Search Results - "registries"

Improving the reporting and use of trial results in clinical trials registries: global practices, barriers, and recommendations.

Authors: Kaul T Damen JA Seidler AL et al.

Source: Journal of clinical epidemiology [J Clin Epidemiol] 2025 Oct; Vol. 186, pp. 111901. Date of Electronic Publication: 2025 Jul 14.

Publication Type: Journal Article

Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 8801383 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1878-5921 (Electronic) Linking ISSN: 08954356 NLM ISO Abbreviation: J Clin Epidemiol Subsets: MEDLINE

MeSH Terms: Registries*/standards , Registries*/statistics & numerical data , Randomized Controlled Trials as Topic*/standards , Randomized Controlled Trials as Topic*/statistics & numerical data , Clinical Trials as Topic*, Humans ; Research Design/standards

Developing a minimum dataset for a national patient registry on Long COVID in Canada: a Delphi consensus-based study.

Authors: Mazurik K Amah A Dumitrescu DI et al.

Corporate Authors: Mazurik K Amah A Dumitrescu DI et al.

Source: BMJ open [BMJ Open] 2025 Dec 03; Vol. 15 (12), pp. e111474. Date of Electronic Publication: 2025 Dec 03.

Publication Type: Journal Article

Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

MeSH Terms: Registries* , COVID-19*/epidemiology , COVID-19*/complications , Datasets as Topic*, Humans ; Canada/epidemiology ; Delphi Technique ; Consensus ; Quality of Life ; SARS-CoV-2 ; Surveys and Questionnaires ; Post-Acute COVID-19 Syndrome

Barriers and facilitators of trauma registries in low- and middle-income countries: A scoping review.

Authors: Cote MP Alty IG Hamzah R et al.

Source: The journal of trauma and acute care surgery [J Trauma Acute Care Surg] 2025 Dec 01; Vol. 99 (6), pp. 975-989. Date of Electronic Publication: 2025 Nov 19.

Publication Type: Journal Article; Scoping Review

Journal Info: Publisher: Lippincott, Williams & Wilkins Country of Publication: United States NLM ID: 101570622 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2163-0763 (Electronic) Linking ISSN: 21630755 NLM ISO Abbreviation: J Trauma Acute Care Surg Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Developing Countries* , Wounds and Injuries*/epidemiology , Wounds and Injuries*/therapy, Humans ; Quality Improvement

Policy recommendations for implementing registries to minimize over-volunteering in Phase I clinical trials.

Authors: Abadie R Fisher JA Mwale S et al.

Source: Clinical trials (London, England) [Clin Trials] 2025 Dec; Vol. 22 (6), pp. 757-760. Date of Electronic Publication: 2025 Jul 29.

Publication Type: Journal Article

Journal Info: Publisher: SAGE Publications Country of Publication: England NLM ID: 101197451 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1740-7753 (Electronic) Linking ISSN: 17407745 NLM ISO Abbreviation: Clin Trials Subsets: MEDLINE

MeSH Terms: Registries*/standards , Clinical Trials, Phase I as Topic*/methods , Clinical Trials, Phase I as Topic*/standards , Healthy Volunteers*, Humans

Human papillomavirus (HPV) vaccine clinical trials: A cross-sectional analysis of clinical trials registries.

Authors: Mavundza EJ Mmotsa TM Ndwandwe D

Source: Human vaccines & immunotherapeutics [Hum Vaccin Immunother] 2025 Dec; Vol. 21 (1), pp. 2478702. Date of Electronic Publication: 2025 Mar 18.

Publication Type: Journal Article

Journal Info: Publisher: Taylor & Francis Country of Publication: United States NLM ID: 101572652 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2164-554X (Electronic) Linking ISSN: 21645515 NLM ISO Abbreviation: Hum Vaccin Immunother Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Papillomavirus Vaccines*/administration & dosage , Clinical Trials as Topic*/statistics & numerical data , Papillomavirus Infections*/prevention & control, Humans ; Cross-Sectional Studies ; Female ; Male ; Human Papillomavirus Viruses

Use of population-based cancer registries for cancer surveillance and control in Latin America.

Authors: Peña-Torres E de Vries E de Camargo Cancela M et al.

Source: Cancer epidemiology [Cancer Epidemiol] 2025 Dec; Vol. 99, pp. 102914. Date of Electronic Publication: 2025 Sep 10.

Publication Type: Journal Article

Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101508793 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1877-783X (Electronic) Linking ISSN: 18777821 NLM ISO Abbreviation: Cancer Epidemiol Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Neoplasms*/epidemiology , Neoplasms*/prevention & control , Population Surveillance*/methods, Humans ; Latin America/epidemiology ; Cross-Sectional Studies ; Female ; Male ; Surveys and Questionnaires

Unveiling regional differences in glioblastoma patient survival with real-world data from the Norwegian brain tumor quality registry.

Authors: Trewin-Nybråten CB Lambert PC Marienhagen K et al.

Corporate Authors: Trewin-Nybråten CB Lambert PC Marienhagen K et al.

Source: Journal of neuro-oncology [J Neurooncol] 2025 Dec; Vol. 175 (3), pp. 1355-1366. Date of Electronic Publication: 2025 Sep 11.

Publication Type: Journal Article

Journal Info: Publisher: Springer Country of Publication: United States NLM ID: 8309335 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-7373 (Electronic) Linking ISSN: 0167594X NLM ISO Abbreviation: J Neurooncol Subsets: MEDLINE

MeSH Terms: Glioblastoma*/mortality , Glioblastoma*/therapy , Glioblastoma*/pathology , Registries*/statistics & numerical data , Brain Neoplasms*/mortality , Brain Neoplasms*/therapy , Brain Neoplasms*/pathology, Humans ; Norway/epidemiology ; Female ; Male ; Aged ; Middle Aged ; Adult ; Young Adult ; Aged, 80 and over ; Adolescent ; Survival Rate ; Follow-Up Studies ; Temozolomide/therapeutic use

Establishing a national pediatric stem cell transplantation registry in Iran addressing implementation and data quality challenges.

Authors: Shamsian BS Momtazmanesh N Zeinali V et al.

Source: Scientific reports [Sci Rep] 2025 Nov 27; Vol. 15 (1), pp. 42463. Date of Electronic Publication: 2025 Nov 27.

Publication Type: Journal Article

Journal Info: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 101563288 Publication Model: Electronic Cited Medium: Internet ISSN: 2045-2322 (Electronic) Linking ISSN: 20452322 NLM ISO Abbreviation: Sci Rep Subsets: MEDLINE

MeSH Terms: Registries* , Hematopoietic Stem Cell Transplantation*/statistics & numerical data , Data Accuracy*, Humans ; Iran ; Male ; Female ; Child ; Adolescent ; Child, Preschool ; Infant

Weighing the impact of evidence in orthopaedic trauma registries: a systematic review of national and international registry data.

Authors: George AJ Ashwood N Dekker AP et al.

Source: BMJ open [BMJ Open] 2025 Nov 24; Vol. 15 (11), pp. e106759. Date of Electronic Publication: 2025 Nov 24.

Publication Type: Journal Article; Systematic Review

Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

MeSH Terms: Registries*/standards , Wounds and Injuries*/therapy , Wounds and Injuries*/mortality , Orthopedics*, Humans

Digitalisation of the guideline registry of the Association of Scientific Medical Societies in Germany for an open, guideline-based, trustworthy evidence ecosystem (Dissolve-E): a protocol of a before-after study with different user groups.

Authors: Nothacker M Stegbauer C Burckhardt M et al.

Corporate Authors: Nothacker M Stegbauer C Burckhardt M et al.

Source: BMJ open [BMJ Open] 2025 Nov 04; Vol. 15 (11), pp. e095294. Date of Electronic Publication: 2025 Nov 04.

Publication Type: Journal Article

Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

MeSH Terms: Registries* , Practice Guidelines as Topic*, Germany ; Humans ; Prospective Studies ; Research Design ; Societies, Medical

The real-world efficacy of Cladribine tablets and treatment persistence in people with highly active relapsing multiple sclerosis in Finland - A follow-up study after four years of observation.

Authors: Rauma I Viitala M Soilu-Hänninen M et al.

Source: Multiple sclerosis and related disorders [Mult Scler Relat Disord] 2025 Nov; Vol. 103, pp. 106724. Date of Electronic Publication: 2025 Sep 04.

Publication Type: Journal Article; Observational Study

Journal Info: Publisher: Elsevier B. V Country of Publication: Netherlands NLM ID: 101580247 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2211-0356 (Electronic) Linking ISSN: 22110348 NLM ISO Abbreviation: Mult Scler Relat Disord Subsets: MEDLINE

MeSH Terms: Cladribine*/administration & dosage , Cladribine*/adverse effects , Cladribine*/therapeutic use , Cladribine*/pharmacology , Multiple Sclerosis, Relapsing-Remitting*/drug therapy , Immunosuppressive Agents*/administration & dosage , Immunosuppressive Agents*/adverse effects , Immunosuppressive Agents*/therapeutic use , Immunosuppressive Agents*/pharmacology , Registries*, Humans ; Finland ; Female ; Male ; Adult ; Follow-Up Studies ; Middle Aged ; Tablets ; Disease Progression

Comparison of Cancer Registry Data Between Sweden and China and the Impact on Real-World Health Research.

Authors: Zhang Y Wang X Zhou Y et al.

Source: Value in health regional issues [Value Health Reg Issues] 2025 Nov; Vol. 50, pp. 101163. Date of Electronic Publication: 2025 Aug 05.

Publication Type: Journal Article; Comparative Study

Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 101592642 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2212-1102 (Electronic) Linking ISSN: 22121099 NLM ISO Abbreviation: Value Health Reg Issues Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Registries*/standards , Neoplasms*/epidemiology, Humans ; Sweden/epidemiology ; China/epidemiology

Identifying forensic psychiatric populations in national health registers: a Danish validation study.

Authors: Jentz C Kennedy HG Sandbæk A et al.

Source: Nordic journal of psychiatry [Nord J Psychiatry] 2025 Nov; Vol. 79 (8), pp. 606-614. Date of Electronic Publication: 2025 Sep 30.

Publication Type: Journal Article; Validation Study

Journal Info: Publisher: Informa Healthcare Country of Publication: England NLM ID: 100927567 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1502-4725 (Electronic) Linking ISSN: 08039488 NLM ISO Abbreviation: Nord J Psychiatry Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Registries*/standards , Mental Disorders*/epidemiology , Mental Disorders*/diagnosis , Forensic Psychiatry*/statistics & numerical data , Forensic Psychiatry*/methods, Humans ; Denmark/epidemiology ; Adult ; Male ; Female ; Middle Aged ; Young Adult ; Adolescent ; Sensitivity and Specificity ; Aged

Calmodulinopathies: the need for a registry.

Authors: Schwartz PJ Crotti L

Source: Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology [Europace] 2025 Oct 31; Vol. 27 (11).

Publication Type: Journal Article; Review

Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 100883649 Publication Model: Print Cited Medium: Internet ISSN: 1532-2092 (Electronic) Linking ISSN: 10995129 NLM ISO Abbreviation: Europace Subsets: MEDLINE

MeSH Terms: Registries* , Calmodulin*/genetics , Death, Sudden, Cardiac*/etiology , Death, Sudden, Cardiac*/prevention & control , Death, Sudden, Cardiac*/epidemiology , Long QT Syndrome*/genetics , Long QT Syndrome*/therapy , Long QT Syndrome*/diagnosis , Long QT Syndrome*/mortality , Tachycardia, Ventricular*/genetics , Tachycardia, Ventricular*/therapy , Tachycardia, Ventricular*/mortality , Tachycardia, Ventricular*/diagnosis , Ventricular Fibrillation*/genetics , Ventricular Fibrillation*/therapy , Ventricular Fibrillation*/mortality , Ventricular Fibrillation*/diagnosis, Humans ; Genetic Predisposition to Disease ; Risk Factors ; Phenotype ; Polymorphic Catecholaminergic Ventricular Tachycardia ; Risk Assessment

Landscape analysis of pregnancy exposure registries in low- and middle-income countries: a scoping review.

Authors: Bhat N Knudson S AbuShweimeh R et al.

Source: BMJ open [BMJ Open] 2025 Oct 29; Vol. 15 (10), pp. e097198. Date of Electronic Publication: 2025 Oct 29.

Publication Type: Journal Article; Scoping Review

Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

MeSH Terms: Developing Countries* , Registries*, Humans ; Female ; Pregnancy ; Pregnancy Outcome ; Vaccines/adverse effects

Routine data registries as a basis to analyse and improve the quality of antimicrobial prescription in primary care.

Authors: Sijbom M Boelens M de Boer MGJ et al.

Source: BMC primary care [BMC Prim Care] 2025 Oct 17; Vol. 26 (1), pp. 318. Date of Electronic Publication: 2025 Oct 17.

Publication Type: Journal Article

Journal Info: Publisher: BioMed Central Ltd Country of Publication: England NLM ID: 9918300889006676 Publication Model: Electronic Cited Medium: Internet ISSN: 2731-4553 (Electronic) Linking ISSN: 27314553 NLM ISO Abbreviation: BMC Prim Care Subsets: MEDLINE

MeSH Terms: Primary Health Care*/statistics & numerical data , Primary Health Care*/standards , Registries* , Inappropriate Prescribing*/statistics & numerical data , Practice Patterns, Physicians'*/statistics & numerical data , Anti-Bacterial Agents*/therapeutic use , Drug Prescriptions*/statistics & numerical data , Drug Prescriptions*/standards, Humans ; Female ; Male ; Middle Aged ; Netherlands ; Aged ; Adult ; Respiratory Tract Infections/drug therapy ; Guideline Adherence/statistics & numerical data ; Adolescent ; Young Adult ; Child, Preschool ; Infant

Patients With Osteoporotic Vertebral Fractures in Denmark 2010-2018: A National Registry Analysis.

Authors: Andersen MØ Andresen AK Frølich JS et al.

Source: Spine [Spine (Phila Pa 1976)] 2025 Oct 15; Vol. 50 (20), pp. 1386-1391. Date of Electronic Publication: 2024 Nov 21.

Publication Type: Journal Article

Journal Info: Publisher: Lippincott Williams & Wilkins Country of Publication: United States NLM ID: 7610646 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1528-1159 (Electronic) Linking ISSN: 03622436 NLM ISO Abbreviation: Spine (Phila Pa 1976) Subsets: MEDLINE

MeSH Terms: Registries* , Spinal Fractures*/epidemiology , Osteoporotic Fractures*/epidemiology, Humans ; Denmark/epidemiology ; Female ; Male ; Aged ; Middle Aged ; Aged, 80 and over ; Incidence ; Cohort Studies ; Comorbidity

Future of population-based cancer registries: A global perspective-A survey of population-based cancer registries.

Authors: Van Eycken LJ Giannopoulos E Tittenbrun Z et al.

Source: International journal of cancer [Int J Cancer] 2025 Oct 15; Vol. 157 (8), pp. 1566-1576. Date of Electronic Publication: 2025 Jun 09.

Publication Type: Journal Article

Journal Info: Publisher: Wiley-Liss Country of Publication: United States NLM ID: 0042124 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1097-0215 (Electronic) Linking ISSN: 00207136 NLM ISO Abbreviation: Int J Cancer Subsets: MEDLINE

MeSH Terms: Registries*/statistics & numerical data , Neoplasms*/epidemiology, Humans ; Incidence ; Surveys and Questionnaires ; Global Health

DIABASE: an automatically filled single-centre registry of diabetes mellitus in the Netherlands, combining clinical data with real-world longitudinal wearable device data-a study protocol.

Authors: Urgert T Kappert KDR Veldhuis A et al.

Source: BMJ open [BMJ Open] 2025 Oct 13; Vol. 15 (10), pp. e096888. Date of Electronic Publication: 2025 Oct 13.

Publication Type: Journal Article; Observational Study

Journal Info: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

MeSH Terms: Registries* , Wearable Electronic Devices* , Blood Glucose Self-Monitoring*/instrumentation , Diabetes Mellitus*/therapy, Humans ; Netherlands/epidemiology ; Insulin Infusion Systems ; Observational Studies as Topic ; Longitudinal Studies ; Blood Glucose/analysis

Delirium and cognitive assessment in national hip fracture registries: a scoping review.

Authors: Merriman NA Penfold RS Walsh ME et al.

Corporate Authors: Merriman NA Penfold RS Walsh ME et al.

Source: European geriatric medicine [Eur Geriatr Med] 2025 Oct; Vol. 16 (5), pp. 1679-1701. Date of Electronic Publication: 2025 Jun 06.

Publication Type: Journal Article; Scoping Review

Journal Info: Publisher: Springer International Publishing Country of Publication: Switzerland NLM ID: 101533694 Publication Model: Print-Electronic Cited Medium: Print ISSN: 1878-7649 (Print) Linking ISSN: 18787649 NLM ISO Abbreviation: Eur Geriatr Med Subsets: MEDLINE

MeSH Terms: Cognitive Dysfunction*/diagnosis , Cognitive Dysfunction*/epidemiology , Cognitive Dysfunction*/etiology , Delirium*/diagnosis , Delirium*/epidemiology , Delirium*/etiology , Hip Fractures*/complications , Hip Fractures*/epidemiology , Hip Fractures*/psychology , Hip Fractures*/surgery , Registries*/statistics & numerical data, Aged ; Humans