Paving the way for Brazil's first national rare diseases registry: the RARAS data governance model.
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| Title: | Paving the way for Brazil's first national rare diseases registry: the RARAS data governance model. |
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| Authors: | Andrade Bernardi, Filipe, Costa Lima, Vinícius, Alonso, Mateus, Mello de Oliveira, Bibiana, Lorea, Claudia Fernandes, Moraes, José Carlos, Cassão, Victor, Soares, Giovane, Baiochi, João, Vinci, André, de Souza, Mariane, Araújo, Yasmin, Bettiol Yamada, Diego, Lourenço Annelli, Guilherme, de Faria Ferraz, Victor Evangelista, Rijo, Rui, Maria Félix, Têmis, Alves, Domingos |
| Source: | BMC Digital Health; 10/1/2025, Vol. 3 Issue 1, p1-16, 16p |
| Database: | Biomedical Index |
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