Search Results - AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries

Combination disease‐modifying treatment in spinal muscular atrophy: A proposed classification by Proud, Crystal M., Mercuri, Eugenio, Finkel, Richard S., Kirschner, Janbernd, De Vivo, Darryl C., Muntoni, Francesco, Saito, Kayoko, Tizzano, Eduardo F., Desguerre, Isabelle, Quijano‐Roy, Susana, Benguerba, Kamal, Raju, Dheeraj, Faulkner, Eric, Servais, Laurent

“… We validated this approach by applying the classification to the 443 patients currently in the RESTORE registry and explored the demographics of these different groups of patients…”
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Health information management: principles and organization for health information services by Skurka, Margaret A

“…This is the fifth edition of the definitive reference source on the management of health records. Health Information Management provides the basic guidelines…”
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Protecting Data Privacy in Health Services Research by Medicine, Institute of, Services, Division of Health Care, Protection, Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy

“… The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider…”
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The Medical Follow-up Agency: The First Fifty Years, 1946-1996 by Medicine, Institute of, Santangelo, Mark J, Berkowitz, Edward D

“… Its data resources provide incomparable opportunities to follow very important populations and to ask creative questions about their well-being as well as the occurrence and significance of illness…”
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