Moral and scientific boundaries: research ethics on the Thai–Burma border

Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to education mean that the process of consent and the development of consent-related materials is a challenge and may require translation betwe...

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Bibliographic Details
Published in:Journal of medical ethics Vol. 38; no. 9; pp. 559 - 560
Main Author: Parker, Michael J
Format: Journal Article
Language:English
Published: England BMJ Publishing Group Ltd and Institute of Medical Ethics 01.09.2012
BMJ Publishing Group
BMJ Publishing Group LTD
BMJ Group
Subjects:
Access to education
Antimalarials
Antimalarials - therapeutic use
Applied ethics
Asian Continental Ancestry Group
Bioethics
Biomedical Research - ethics
Boundaries
Burma
clinical ethics
Clinical Trials as Topic - ethics
Commentaries
Community engagement
Consent
developing countries
Ethics
ethics theory
Ethics, Medical
Ethics, Research
genetics
genetics research ethics
Genomics
Health care
Health services
Humans
Informed consent
International borders
Languages
Malaria
Malaria - drug therapy
Modeling
Moral development
Moral relativism
Morals
Myanmar
Patient Selection
Refugees - psychology
Research ethics
Research subjects
Researchers
Scientific technical language
Thailand
Transients and Migrants - psychology
Myanmar
Thailand
Myanmar (Burma)
ISSN:0306-6800, 1473-4257, 1473-4257
Online Access:Get full text
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Summary:Developing good practice in consent The variety of languages spoken in the region, the range of values and beliefs, and the inevitable constraints on access to education mean that the process of consent and the development of consent-related materials is a challenge and may require translation between a number of different languages. 3 The complexity of the scientific terms such as 'genomics' and processes such as data sharing is difficult to convey in meaningful terms. 4 In addition to issues related to understanding, it may be very difficult for research subjects to refuse to participate in research when it is carried out by a research centre that is also their main provider of healthcare.
Bibliography:ark:/67375/NVC-7PPHHM97-4
PMID:22613695
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Linked article: 100301.R1.
ISSN:0306-6800
1473-4257
1473-4257
DOI:10.1136/medethics-2012-100582