Early death and causes of death of people with intellectual disabilities: A systematic review
Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers...
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| Published in: | Journal of applied research in intellectual disabilities Vol. 31; no. 3; pp. 325 - 342 |
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| Main Authors: | , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
England
Wiley-Blackwell
01.05.2018
Wiley Subscription Services, Inc |
| Subjects: | |
| ISSN: | 1360-2322, 1468-3148, 1468-3148 |
| Online Access: | Get full text |
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| Abstract | Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Results: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Conclusions: Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated. |
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| AbstractList | BackgroundDeath of people with intellectual disabilities is considered to be earlier than for the general population.MethodsDatabases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.ResultsOf 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high‐income countries, and cause of death is surprisingly little investigated.ConclusionsImproved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated. Death of people with intellectual disabilities is considered to be earlier than for the general population. Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated. Death of people with intellectual disabilities is considered to be earlier than for the general population.BACKGROUNDDeath of people with intellectual disabilities is considered to be earlier than for the general population.Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.METHODSDatabases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated.RESULTSOf 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated.Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.CONCLUSIONSImproved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated. Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Results: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Conclusions: Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated. |
| Author | Hughes‐McCormack, Laura O'Leary, Lisa Cooper, Sally‐Ann |
| Author_xml | – sequence: 1 givenname: Lisa orcidid: 0000-0002-7131-2920 surname: O'Leary fullname: O'Leary, Lisa organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK – sequence: 2 givenname: Sally‐Ann surname: Cooper fullname: Cooper, Sally‐Ann organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK – sequence: 3 givenname: Laura orcidid: 0000-0001-9498-8045 surname: Hughes‐McCormack fullname: Hughes‐McCormack, Laura organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK |
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| PublicationTitle | Journal of applied research in intellectual disabilities |
| PublicationTitleAlternate | J Appl Res Intellect Disabil |
| PublicationYear | 2018 |
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| References_xml | – ident: e_1_2_6_43_1 doi: 10.1111/j.1365-2788.2001.00290.x – ident: e_1_2_6_33_1 doi: 10.1111/jar.12191 – ident: e_1_2_6_5_1 doi: 10.1016/S2215-0366(14)00079-0 – ident: e_1_2_6_19_1 doi: 10.1111/j.1528-1157.1996.tb00533.x – volume: 40 start-page: 50 issue: 1 year: 1998 ident: e_1_2_6_29_1 article-title: Mortality in people with learning disability: Risks, causes, and death certification findings in London publication-title: Developmental Medicine & Child Neurology doi: 10.1111/j.1469-8749.1998.tb15356.x – volume: 30 start-page: 401 issue: 4 year: 1986 ident: e_1_2_6_49_1 article-title: Mortality of mentally retarded children to 17 years of age assessed in a prospective one‐year birth cohort. [Research Support, Non‐U.S. Gov't] publication-title: Journal of Mental Deficiency Research – ident: e_1_2_6_17_1 doi: 10.1111/j.1365-2788.2010.01319.x – ident: e_1_2_6_40_1 – ident: e_1_2_6_44_1 doi: 10.1111/jir.12167 – ident: e_1_2_6_45_1 – ident: e_1_2_6_53_1 – ident: e_1_2_6_52_1 doi: 10.1136/archdischild-2013-304611 – ident: e_1_2_6_36_1 doi: 10.1111/jar.12194 – ident: e_1_2_6_22_1 – ident: e_1_2_6_42_1 doi: 10.1046/j.1365-2788.2000.00280.x – ident: e_1_2_6_50_1 doi: 10.1111/j.1365-2788.2009.01201.x – ident: e_1_2_6_4_1 doi: 10.1093/gerona/57.7.M470 – ident: e_1_2_6_30_1 doi: 10.2105/AJPH.2016.303240 – ident: e_1_2_6_38_1 doi: 10.1111/j.1468-3148.2007.00412.x – ident: e_1_2_6_23_1 doi: 10.1111/jir.12314 – ident: e_1_2_6_8_1 doi: 10.1016/S2215-0366(14)00078-9 – ident: e_1_2_6_11_1 doi: 10.1046/j.1365-3016.2002.00430.x – ident: e_1_2_6_32_1 doi: 10.1111/j.1365-2788.2012.01614.x – ident: e_1_2_6_15_1 doi: 10.1111/j.1365-2788.2007.01006.x – ident: e_1_2_6_51_1 doi: 10.1111/j.1365-2788.2006.00918.x – ident: e_1_2_6_27_1 doi: 10.1111/jar.12192 – ident: e_1_2_6_13_1 doi: 10.1080/1366825021000029311 – volume: 14 issue: 219 year: 2014 ident: e_1_2_6_46_1 article-title: Obesity and health behaviours of British adults with self‐reported intellectual impairments: Cross sectional survey publication-title: BMC Public Health – ident: e_1_2_6_37_1 doi: 10.1111/j.1365-2788.1995.tb00573.x – ident: e_1_2_6_6_1 doi: 10.1111/j.1365-2788.1997.tb00714.x – ident: e_1_2_6_26_1 doi: 10.1016/S0140-6736(13)62026-7 – ident: e_1_2_6_35_1 doi: 10.1016/S0140-6736(13)62190-X – ident: e_1_2_6_28_1 doi: 10.1111/jar.12196 – ident: e_1_2_6_47_1 doi: 10.1111/jar.12149 – ident: e_1_2_6_7_1 – ident: e_1_2_6_25_1 doi: 10.3109/13668250.2010.549464 – ident: e_1_2_6_18_1 doi: 10.1111/jar.12190 – ident: e_1_2_6_14_1 doi: 10.1108/TLDR-01-2014-0003 – ident: e_1_2_6_39_1 doi: 10.1371/journal.pmed.1000097 – ident: e_1_2_6_2_1 – ident: e_1_2_6_3_1 doi: 10.1002/brb3.431 – ident: e_1_2_6_10_1 – ident: e_1_2_6_34_1 doi: 10.1177/1744629506064011 – ident: e_1_2_6_9_1 doi: 10.1037/0033-2909.87.3.442 – ident: e_1_2_6_16_1 doi: 10.1177/073346488900800207 – ident: e_1_2_6_41_1 doi: 10.1111/jar.12195 – ident: e_1_2_6_21_1 – ident: e_1_2_6_48_1 doi: 10.1352/1934-9556-54.1.63 – ident: e_1_2_6_24_1 doi: 10.1111/j.1365-2788.2005.00728.x – ident: e_1_2_6_20_1 doi: 10.3102/0013189X005010003 – ident: e_1_2_6_31_1 doi: 10.1111/jir.12100 – ident: e_1_2_6_12_1 doi: 10.1111/jar.12193 |
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| Snippet | Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for... Death of people with intellectual disabilities is considered to be earlier than for the general population. Databases were searched for key words on... BackgroundDeath of people with intellectual disabilities is considered to be earlier than for the general population.MethodsDatabases were searched for key... Death of people with intellectual disabilities is considered to be earlier than for the general population.BACKGROUNDDeath of people with intellectual... |
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| SubjectTerms | Cardiovascular Diseases - mortality Cause of Death Comorbidity Death Disabilities Disease Incidence Epidemiology Etiology Evidence-based medicine Gender Differences Gender Discrimination Health risks Health Status Disparities Humans Intellectual disabilities Intellectual Disability Intellectual Disability - mortality Life Expectancy Literature Reviews Mortality Mortality Rate Population Respiration Disorders - mortality Respiratory diseases Severe Intellectual Disability Severity (of Disability) Systematic review |
| Title | Early death and causes of death of people with intellectual disabilities: A systematic review |
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