Caregiver risk preferences for delaying loss of ambulation in Duchenne muscular dystrophy in the United States

Quantify caregiver risk preferences to inform the "value of hope" for Duchenne muscular dystrophy (DMD) therapies affecting time to loss of ambulation (LoA). Caregivers (medical decision-makers) of patients with DMD were surveyed to evaluate their preferences across 2 therapies with identi...

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Vydané v:	Current medical research and opinion Ročník 41; číslo 8; s. 1499 - 1509
Hlavní autori:	Shafrin, Jason, Zawadzki, Nadine, Marin, Moises, Audhya, Ivana, Sedita, Lauren E., Kulkarni, Natasha, Klimchak, Alexa C.
Médium:	Journal Article
Jazyk:	English
Vydavateľské údaje:	England 03.08.2025
Predmet:	Adolescent Adult Caregivers - psychology Child Child, Preschool Female Humans Male Middle Aged Muscular Dystrophy, Duchenne - physiopathology Muscular Dystrophy, Duchenne - therapy Time Factors United States Walking United States treatment preferences loss of ambulation value of hope value assessment Duchenne muscular dystrophy
ISSN:	0300-7995, 1473-4877, 1473-4877
On-line prístup:	Získať plný text
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