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Feeling controlled or being in control? Apps for self-management among older people with neurological disability

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Title: Feeling controlled or being in control? Apps for self-management among older people with neurological disability
Authors: Winberg, Cecilia, Kylberg, Marianne, Pettersson, Cecilia, Harnett, Tove, Hedvall, Per-Olof, Mattsson, Titti, Månsson Lexell, Eva
Contributors: Lund University, Faculty of Medicine, Department of Health Sciences, Active and Healthy Ageing Research Group, Lunds universitet, Medicinska fakulteten, Institutionen för hälsovetenskaper, Aktivt och hälsosamt åldrande, Originator, Lund University, Faculty of Social Sciences, Departments of Administrative, Economic and Social Sciences, School of Social Work, Lunds universitet, Samhällsvetenskapliga fakulteten, Samhällsvetenskapliga institutioner och centrumbildningar, Socialhögskolan, Originator, Lund University, Faculty of Engineering, LTH, Departments at LTH, Department of Design Sciences, Ergonomics and Aerosol Technology, Certec - Rehabilitation Engineering and Design, Lunds universitet, Lunds Tekniska Högskola, Institutioner vid LTH, Institutionen för designvetenskaper, Ergonomi och aerosolteknologi, Certec - Rehabiliteringsteknik och Design, Originator, Lund University, Faculty of Law, Law and Vulnerabilities, Lunds universitet, Juridiska fakulteten, Rätt och utsatthet, Originator, Lund University, Faculty of Law, Norma Research Programme, Lunds universitet, Juridiska fakulteten, Norma Research Programme, Originator, Lund University, Faculty of Law, Health Law, Lunds universitet, Juridiska fakulteten, Health Law, Originator, Lund University, Faculty of Law, Public Law, Lunds universitet, Juridiska fakulteten, Offentlig rätt, Originator, Lund University, Faculty of Law, Department of Law, Lunds universitet, Juridiska fakulteten, Juridiska institutionen, Originator
Source: Disability and Rehabilitation: Assistive Technology. 16(6):603-608
Subject Terms: Social Sciences, Law, Samhällsvetenskap, Juridik, Medical and Health Sciences, Health Sciences, Medicin och hälsovetenskap, Hälsovetenskap
Description: Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life. Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns. Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”. Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered. Implications for rehabilitation Apps can be used for self-management if they are safe and can be trusted. People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals. The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches. Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.
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  Data: Lund University, Faculty of Medicine, Department of Health Sciences, Active and Healthy Ageing Research Group, Lunds universitet, Medicinska fakulteten, Institutionen för hälsovetenskaper, Aktivt och hälsosamt åldrande, Originator<br />Lund University, Faculty of Social Sciences, Departments of Administrative, Economic and Social Sciences, School of Social Work, Lunds universitet, Samhällsvetenskapliga fakulteten, Samhällsvetenskapliga institutioner och centrumbildningar, Socialhögskolan, Originator<br />Lund University, Faculty of Engineering, LTH, Departments at LTH, Department of Design Sciences, Ergonomics and Aerosol Technology, Certec - Rehabilitation Engineering and Design, Lunds universitet, Lunds Tekniska Högskola, Institutioner vid LTH, Institutionen för designvetenskaper, Ergonomi och aerosolteknologi, Certec - Rehabiliteringsteknik och Design, Originator<br />Lund University, Faculty of Law, Law and Vulnerabilities, Lunds universitet, Juridiska fakulteten, Rätt och utsatthet, Originator<br />Lund University, Faculty of Law, Norma Research Programme, Lunds universitet, Juridiska fakulteten, Norma Research Programme, Originator<br />Lund University, Faculty of Law, Health Law, Lunds universitet, Juridiska fakulteten, Health Law, Originator<br />Lund University, Faculty of Law, Public Law, Lunds universitet, Juridiska fakulteten, Offentlig rätt, Originator<br />Lund University, Faculty of Law, Department of Law, Lunds universitet, Juridiska fakulteten, Juridiska institutionen, Originator
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  Data: Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life. Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns. Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”. Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered. Implications for rehabilitation Apps can be used for self-management if they are safe and can be trusted. People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals. The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches. Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.
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