Perception of People Diagnosed With Fibromyalgia About Information and Communication Technologies for Chronic Pain Management: Cross-Sectional Survey Study
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| Title: | Perception of People Diagnosed With Fibromyalgia About Information and Communication Technologies for Chronic Pain Management: Cross-Sectional Survey Study |
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| Authors: | Porta, Xenia, Nieto, Rubén, Bourdin Kreitz, Pierre, Serrat, Mayte |
| Contributors: | Institut Català de la Salut, Porta X, Nieto R eHealthLab, Faculty of Psychology and Education, Universitat Oberta de Catalunya, Barcelona, Spain. Serrat M Unitat d’Expertesa en Síndromes de Sensibilització Central, Servei de Reumatologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Escola Universitària de Fisioteràpia, Escoles Universitàries Gimbernat, Universitat Autònoma de Barcelona, Barcelona, Spain. Bourdin Kreitz P Computer Sciences, Multimedia and Telecommunication Department, Universitat Oberta de Catalunya, Barcelona, Spain. XR-Lab, Research Hub, Universitat Oberta de Catalunya, Barcelona, Spain, Vall d'Hebron Barcelona Hospital Campus |
| Source: | Scientia |
| Publisher Information: | JMIR Publications |
| Publication Year: | 2024 |
| Subject Terms: | Enquestes, Fibromiàlgia - Tractament, Dolor crònic, Tecnologia de la informació, ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires, DISEASES::Musculoskeletal Diseases::Muscular Diseases::Fibromyalgia, Other subheadings::Other subheadings::Other subheadings::/drug therapy, INFORMATION SCIENCE::Information Science::Information Technology, DISEASES::Pathological Conditions, Signs and Symptoms::Signs and Symptoms::Neurologic Manifestations::Pain::Chronic Pain, TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios, ENFERMEDADES::enfermedades musculoesqueléticas::enfermedades musculares::fibromialgia, Otros calificadores::Otros calificadores::Otros calificadores::/farmacoterapia, CIENCIA DE LA INFORMACIÓN::Ciencias de la información::tecnología de la información, ENFERMEDADES::afecciones patológicas, signos y síntomas::signos y síntomas::manifestaciones neurológicas::dolor::dolor crónico |
| Description: | Chronic pain; Fibromyalgia; Pain management ; Dolor crònic; Fibromiàlgia; Gestió del dolor ; Dolor crónico; Fibromialgia; Gestión del dolor ; Background: Chronic pain is prevalent in our society, with conditions such as fibromyalgia being notably widespread. The gold standard for aiding individuals dealing with chronic pain involves interdisciplinary approaches rooted in a biopsychosocial perspective. Regrettably, access to such care is difficult for most of the people in need. Information and communication technologies (ICTs) have been used as a way of overcoming access barriers (among other advantages). Objective: This study addressed the little explored area of how individuals with fibromyalgia use and perceive different types of ICTs for pain management. Methods: A cross-sectional study was conducted using an online survey. This survey was created to assess the use of different ICT tools for pain management, satisfaction with the tools used, and perceived advantages and disadvantages. In addition, data collection encompassed sociodemographic variables and pain-related variables, pain intensity, the impact of pain on daily life activities, and fear of movement/injury beliefs. In total, 265 individuals diagnosed with fibromyalgia completed the survey. Results: Only 2 (0.75%) participants reported not having used any ICT tool for pain management. Among those who used ICT tools, an average of 10.94 (SD 4.48) of 14 different tools were used, with the most used options being instant messaging apps, websites dedicated to managing fibromyalgia, phone calls with health professionals, and online multimedia resources. Satisfaction rates were relatively modest (mean 2.09, SD 0.38) on a scale from 0 to 5, with instant messaging apps, phone calls with health professionals, fibromyalgia management websites, and online multimedia resources being the ones with higher satisfaction. Participants appreciated the ability to receive treatment from home, access to specialized treatment, and using ICTs as a supplement to in-person ... |
| Document Type: | article in journal/newspaper |
| File Description: | application/pdf |
| Language: | English |
| Relation: | JMIR Formative Research;8; https://doi.org/10.2196/55751; https://hdl.handle.net/11351/11619 |
| DOI: | 10.2196/55751 |
| Availability: | https://hdl.handle.net/11351/11619 https://doi.org/10.2196/55751 |
| Rights: | Attribution 4.0 International ; http://creativecommons.org/licenses/by/4.0/ ; info:eu-repo/semantics/openAccess |
| Accession Number: | edsbas.5126456B |
| Database: | BASE |
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