Moral and scientific boundaries: research ethics on the Thai–Burma border

Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to education mean that the process of consent and the development of consent-related materials is a challenge and may require translation betwe...

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Vydáno v:Journal of medical ethics Ročník 38; číslo 9; s. 559 - 560
Hlavní autor: Parker, Michael J
Médium: Journal Article
Jazyk:angličtina
Vydáno: England BMJ Publishing Group Ltd and Institute of Medical Ethics 01.09.2012
BMJ Publishing Group
BMJ Publishing Group LTD
BMJ Group
Témata:
Access to education
Antimalarials
Antimalarials - therapeutic use
Applied ethics
Asian Continental Ancestry Group
Bioethics
Biomedical Research - ethics
Boundaries
Burma
clinical ethics
Clinical Trials as Topic - ethics
Commentaries
Community engagement
Consent
developing countries
Ethics
ethics theory
Ethics, Medical
Ethics, Research
genetics
genetics research ethics
Genomics
Health care
Health services
Humans
Informed consent
International borders
Languages
Malaria
Malaria - drug therapy
Modeling
Moral development
Moral relativism
Morals
Myanmar
Patient Selection
Refugees - psychology
Research ethics
Research subjects
Researchers
Scientific technical language
Thailand
Transients and Migrants - psychology
Myanmar
Thailand
Myanmar (Burma)
ISSN:0306-6800, 1473-4257, 1473-4257
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Abstract Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to education mean that the process of consent and the development of consent-related materials is a challenge and may require translation between a number of different languages. 3 The complexity of the scientific terms such as 'genomics' and processes such as data sharing is difficult to convey in meaningful terms. 4 In addition to issues related to understanding, it may be very difficult for research subjects to refuse to participate in research when it is carried out by a research centre that is also their main provider of healthcare.
AbstractList Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to education mean that the process of consent and the development of consent-related materials is a challenge and may require translation between a number of different languages. 3 The complexity of the scientific terms such as 'genomics' and processes such as data sharing is difficult to convey in meaningful terms. 4 In addition to issues related to understanding, it may be very difficult for research subjects to refuse to participate in research when it is carried out by a research centre that is also their main provider of healthcare.
Author Parker, Michael J
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BackLink https://www.ncbi.nlm.nih.gov/pubmed/22613695$$D View this record in MEDLINE/PubMed
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CitedBy_id crossref_primary_10_1186_s12936_015_1042_3
crossref_primary_10_12688_wellcomeopenres_14698_1
crossref_primary_10_12688_wellcomeopenres_14698_2
crossref_primary_10_12688_wellcomeopenres_19572_3
crossref_primary_10_4236_health_2013_52031
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Cites_doi 10.1111/j.1468–2435.2010.00630.x
10.1016/s0140–6736(12)60484-X
10.1016/j.inhe.2010.02.001
10.1016/S0140-6736(12)60484-X
10.1111/j.1468-2435.2010.00630.x
10.1086/591299
10.1186/1472-6939-12-5
ContentType Journal Article
Copyright 2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
2012 BMJ Publishing Group Ltd and the Institute of Medical Ethics
Copyright: 2012 (c) 2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. 2012
Copyright_xml – notice: 2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
– notice: 2012 BMJ Publishing Group Ltd and the Institute of Medical Ethics
– notice: Copyright: 2012 (c) 2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
– notice: 2012, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. 2012
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Snippet Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to...
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StartPage 559
SubjectTerms Access to education
Antimalarials
Antimalarials - therapeutic use
Applied ethics
Asian Continental Ancestry Group
Bioethics
Biomedical Research - ethics
Boundaries
Burma
clinical ethics
Clinical Trials as Topic - ethics
Commentaries
Community engagement
Consent
developing countries
Ethics
ethics theory
Ethics, Medical
Ethics, Research
genetics
genetics research ethics
Genomics
Health care
Health services
Humans
Informed consent
International borders
Languages
Malaria
Malaria - drug therapy
Modeling
Moral development
Moral relativism
Morals
Myanmar
Patient Selection
Refugees - psychology
Research ethics
Research subjects
Researchers
Scientific technical language
Thailand
Transients and Migrants - psychology
Title Moral and scientific boundaries: research ethics on the Thai–Burma border
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