Forced Into an Ableist Narrative? The Swedish Covid Association’s Quest for Recognition
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| Název: | Forced Into an Ableist Narrative? The Swedish Covid Association’s Quest for Recognition |
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| Autoři: | Melander, Stina, Bahner, Julia |
| Přispěvatelé: | Lund University, Lunds universitet, Originator |
| Zdroj: | Scandinavian Journal of Disability Research. 27(1):299-312 |
| Témata: | Social Sciences, Political Science, Political Science (excluding Peace and Conflict Studies), Samhällsvetenskap, Statsvetenskap, Statsvetenskap (exklusive freds- och konfliktforskning), Sociology, Social Work, Sociologi, Socialt arbete, Other Social Sciences, Other Social Sciences not elsewhere specified, Annan samhällsvetenskap, Övrig annan samhällsvetenskap |
| Popis: | During the COVID-19 pandemic, the Swedish Covid Association (SCA) was established to represent individuals with Long COVID (LC). The unique Swedish response to the pandemic, characterized by minimal restrictions, serves as the backdrop for the SCA’s efforts to highlight the specific needs of LC patients, who were largely excluded from pandemic policies and protective measures. Utilizing the Narrative Policy Framework (NPF), this study examines how the SCA advocates for LC patients across micro, meso, and macro levels. Data were collected through analysis of the SCA’s online materials, reports, and interviews with former SCA representatives. The SCA’s narrative positions LC patients as deserving heroes, emphasizing their previous ‘productive’ lives and their entitlement to appropriate healthcare. While this strategy empowers individuals, the focus on the ‘worthy’ patient risks reinforcing ableist standards. Consequently, activists should be cognizant of the potential for their advocacy strategies to inadvertently perpetuate ableist narratives. |
| Přístupová URL adresa: | https://doi.org/10.16993/sjdr.1234 |
| Databáze: | SwePub |
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Nájsť tento článok vo Web of Science | Abstrakt: | During the COVID-19 pandemic, the Swedish Covid Association (SCA) was established to represent individuals with Long COVID (LC). The unique Swedish response to the pandemic, characterized by minimal restrictions, serves as the backdrop for the SCA’s efforts to highlight the specific needs of LC patients, who were largely excluded from pandemic policies and protective measures. Utilizing the Narrative Policy Framework (NPF), this study examines how the SCA advocates for LC patients across micro, meso, and macro levels. Data were collected through analysis of the SCA’s online materials, reports, and interviews with former SCA representatives. The SCA’s narrative positions LC patients as deserving heroes, emphasizing their previous ‘productive’ lives and their entitlement to appropriate healthcare. While this strategy empowers individuals, the focus on the ‘worthy’ patient risks reinforcing ableist standards. Consequently, activists should be cognizant of the potential for their advocacy strategies to inadvertently perpetuate ableist narratives. |
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| ISSN: | 15017419 17453011 |
| DOI: | 10.16993/sjdr.1234 |