Organizing long-term follow-up care for pediatric cancer survivors: a socio-ecological approach

This study examines the organization of long-term follow-up care for pediatric cancer survivors through the lens of Bronfenbrenners’ Ecological Systems Theory (EST). Using focus group discussions with survivors and healthcare professionals across Germany, we aimed to identify challenges and facilita...

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Vydáno v:Frontiers in public health Ročník 13; s. 1524310
Hlavní autoři: Aleshchenko, Ekaterina, Langer, Thorsten, Calaminus, Gabriele, Gebauer, Judith, Swart, Enno, Baust, Katja
Médium: Journal Article
Jazyk:angličtina
Vydáno: Switzerland Frontiers Media S.A 03.03.2025
Témata:
Adolescent
Aftercare - organization & administration
Cancer Survivors - psychology
cancer survivorship
Child
childhood cancer
Continuity of Patient Care - organization & administration
ecological systems theory
Female
Focus Groups
Follow-Up Studies
Germany
Humans
long-term follow-up studies
Male
Neoplasms - therapy
Public Health
Qualitative Research
Germany
ecological systems theory
childhood cancer
cancer survivorship
long-term follow-up studies
focus groups
ISSN:2296-2565, 2296-2565
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Shrnutí:This study examines the organization of long-term follow-up care for pediatric cancer survivors through the lens of Bronfenbrenners’ Ecological Systems Theory (EST). Using focus group discussions with survivors and healthcare professionals across Germany, we aimed to identify challenges and facilitators in care provision. Data were gathered during four focus groups, each consisting of 5–9 participants. A multimethods approach was used, employing both inductive and deductive thematic analysis. Results indicated key challenges such as fragmented care during transitions and insufficient offer of psychological support. The application of EST revealed the importance of coordinating care across multiple system levels: microsystem (direct care), mesosystem (coordination between care settings), exosystem (healthcare policies), and macrosystem (cultural attitudes). The study proposes strategies to improve care, such as implementing case managers and introducing culturally sensible long-term follow-up protocols. These findings highlight the complexity of survivorship care and the need for a more integrated approach to meet the evolving needs of survivors after childhood and adolescent cancer.
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Reviewed by: Stefanie Plage, The University of Queensland, Australia
Edited by: Momcilo Jankovic, Fondazione MBBM, Italy
Donatella Fraschini, San Gerardo Hospital, Italy
ISSN:2296-2565
2296-2565
DOI:10.3389/fpubh.2025.1524310