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Assessment of the "MND-Prism" smartphone application as a tool for self-management.

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Název: Assessment of the "MND-Prism" smartphone application as a tool for self-management.
Autoři: Neville, Sally1 (AUTHOR) s.neville@uq.edu.au, Ziser, Laura2 (AUTHOR), Henders, Anjali2 (AUTHOR), Milne, Jane3 (AUTHOR), Ngo, Shyuan T.4,5 (AUTHOR), Packer, Rebecca6 (AUTHOR), Steyn, Frederik J.1,5 (AUTHOR) f.steyn@uq.edu.au
Zdroj: Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration. Nov2025, Vol. 26 Issue 7/8, p673-682. 10p.
Témata: *MOBILE apps, *SELF-management (Psychology), *AMYOTROPHIC lateral sclerosis, *EVALUATION research, *SERVICES for caregivers, *INTEGRATED health care delivery, *USER experience, *DIGITAL technology
Abstrakt: Background: Motor Neurone Disease (MND) is a progressive neurodegenerative disease requiring complex, multidisciplinary care. Digital tools, including smartphone applications, offer innovative solutions to streamline self-management and care coordination for patients and caregivers. Here we evaluate the usability and value of the MND-Prism smartphone application as a tool for addressing the self-management and organizational needs of people living with MND (plwMND). Methods: A mixed-methods approach was used to assess MND-Prism within an Australian cohort (n = 31) of plwMND, and their informal and professional carers. Quantitative data included deidentified usage statistics and Mobile Application Rating Scale (uMARS) survey results. Semi-structured interviews (n = 11) provided qualitative insights into user experiences and perspectives. Results: Usage data highlighted varying engagement with MND-Prism functions. uMARS evaluations show above-average satisfaction across engagement, functionality, information, and esthetics, though customization and accessibility scored lower. Five themes were generated from semi-structured interviews with MND-Prism users: Purpose and value, functionality, future needs and monitoring progression, access, and information. Conclusion: MND-Prism shows potential as a self-management tool for MND, addressing critical organizational challenges in care. Participants identified both positive aspects and areas for improvement, particularly in accessibility, customization, and carer integration. These findings provide a foundation for further development and evaluation, ensuring that applications like MND-Prism are responsive to the diverse and evolving needs of the MND community. Future research should validate these findings in larger, more diverse populations and assess the long-term role of digital tools in care coordination and support. [ABSTRACT FROM AUTHOR]
Databáze: Academic Search Index
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Abstrakt:Background: Motor Neurone Disease (MND) is a progressive neurodegenerative disease requiring complex, multidisciplinary care. Digital tools, including smartphone applications, offer innovative solutions to streamline self-management and care coordination for patients and caregivers. Here we evaluate the usability and value of the MND-Prism smartphone application as a tool for addressing the self-management and organizational needs of people living with MND (plwMND). Methods: A mixed-methods approach was used to assess MND-Prism within an Australian cohort (n = 31) of plwMND, and their informal and professional carers. Quantitative data included deidentified usage statistics and Mobile Application Rating Scale (uMARS) survey results. Semi-structured interviews (n = 11) provided qualitative insights into user experiences and perspectives. Results: Usage data highlighted varying engagement with MND-Prism functions. uMARS evaluations show above-average satisfaction across engagement, functionality, information, and esthetics, though customization and accessibility scored lower. Five themes were generated from semi-structured interviews with MND-Prism users: Purpose and value, functionality, future needs and monitoring progression, access, and information. Conclusion: MND-Prism shows potential as a self-management tool for MND, addressing critical organizational challenges in care. Participants identified both positive aspects and areas for improvement, particularly in accessibility, customization, and carer integration. These findings provide a foundation for further development and evaluation, ensuring that applications like MND-Prism are responsive to the diverse and evolving needs of the MND community. Future research should validate these findings in larger, more diverse populations and assess the long-term role of digital tools in care coordination and support. [ABSTRACT FROM AUTHOR]
ISSN:21678421
DOI:10.1080/21678421.2025.2511119