Increasing representation of Asian American, Native Hawaiian, and Pacific Islander communities in aging, dementia, and caregiving research: An update from the CARE registry

INTRODUCTION Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research. METHODS The Collaborative Approach for AANHPI Research & Ed...

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Vydáno v:	Alzheimer's & dementia Ročník 21; číslo 4; s. e70144 - n/a
Hlavní autoři:	Grill, Joshua D., Tsoh, Janice Y., Nam, Bora, Tzuang, Marian, Huang, Daren, Fara‐on, Gabriel, Johnson, Cati Brown, Hoffmann, Thomas J., Meyer, Oanh L., Mukherjea, Arnab, Nishita, Christy, Gallagher‐Thompson, Dolores, Hinton, Ladson, Tofaeono, Va'a, Balaz, Poki'i, Tavana, Justina P., Tiet, Quyen Q., Javier, Joyce R., Vuong, Quyen, Park, Van Ta
Médium:	Journal Article
Jazyk:	angličtina
Vydáno:	United States John Wiley and Sons Inc 01.04.2025
Témata:	Aged Aged, 80 and over Aging - ethnology Asian American Asian American Native Hawaiian and Pacific Islander - statistics & numerical data Caregivers - statistics & numerical data Dementia - ethnology diversity Female Humans inclusion Male Native Hawaiian Pacific Islander recruitment Registries study design United States United States inclusion Native Hawaiian diversity Pacific Islander recruitment study design Asian American
ISSN:	1552-5260, 1552-5279, 1552-5279
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Abstract	INTRODUCTION Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research. METHODS The Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry. RESULTS Between October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study. DISCUSSION Through collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research. Highlights The CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies.
AbstractList	Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research.INTRODUCTIONAsian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research.The Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry.METHODSThe Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry.Between October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study.RESULTSBetween October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study.Through collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research.DISCUSSIONThrough collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research.The CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies.HIGHLIGHTSThe CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies. INTRODUCTION Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research. METHODS The Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry. RESULTS Between October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study. DISCUSSION Through collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research. Highlights The CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies. Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet remain underrepresented in aging, dementia, and caregiving research. The Collaborative Approach for AANHPI Research & Education (CARE), a recruitment registry, aims to improve the representation of AANHPI older adults in research. We describe activity to date, as well as planned expansions in cultural groups, language capacity, and data collection in the registry. Between October 15, 2020, and November 4, 2024, 10,367 total AANHPI adults enrolled in the CARE registry, including 50.0% with limited English proficiency, 35.1% age ≥ 65, and 80.2% with no prior participation in research. CARE has made more than 13,954 referrals of 6868 unique registrants to at least one study. Through collaborative partnerships with AANHPI communities and researchers, the CARE Registry is achieving its goal of increasing AANHPI representation in research. The CARE registry has enrolled 10,367 AANHPI adults. More than 80% of those enrolled had no prior research experience. As of November 4, 2024, CARE had referred 6868 unique participants to at least one study. In total, CARE has made 13,954 referrals to requesting studies.
Author	Nam, Bora Mukherjea, Arnab Johnson, Cati Brown Tavana, Justina P. Tzuang, Marian Vuong, Quyen Balaz, Poki'i Tiet, Quyen Q. Hoffmann, Thomas J. Grill, Joshua D. Gallagher‐Thompson, Dolores Meyer, Oanh L. Javier, Joyce R. Huang, Daren Park, Van Ta Hinton, Ladson Nishita, Christy Tsoh, Janice Y. Tofaeono, Va'a Fara‐on, Gabriel
AuthorAffiliation	15 Department of Health Systems Science Kaiser Permanente Bernard J. Tyson School of Medicine Pasadena California USA 7 Department of Neurology University of California, Davis Sacramento California USA 11 American Samoa Community Cancer Coalitions Nu'uuli American Samoa 16 International Children Assistance Network Milpitas California USA 8 Department of Public Health California State University Hayward California USA 5 Evaluation Sciences Unit, Division of Primary Care and Population Health Stanford School of Medicine Palo Alto California USA 14 California School of Professional Psychology at Alliant International University Emeryville California USA 2 Department of Psychiatry and Behavioral Sciences University of California San Francisco San Francisco California USA 3 Asian American Research Center on Health (ARCH) University of California San Francisco San Francisco California USA 4 Department of Community Health Systems University of California San Francisco San Francisco California USA 13 De
AuthorAffiliation_xml	– name: 5 Evaluation Sciences Unit, Division of Primary Care and Population Health Stanford School of Medicine Palo Alto California USA – name: 16 International Children Assistance Network Milpitas California USA – name: 13 Department of Biology Brigham Young University Provo Utah USA – name: 6 Department of Epidemiology and Biostatistics University of California San Francisco San Francisco California USA – name: 15 Department of Health Systems Science Kaiser Permanente Bernard J. Tyson School of Medicine Pasadena California USA – name: 4 Department of Community Health Systems University of California San Francisco San Francisco California USA – name: 9 Center on Aging University of Hawaii Honolulu Hawaiʻi USA – name: 11 American Samoa Community Cancer Coalitions Nu'uuli American Samoa – name: 14 California School of Professional Psychology at Alliant International University Emeryville California USA – name: 10 Department of Psychiatry and Behavioral Sciences Stanford University School of Medicine Stanford California USA – name: 8 Department of Public Health California State University Hayward California USA – name: 12 Kokua Kalihi Valley Comprehensive Family Services Honolulu Hawaiʻi USA – name: 2 Department of Psychiatry and Behavioral Sciences University of California San Francisco San Francisco California USA – name: 1 Institute for Memory Impairments and Neurological Disorders Departments of Psychiatry & Human Behavior and Neurobiology & Behavior University of California Irvine Irvine California USA – name: 7 Department of Neurology University of California, Davis Sacramento California USA – name: 3 Asian American Research Center on Health (ARCH) University of California San Francisco San Francisco California USA
Author_xml	– sequence: 1 givenname: Joshua D. surname: Grill fullname: Grill, Joshua D. email: jgrill@uci.edu organization: University of California Irvine – sequence: 2 givenname: Janice Y. surname: Tsoh fullname: Tsoh, Janice Y. organization: University of California San Francisco – sequence: 3 givenname: Bora surname: Nam fullname: Nam, Bora organization: University of California San Francisco – sequence: 4 givenname: Marian surname: Tzuang fullname: Tzuang, Marian organization: University of California San Francisco – sequence: 5 givenname: Daren surname: Huang fullname: Huang, Daren organization: University of California San Francisco – sequence: 6 givenname: Gabriel surname: Fara‐on fullname: Fara‐on, Gabriel organization: University of California San Francisco – sequence: 7 givenname: Cati Brown surname: Johnson fullname: Johnson, Cati Brown organization: Stanford School of Medicine – sequence: 8 givenname: Thomas J. surname: Hoffmann fullname: Hoffmann, Thomas J. organization: University of California San Francisco – sequence: 9 givenname: Oanh L. surname: Meyer fullname: Meyer, Oanh L. organization: University of California, Davis – sequence: 10 givenname: Arnab surname: Mukherjea fullname: Mukherjea, Arnab organization: California State University – sequence: 11 givenname: Christy surname: Nishita fullname: Nishita, Christy organization: University of Hawaii – sequence: 12 givenname: Dolores surname: Gallagher‐Thompson fullname: Gallagher‐Thompson, Dolores organization: Stanford University School of Medicine – sequence: 13 givenname: Ladson surname: Hinton fullname: Hinton, Ladson organization: University of California, Davis – sequence: 14 givenname: Va'a surname: Tofaeono fullname: Tofaeono, Va'a organization: American Samoa Community Cancer Coalitions – sequence: 15 givenname: Poki'i surname: Balaz fullname: Balaz, Poki'i organization: Kokua Kalihi Valley Comprehensive Family Services – sequence: 16 givenname: Justina P. surname: Tavana fullname: Tavana, Justina P. organization: Brigham Young University – sequence: 17 givenname: Quyen Q. surname: Tiet fullname: Tiet, Quyen Q. organization: California School of Professional Psychology at Alliant International University – sequence: 18 givenname: Joyce R. surname: Javier fullname: Javier, Joyce R. organization: Kaiser Permanente Bernard J. Tyson School of Medicine – sequence: 19 givenname: Quyen surname: Vuong fullname: Vuong, Quyen organization: International Children Assistance Network – sequence: 20 givenname: Van Ta surname: Park fullname: Park, Van Ta organization: University of California San Francisco
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Snippet	INTRODUCTION Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United... Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities are among the fastest growing segments of older adults in the United States yet...
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SubjectTerms	Aged Aged, 80 and over Aging - ethnology Asian American Asian American Native Hawaiian and Pacific Islander - statistics & numerical data Caregivers - statistics & numerical data Dementia - ethnology diversity Female Humans inclusion Male Native Hawaiian Pacific Islander recruitment Registries study design United States
Title	Increasing representation of Asian American, Native Hawaiian, and Pacific Islander communities in aging, dementia, and caregiving research: An update from the CARE registry
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