G.); howard.abrams@uhn.ca (H.A.); karen.okrainec@uhn.ca (K.O.) 2 Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, ON M5T 3M7, Canada |
| AuthorAffiliation_xml | – name: 2 Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, Toronto, ON M5T 3M7, Canada – name: 6 Department of Medicine, University of Toronto, Toronto, ON M5S 1A1, Canada – name: 1 OpenLab, University Health Network, Toronto, ON M4P 1E4, Canada; melissa.frew@uhn.ca (M.F.); shoshana.hahn-goldberg@uhn.ca (S.H.-G.); howard.abrams@uhn.ca (H.A.); karen.okrainec@uhn.ca (K.O.) – name: 3 Health Sciences Library, University Health Network, Toronto, ON M5G 2C4, Canada; ani.orchanian-cheff@uhn.ca – name: 5 General Internal Medicine, University Health Network, Toronto, ON M4P 1E4, Canada – name: 4 The Institute for Education Research, University Health Network, Toronto, ON M4P 1E4, Canada |
| Author_xml | – sequence: 1 givenname: Marianne orcidid: 0000-0002-9261-5971 surname: Saragosa fullname: Saragosa, Marianne – sequence: 2 givenname: Melissa surname: Frew fullname: Frew, Melissa – sequence: 3 givenname: Shoshana surname: Hahn-Goldberg fullname: Hahn-Goldberg, Shoshana – sequence: 4 givenname: Ani orcidid: 0000-0002-9943-2692 surname: Orchanian-Cheff fullname: Orchanian-Cheff, Ani – sequence: 5 givenname: Howard surname: Abrams fullname: Abrams, Howard – sequence: 6 givenname: Karen surname: Okrainec fullname: Okrainec, Karen |
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| Copyright | 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. 2022 by the authors. 2022 |
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| Keywords | meta-ethnography qualitative caregiving youth young carer |
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| SubjectTerms | Adolescent Anthropology, Cultural Caregivers Caregivers - psychology Chronic illnesses Delivery of Health Care Empirical Research Ethnography Families & family life Humans Mental disorders Mental health Peers Qualitative Research Roles Subject heading schemes Systematic Review Young adults |
| Title | The Young Carers’ Journey: A Systematic Review and Meta Ethnography |
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