Early death and causes of death of people with intellectual disabilities: A systematic review

Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers...

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Published in:Journal of applied research in intellectual disabilities Vol. 31; no. 3; pp. 325 - 342
Main Authors: O'Leary, Lisa, Cooper, Sally‐Ann, Hughes‐McCormack, Laura
Format: Journal Article
Language:English
Published: England Wiley-Blackwell 01.05.2018
Wiley Subscription Services, Inc
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ISSN:1360-2322, 1468-3148, 1468-3148
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Abstract Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Results: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Conclusions: Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.
AbstractList BackgroundDeath of people with intellectual disabilities is considered to be earlier than for the general population.MethodsDatabases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.ResultsOf 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high‐income countries, and cause of death is surprisingly little investigated.ConclusionsImproved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.
Death of people with intellectual disabilities is considered to be earlier than for the general population. Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.
Death of people with intellectual disabilities is considered to be earlier than for the general population.BACKGROUNDDeath of people with intellectual disabilities is considered to be earlier than for the general population.Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.METHODSDatabases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161.Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated.RESULTSOf 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated.Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.CONCLUSIONSImproved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.
Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. Results: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years. It has improved in recent decades; however, the same inequality gap with the general population remains. More severe intellectual disabilities, and/or additional comorbidities rendered it shortest. Standardized mortality rates showed a greater inequality for women than men. Respiratory disease and circulatory diseases (with greater congenital and lesser ischaemic disease compared with the general population) were the main causes of death. Cancer was less common, and cancer profile differed from the general population. Some deaths are potentially avoidable. All research is from high-income countries, and cause of death is surprisingly little investigated. Conclusions: Improved health care, including anticipatory care such as health checks, and initiatives addressing most relevant lifestyle behaviours and health risks are indicated.
Author Hughes‐McCormack, Laura
O'Leary, Lisa
Cooper, Sally‐Ann
Author_xml – sequence: 1
  givenname: Lisa
  orcidid: 0000-0002-7131-2920
  surname: O'Leary
  fullname: O'Leary, Lisa
  organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK
– sequence: 2
  givenname: Sally‐Ann
  surname: Cooper
  fullname: Cooper, Sally‐Ann
  organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK
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  givenname: Laura
  orcidid: 0000-0001-9498-8045
  surname: Hughes‐McCormack
  fullname: Hughes‐McCormack, Laura
  organization: Institute of Health and Wellbeing College of Medical Veterinary and Life Sciences Mental Health and Wellbeing University of Glasgow Glasgow UK
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https://www.ncbi.nlm.nih.gov/pubmed/28984406$$D View this record in MEDLINE/PubMed
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Issue 3
Keywords life expectancy
mortality
health inequality
cause of death
systematic review
intellectual disability
Language English
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2017 John Wiley & Sons Ltd.
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Snippet Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for...
Death of people with intellectual disabilities is considered to be earlier than for the general population. Databases were searched for key words on...
BackgroundDeath of people with intellectual disabilities is considered to be earlier than for the general population.MethodsDatabases were searched for key...
Death of people with intellectual disabilities is considered to be earlier than for the general population.BACKGROUNDDeath of people with intellectual...
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SubjectTerms Cardiovascular Diseases - mortality
Cause of Death
Comorbidity
Death
Disabilities
Disease Incidence
Epidemiology
Etiology
Evidence-based medicine
Gender Differences
Gender Discrimination
Health risks
Health Status Disparities
Humans
Intellectual disabilities
Intellectual Disability
Intellectual Disability - mortality
Life Expectancy
Literature Reviews
Mortality
Mortality Rate
Population
Respiration Disorders - mortality
Respiratory diseases
Severe Intellectual Disability
Severity (of Disability)
Systematic review
Title Early death and causes of death of people with intellectual disabilities: A systematic review
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https://www.ncbi.nlm.nih.gov/pubmed/28984406
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