Psychosocial Management of the Patient With Duchenne Muscular Dystrophy
In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, t...
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| Vydáno v: | Pediatrics (Evanston) Ročník 142; číslo Suppl 2; s. S99 |
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| Hlavní autoři: | , , , , , , , , |
| Médium: | Journal Article |
| Jazyk: | angličtina |
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United States
01.10.2018
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| ISSN: | 1098-4275, 1098-4275 |
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| Abstract | In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations. |
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| AbstractList | In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations.In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations. In this article, we outline a comprehensive plan for the psychosocial management of patients with Duchenne muscular dystrophy (DMD) across the life span. In 2010, the Centers for Disease Control and Prevention sponsored the development of multidisciplinary management guidance for DMD, and in 2018, that guidance was updated. In the intervening years, a new emphasis was placed on studying and addressing the psychosocial issues that affect patients with DMD, driven in part by improved patient survival. Once viewed as ancillary to managing the significant medical needs of patients with DMD, it is now standard practice to integrate psychosocial management into the multidisciplinary management of the disease. It is also increasingly recognized that neurodevelopmental disorders in DMD occur at a higher rate than what was previously understood and that these disorders warrant early and intensive intervention. In this article, we expand on the content found in the 2018 DMD Care Considerations. |
| Author | Hoskin, Janet Damiani, Mario Kinnett, Kathi Gibbons, Melissa Trout, Christina J Moreland, Scott Weidner, Norbert Poysky, James Colvin, Mary K |
| Author_xml | – sequence: 1 givenname: Mary K surname: Colvin fullname: Colvin, Mary K email: mcolvin@mgh.harvard.edu organization: Massachusetts General Hospital and Harvard Medical School, Boston, Massachusetts; mcolvin@mgh.harvard.edu – sequence: 2 givenname: James surname: Poysky fullname: Poysky, James organization: Baylor College of Medicine, Houston, Texas – sequence: 3 givenname: Kathi surname: Kinnett fullname: Kinnett, Kathi organization: Parent Project Muscular Dystrophy, Hackensack, New Jersey – sequence: 4 givenname: Mario surname: Damiani fullname: Damiani, Mario organization: Parent Project Muscular Dystrophy, Hackensack, New Jersey – sequence: 5 givenname: Melissa surname: Gibbons fullname: Gibbons, Melissa organization: Children's Hospital Colorado, Aurora, Colorado – sequence: 6 givenname: Janet surname: Hoskin fullname: Hoskin, Janet organization: University of East London, London, United Kingdom – sequence: 7 givenname: Scott surname: Moreland fullname: Moreland, Scott organization: Baylor College of Medicine, Houston, Texas – sequence: 8 givenname: Christina J surname: Trout fullname: Trout, Christina J organization: University of Iowa, Iowa City, Iowa; and – sequence: 9 givenname: Norbert surname: Weidner fullname: Weidner, Norbert organization: Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio |
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