‘It’s both challenging and probably the most rewarding work’ – A qualitative study of psychological therapy provider’s experiences of working with people with dissociative seizures

•Psychological treatment is the treatment of choice for dissociative seizures (DS).•Psychological treatment providers’ experiences with DS were studied.•People with DS are a heterogeneous group thought to require individualized treatment.•Improvement of quality of life seemed more important than red...

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Vydáno v:Epilepsy & behavior Ročník 122; s. 108156
Hlavní autoři: O'Connor, Peri Jane, Reuber, Markus
Médium: Journal Article
Jazyk:angličtina
Vydáno: Elsevier Inc 01.09.2021
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ISSN:1525-5050, 1525-5069, 1525-5069
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Shrnutí:•Psychological treatment is the treatment of choice for dissociative seizures (DS).•Psychological treatment providers’ experiences with DS were studied.•People with DS are a heterogeneous group thought to require individualized treatment.•Improvement of quality of life seemed more important than reducing seizures.•Working with DS is complex and requires experience with trauma therapy. Limited research exists exploring the experiences of psychological therapy providers (PTPs) working with people with dissociative seizures (DS). PTPs play a key role in the treatment of DS, yet sit at the end of a long, often ineffective process of diagnosis and waiting before treatment can commence. This qualitative study was undertaken involving 12 PTPs from specialist DS services throughout England and Scotland. Semi-structured interviews were carried out, using thematic analysis to evaluate the data. Four key themes were identified, “neurological to psychological”, “putting the person with DS at the center”, “treatment process”, and “issues and impact of therapy with patients with DS”. The findings showed that an unclear and uncomprehended diagnosis, together with waiting times had a detrimental impact on patients at the starting point of therapy. People with DS were perceived as a heterogeneous group whose treatment needed to be individualized, using the PTPs’ full ‘toolkit’ of modalities and techniques, with a focus on improving quality of life, rather than reducing seizures. The study highlighted the complexity for PTPs of working with major but also accumulated minor traumas, compounded by the impact of DS on both PTPs and treatment. The desire of PTPs to be totally patient-focused meant that individualized treatment was considered essential and meant that participants were doubtful about the possibility of compiling an effective manual for the psychological treatment for DS.
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ISSN:1525-5050
1525-5069
1525-5069
DOI:10.1016/j.yebeh.2021.108156