Benefits and challenges of cancer peer support groups: A systematic review of qualitative studies
Introduction Although cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face‐to‐face peer led CSHGs. This systematic review ai...
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| Vydané v: | European journal of cancer care Ročník 31; číslo 6; s. e13700 - n/a |
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| Hlavní autori: | , , , |
| Médium: | Journal Article |
| Jazyk: | English |
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England
John Wiley & Sons, Inc
01.11.2022
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| ISSN: | 0961-5423, 1365-2354, 1365-2354 |
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| Abstract | Introduction
Although cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face‐to‐face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face‐to‐face CSHGs in studies based on qualitative research.
Methods
MEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022.
Results
Of the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability.
Conclusion
This indicates that groups need low‐threshold offers to be able to organise support in case of need. |
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| AbstractList | Although cancer self-help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face-to-face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face-to-face CSHGs in studies based on qualitative research.INTRODUCTIONAlthough cancer self-help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face-to-face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face-to-face CSHGs in studies based on qualitative research.MEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022.METHODSMEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022.Of the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability.RESULTSOf the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability.This indicates that groups need low-threshold offers to be able to organise support in case of need.CONCLUSIONThis indicates that groups need low-threshold offers to be able to organise support in case of need. Introduction Although cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face‐to‐face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face‐to‐face CSHGs in studies based on qualitative research. Methods MEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022. Results Of the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability. Conclusion This indicates that groups need low‐threshold offers to be able to organise support in case of need. Although cancer self-help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face-to-face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face-to-face CSHGs in studies based on qualitative research. MEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022. Of the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability. This indicates that groups need low-threshold offers to be able to organise support in case of need. IntroductionAlthough cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face‐to‐face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face‐to‐face CSHGs in studies based on qualitative research.MethodsMEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022.ResultsOf the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability.ConclusionThis indicates that groups need low‐threshold offers to be able to organise support in case of need. |
| Author | Jablotschkin, Martina Markovits Hoopii, René Weis, Joachim Binkowski, Lena |
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| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/36104303$$D View this record in MEDLINE/PubMed |
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| Keywords | cancer self-help group qualitative methods review psychosocial support peer support |
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| Notes | Funding information This work was self‐funded. Martina Jablotschkin and Lena Binkowski contributed equally to this work and share first authorship. ObjectType-Article-1 ObjectType-Evidence Based Healthcare-3 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 ObjectType-Article-2 ObjectType-Undefined-1 ObjectType-Feature-3 ObjectType-Review-4 content type line 23 |
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Although cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated... Although cancer self-help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies... IntroductionAlthough cancer self‐help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated... |
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| SubjectTerms | Cancer Counseling Disease management Group dynamics Humans Leadership Neoplasms - therapy Peer Group peer support Peer tutoring psychosocial support qualitative methods Qualitative Research review Self-Help Groups self‐help group Social support Support groups Systematic review |
| Title | Benefits and challenges of cancer peer support groups: A systematic review of qualitative studies |
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