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The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation

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Title: The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation
Authors: Girgis, Afaf, Lambert, Sylvie, Lecathelinais, Christophe
Contributors: The University of Newcastle. Faculty of Health, School of Medicine and Public Health
Source: Psycho-Oncology. 20:387-393
Publisher Information: Wiley, 2011.
Publication Year: 2011
Subject Terms: psychometrics, Adult, Male, caregivers, validity, Adolescent, Psychometrics, Psycho-oncology, Validity, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Cancer supportive care needs, needs assessment, cancer supportive care needs, Neoplasms, Surveys and Questionnaires, Humans, Survivors, Aged, Aged, 80 and over, Australia, Reproducibility of Results, Social Support, Middle Aged, psycho oncology, 3. Good health, Needs assessment, Caregivers, Quality of Life, Female, Factor Analysis, Statistical, Needs Assessment
Description: Objective: Begin to test the psychometric properties of a measure designed to capture the multi‐dimensional supportive care needs of cancer caregivers: the Supportive Care Needs Survey—Partners and Caregivers (SCNS‐P&C).Methods: Draft SCNS‐P&C items were developed with reference to the literature and existing instruments and reviewed for face and content validity. The final SCNS‐P&C was then completed by 547 cancer caregivers. Psychometric analyses conducted included principal factor analysis, internal consistency, and construct validity through the known‐group approach.Results: Factor analysis revealed four domains of needs: Health Care Service Needs, Psychological and Emotional Needs, Work and Social Needs, and Information Needs, with Cronbach's α coefficients ranging from 0.88 to 0.94. Construct validity of the SCNS‐P&C was partially supported. Across all domains, individuals with anxiety or depression were more likely to report at least one unmet moderate or high need in comparison to non‐anxious or non‐depressed participants. A greater proportion of younger participants experienced at least one unmet moderate or high need within the Psychological and Emotional Needs and Work and Social Needs domains. Proportion of reported unmet needs varied across cancer types for the Health Care Service Needs and Information Needs domains.Conclusions: The SCNS‐P&C has the potential to comprehensively assess the range of caregivers' supportive care needs, across the illness trajectory. Analyses supported the tool's internal consistency and construct validity. The SCNS‐P&C can be used by researchers and clinicians to determine caregivers' unmet needs, prioritise health‐care resources, and tailor supportive cancer care services accordingly. Copyright © 2010 John Wiley & Sons, Ltd.
Document Type: Article
Language: English
ISSN: 1099-1611
1057-9249
DOI: 10.1002/pon.1740
Access URL: https://pubmed.ncbi.nlm.nih.gov/20878835
https://onlinelibrary.wiley.com/doi/10.1002/pon.1740
https://europepmc.org/abstract/MED/20878835
http://www.ncbi.nlm.nih.gov/pubmed/20878835
http://onlinelibrary.wiley.com/doi/10.1002/pon.1740/full
https://pubmed.ncbi.nlm.nih.gov/20878835/
https://onlinelibrary.wiley.com/doi/10.1002/pon.1740/full
Rights: Wiley Online Library User Agreement
Accession Number: edsair.doi.dedup.....33a78aa973c00cdfc5e7736b6a20b00b
Database: OpenAIRE
Description
Abstract:Objective: Begin to test the psychometric properties of a measure designed to capture the multi‐dimensional supportive care needs of cancer caregivers: the Supportive Care Needs Survey—Partners and Caregivers (SCNS‐P&C).Methods: Draft SCNS‐P&C items were developed with reference to the literature and existing instruments and reviewed for face and content validity. The final SCNS‐P&C was then completed by 547 cancer caregivers. Psychometric analyses conducted included principal factor analysis, internal consistency, and construct validity through the known‐group approach.Results: Factor analysis revealed four domains of needs: Health Care Service Needs, Psychological and Emotional Needs, Work and Social Needs, and Information Needs, with Cronbach's α coefficients ranging from 0.88 to 0.94. Construct validity of the SCNS‐P&C was partially supported. Across all domains, individuals with anxiety or depression were more likely to report at least one unmet moderate or high need in comparison to non‐anxious or non‐depressed participants. A greater proportion of younger participants experienced at least one unmet moderate or high need within the Psychological and Emotional Needs and Work and Social Needs domains. Proportion of reported unmet needs varied across cancer types for the Health Care Service Needs and Information Needs domains.Conclusions: The SCNS‐P&C has the potential to comprehensively assess the range of caregivers' supportive care needs, across the illness trajectory. Analyses supported the tool's internal consistency and construct validity. The SCNS‐P&C can be used by researchers and clinicians to determine caregivers' unmet needs, prioritise health‐care resources, and tailor supportive cancer care services accordingly. Copyright © 2010 John Wiley & Sons, Ltd.
ISSN:10991611
10579249
DOI:10.1002/pon.1740