Dementia family caregiving experience among Asian American older adults
Asian Americans are almost twice more likely to assume caregiving roles for their family than the general population. More Asian American dementia caregivers (DCGs) find their role highly stressful than African American or Hispanic DCGs. Research exploring the challenges and coping strategies for As...
Saved in:
| Published in: | Alzheimer's & dementia Vol. 17 Suppl 7; p. e055055 |
|---|---|
| Main Authors: | , , , , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
United States
01.12.2021
|
| ISSN: | 1552-5279 |
| Online Access: | Get more information |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| Abstract | Asian Americans are almost twice more likely to assume caregiving roles for their family than the general population. More Asian American dementia caregivers (DCGs) find their role highly stressful than African American or Hispanic DCGs. Research exploring the challenges and coping strategies for Asian American DCGs is limited. This qualitative study, entitled the SHARE (Share History, Activity, Resilience, and Experience) Project, was conducted to explore the challenges and coping strategies among Asian American DCGs.
Focus groups and individual interviews were conducted with 29 Asian Americans in the Bay Area between July-December 2020. The inclusion criteria were: 1) age ≥ 50 years 2) self-identified as Chinese, Indian, Korean, or Vietnamese American; and 3) provide ≥ 5 hours of care/week currently or in the past for dementia care recipient. Participants were recruited through local community service agencies, the community advisory board of this study, online networks, and word of mouth. Interviews that were conducted in Cantonese, Korean, and Vietnamese were transcribed and translated in . Ethnically/linguistically matched moderators facilitated eight focus groups (six via zoom video and two via WeChat video; three in English, two in Cantonese, one in Korean, and two in Vietnamese) and two individual interviews via telephone (one in English and one in Vietnamese) using the structured interview guide.
About two thirds were current DCGs. Participants reported care recipient's behavior-related challenges (e.g., arguing, forgetfulness, wandering) and dementia-related challenges (e.g., uncertainty, helplessness, duty for 24/7). Across all focus groups, filial piety, love, or responsibility as a family were the main source of enduring. Participants reported exercise, distraction, positive thinking, and having time alone as coping strategies. Having multigenerational families or a care team approach for care recipients appeared to decrease caregiving burden. Not feeling guilty or shame about one's limitation and using informal/formal support in a timely manner may also help. Some DCGs also expressed a need for social networking with other DCGs for information and emotional support.
Needs for affordable and/or culturally appropriate formal care services were found. Education and training for DCGs given by former DCGs may be useful to disseminate coping strategies. |
|---|---|
| AbstractList | Asian Americans are almost twice more likely to assume caregiving roles for their family than the general population. More Asian American dementia caregivers (DCGs) find their role highly stressful than African American or Hispanic DCGs. Research exploring the challenges and coping strategies for Asian American DCGs is limited. This qualitative study, entitled the SHARE (Share History, Activity, Resilience, and Experience) Project, was conducted to explore the challenges and coping strategies among Asian American DCGs.
Focus groups and individual interviews were conducted with 29 Asian Americans in the Bay Area between July-December 2020. The inclusion criteria were: 1) age ≥ 50 years 2) self-identified as Chinese, Indian, Korean, or Vietnamese American; and 3) provide ≥ 5 hours of care/week currently or in the past for dementia care recipient. Participants were recruited through local community service agencies, the community advisory board of this study, online networks, and word of mouth. Interviews that were conducted in Cantonese, Korean, and Vietnamese were transcribed and translated in . Ethnically/linguistically matched moderators facilitated eight focus groups (six via zoom video and two via WeChat video; three in English, two in Cantonese, one in Korean, and two in Vietnamese) and two individual interviews via telephone (one in English and one in Vietnamese) using the structured interview guide.
About two thirds were current DCGs. Participants reported care recipient's behavior-related challenges (e.g., arguing, forgetfulness, wandering) and dementia-related challenges (e.g., uncertainty, helplessness, duty for 24/7). Across all focus groups, filial piety, love, or responsibility as a family were the main source of enduring. Participants reported exercise, distraction, positive thinking, and having time alone as coping strategies. Having multigenerational families or a care team approach for care recipients appeared to decrease caregiving burden. Not feeling guilty or shame about one's limitation and using informal/formal support in a timely manner may also help. Some DCGs also expressed a need for social networking with other DCGs for information and emotional support.
Needs for affordable and/or culturally appropriate formal care services were found. Education and training for DCGs given by former DCGs may be useful to disseminate coping strategies. |
| Author | Mukherjea, Arnab Vuong, Quyen Tsoh, Janice Y Cheng, Joyce Choi, JiWon Park, Van Ta |
| Author_xml | – sequence: 1 givenname: JiWon surname: Choi fullname: Choi, JiWon organization: University of California, San Francisco, San Francisco, CA, USA – sequence: 2 givenname: Van Ta surname: Park fullname: Park, Van Ta organization: University of California, San Francisco, San Francisco, CA, USA – sequence: 3 givenname: Quyen surname: Vuong fullname: Vuong, Quyen organization: International Children Assistance Network, Milpitas, CA, USA – sequence: 4 givenname: Joyce surname: Cheng fullname: Cheng, Joyce organization: Chinese Community Health Resource Center, San Francisco, CA, USA – sequence: 5 givenname: Arnab surname: Mukherjea fullname: Mukherjea, Arnab organization: California State University - East Bay, Hayward, CA, USA – sequence: 6 givenname: Janice Y surname: Tsoh fullname: Tsoh, Janice Y organization: University of California, San Francisco, San Francisco, CA, USA |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/35109592$$D View this record in MEDLINE/PubMed |
| BookMark | eNo1j91KxDAUhIMo7o_e-ACSF-iak-ak7WVZ3VVY8EavlzQ5WSJNWtpdcX16CyoMM8N3MTALdpm6RIzdgViBEPLBtN8rgTjpgs0BUWYoi2rGFuP4IYQSJeA1m-UIosJKztn2kSKlYzDcmxjaM7dmoEP4DOnA6aunIVCyxE3sJlCPwSRex4naqXSto4Ebd2qP4w278qYd6fYvl-x98_S2fs52r9uXdb3LrATAzKEGn2vSpMAXDrx1PpdKWyecsl43uSlUUyI1wjpQ1rmyocpqJKkhn3zJ7n93-1MTye37IUQznPf_j-QPAbJNqA |
| CitedBy_id | crossref_primary_10_3389_fpubh_2024_1512778 |
| ContentType | Journal Article |
| Copyright | 2021 the Alzheimer's Association. |
| Copyright_xml | – notice: 2021 the Alzheimer's Association. |
| DBID | NPM |
| DOI | 10.1002/alz.055055 |
| DatabaseName | PubMed |
| DatabaseTitle | PubMed |
| DatabaseTitleList | PubMed |
| Database_xml | – sequence: 1 dbid: NPM name: PubMed url: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed sourceTypes: Index Database |
| DeliveryMethod | no_fulltext_linktorsrc |
| EISSN | 1552-5279 |
| ExternalDocumentID | 35109592 |
| Genre | Journal Article |
| GroupedDBID | --- --K --M .~1 0R~ 1B1 1OC 1~. 1~5 24P 33P 4.4 457 4G. 53G 5VS 7-5 71M 7RV 7X7 8FI 8FJ 8P~ AACTN AAEDT AAHHS AAIKJ AAKOC AALRI AANLZ AAOAW AAXLA AAXUO AAYCA ABBQC ABCQJ ABCUV ABIVO ABJNI ABMAC ABMZM ABUWG ABWVN ACCFJ ACCMX ACCZN ACGFS ACGOF ACPOU ACRPL ACXQS ADBBV ADBTR ADEZE ADHUB ADKYN ADMUD ADNMO ADPDF ADVLN ADZMN ADZOD AEEZP AEIGN AEKER AENEX AEQDE AEUYR AEVXI AFKRA AFTJW AFWVQ AGHFR AGUBO AGWIK AGYEJ AITUG AIURR AIWBW AJBDE AJOXV AJRQY AKRWK ALMA_UNASSIGNED_HOLDINGS ALUQN AMFUW AMRAJ AMYDB ANZVX AZQEC BENPR BFHJK BLXMC C45 CCPQU DCZOG EBS EJD EMOBN EO8 EO9 EP2 EP3 F5P FDB FEDTE FIRID FNPLU FYUFA G-Q GBLVA HMCUK HVGLF HX~ HZ~ IHE J1W K9- LATKE LEEKS M0R M41 MO0 MOBAO N9A NAPCQ NPM O-L O9- OAUVE OVD OVEED OZT P-8 P-9 P2P PC. PGMZT PIMPY PSYQQ Q38 QTD RIG ROL RPM RPZ SDF SDG SEL SES SSZ SUPJJ T5K TEORI UKHRP ~G- |
| ID | FETCH-LOGICAL-c2115-d561f36e6e41f7d1fcdf3246cd0d4cf6b3a74b85eb0cd14cdd8be9c65e26135e2 |
| IngestDate | Wed Feb 19 02:28:24 EST 2025 |
| IsPeerReviewed | true |
| IsScholarly | true |
| Language | English |
| License | 2021 the Alzheimer's Association. |
| LinkModel | OpenURL |
| MergedId | FETCHMERGED-LOGICAL-c2115-d561f36e6e41f7d1fcdf3246cd0d4cf6b3a74b85eb0cd14cdd8be9c65e26135e2 |
| PMID | 35109592 |
| ParticipantIDs | pubmed_primary_35109592 |
| PublicationCentury | 2000 |
| PublicationDate | 2021-Dec |
| PublicationDateYYYYMMDD | 2021-12-01 |
| PublicationDate_xml | – month: 12 year: 2021 text: 2021-Dec |
| PublicationDecade | 2020 |
| PublicationPlace | United States |
| PublicationPlace_xml | – name: United States |
| PublicationTitle | Alzheimer's & dementia |
| PublicationTitleAlternate | Alzheimers Dement |
| PublicationYear | 2021 |
| SSID | ssj0040815 |
| Score | 2.3121912 |
| Snippet | Asian Americans are almost twice more likely to assume caregiving roles for their family than the general population. More Asian American dementia caregivers... |
| SourceID | pubmed |
| SourceType | Index Database |
| StartPage | e055055 |
| Title | Dementia family caregiving experience among Asian American older adults |
| URI | https://www.ncbi.nlm.nih.gov/pubmed/35109592 |
| Volume | 17 Suppl 7 |
| hasFullText | |
| inHoldings | 1 |
| isFullTextHit | |
| isPrint | |
| link | http://cvtisr.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwtV1JT4QwFG7cYrwYjfuWHrwZlApt4ThxjYeJJuNyM3RTEmUmjhpnfr2PtsDELXrw0hBaCvQrj_deX9-H0HZEGSci4wGPRBzElMogY4oERmhiFQJNhSWb4O12cnOTnnufbt_SCfCiSN7e0t6_Qg3nAOxy6-wf4K47hRNwDKBDCbBD-SvgD63DL88q30UZ23WXW7-BrvMae5Khlt1CWa_adEvKbpeSoz-qtbYehvc6tzwrvG8ni_I3aaIDujYs4Cy_btb1z30c9hV03ambXr34KOCLl0GzD-3gXlexwQM_2bwvYp-MxHVoLz9pads6fphawPIdS1G6w0ckpQ5L24h-KcVdVtjsYbj7uREMdu_RQheBOEmpY9L7ufZDRu2qahyNc1YK83bp4XF_7xhUJFqnsd3fax5iBk1XF34wQawq0plDs96GwC2H_Twa08UCOqlwxw533OCOG9yxxR1b3HGFO7a4Y4f7Iro8PuocnAaeJSOQYLzTQIEGbCKmmY6J4YoYqQxoyUyqUMXSMBFlPBYJ1SKUisRSqUToVDKqwXiOoFxCE0W30CsImzCRWihFaAIdhHGWZYwIGabC0NCkySpadu9923OpUG6rEVn7tmYdzTQzZQNNGvjM9Caakq_Pef9pyw7-O2y6S8k |
| linkProvider | National Library of Medicine |
| openUrl | ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Dementia+family+caregiving+experience+among+Asian+American+older+adults&rft.jtitle=Alzheimer%27s+%26+dementia&rft.au=Choi%2C+JiWon&rft.au=Park%2C+Van+Ta&rft.au=Vuong%2C+Quyen&rft.au=Cheng%2C+Joyce&rft.date=2021-12-01&rft.eissn=1552-5279&rft.volume=17+Suppl+7&rft.spage=e055055&rft_id=info:doi/10.1002%2Falz.055055&rft_id=info%3Apmid%2F35109592&rft_id=info%3Apmid%2F35109592&rft.externalDocID=35109592 |