Search Results - "Informational needs"

Meeting the informational needs of people with advanced breast cancer: a global expert review and call-to-action for 2025–2035 (Goal 6)

Authors: Anna Cabanes Jenny Gilchrist Marzia Zambon et al.

Source: Breast, Vol 84, Iss , Pp 104611- (2025)

Subject Terms: Advanced breast cancer, Informational needs, Education, Disparities, Digital literacy, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S0960977625006289; https://doaj.org/toc/1532-3080

Access URL: https://doaj.org/article/6218ddb7ad6844edb69d5e679f6b63d9

Information needs and barriers to patient-centered care in oncology: EtnobreastHER2, an ethnographic study with HER2+ MBC patients and their healthcare providers

Authors: José Ángel García-Sáenz Álvaro Rodríguez-Lescure Silvia Antolin et al.

Source: Frontiers in Medicine, Vol 12 (2025)

Subject Terms: human epidermal growth factor receptor 2 metastatic breast cancer, oncology, patient-centered care, informational needs, doctor-patient communication, structural barriers, Medicine (General), R5-920

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fmed.2025.1592380/full; https://doaj.org/toc/2296-858X

Access URL: https://doaj.org/article/c27df01ca2dd4c759ac101ed147ca891

Caregivers and multidisciplinary team members’ perspectives on shared decision making in Duchenne muscular dystrophy: A qualitative study

Authors: Elise Schoefs Thomas Desmet Evelyn Lerinckx et al.

Source: Orphanet Journal of Rare Diseases, Vol 20, Iss 1, Pp 1-13 (2025)

Subject Terms: Duchenne muscular dystrophy, Interprofessional model of shared decision making, Patient decision aids, Informational needs, Multidisciplinary team, Patient engagement, Medicine

File Description: electronic resource

Relation: https://doaj.org/toc/1750-1172

Access URL: https://doaj.org/article/d35a8219b8414044add3d9aece35e1eb

Patients’ and plastic surgeons’ experiences with an online patient decision aid for breast reconstruction: considerations for nationwide implementation

Authors: Jacqueline A. ter Stege Ellen G. Engelhardt Leonie A.E. Woerdeman et al.

Source: BMC Medical Informatics and Decision Making, Vol 25, Iss 1, Pp 1-11 (2025)

Subject Terms: Breast neoplasms, Breast reconstruction, Patient decision aid, Informational needs, Process evaluation, Implementation, Computer applications to medicine. Medical informatics, R858-859.7

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6947

Access URL: https://doaj.org/article/5857016e50a540b88eb2362fa1eda291

Do patients with HER2+ MBC and their HCPs speak the same language? Perceptions and uses of chronic disease and metastatic treatment arising from the EtnobreastHER2 study

Authors: Joaquín Gavilá Álvaro Rodríguez-Lescure Silvia Antolín et al.

Source: PATIENT EDUCATION AND COUNSELING
r-FISABIO. Repositorio Institucional de Producción Científica
Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)

Subject Terms: metastatic breast cancer (HER2+MBC), Human epidermal growth factor receptor 2, Doctor-patient communication, Oncology, Informational needs, Chronic disease

Access URL: https://fisabio.portalinvestigacion.com/publicaciones/19289

Developing the Short‐Form of Lymphedema Needs Questionnaire for Iranian Breast Cancer Patients

Authors: Mozhgan Kazemzadeh Asiie Olfatbakhsh Sara Dorri

Source: Cancer Med
Cancer Medicine, Vol 14, Iss 7, Pp n/a-n/a (2025)

Subject Terms: Adult, exploratory factor analysis (EFA), Psychometrics, Breast Cancer Lymphedema, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, Reproducibility of Results, Breast Neoplasms, informational needs, Middle Aged, Iran, lymphedema management, breast cancer, needs assessment, breast cancer‐related lymphedema (BCRL), Surveys and Questionnaires, Quality of Life, Humans, Female, Lymphedema, Factor Analysis, Statistical, RC254-282, Research Article, Aged

Access URL: https://pubmed.ncbi.nlm.nih.gov/40152083
https://doaj.org/article/19a76080ac2347d8b8f983a4a54fc0c8

Informational support and information-seeking during transition to parenthood: Baby Buddy Forward’s focus groups with pregnant women and new mothers in Cyprus

Authors: Koliandri, Ioanna Hadjigeorgiou, Eleni Karanikola, Maria et al.

Source: Eur J Midwifery

Subject Terms: mothers, 5. Gender equality, Health Sciences, informational needs, 16. Peace & justice, information seeking, Medical and Health Sciences, decision making, pregnant women, 3. Good health, Research Paper

File Description: pdf

Access URL: https://pubmed.ncbi.nlm.nih.gov/37920451
https://hdl.handle.net/20.500.14279/31868
https://api.elsevier.com/content/abstract/scopus_id/85178296864

Between Openness and Silence: Public Librarians’ Perspectives on Serving LGBTQ+ Youth in Poland

Authors: Wiorogórska, Zuzanna Sendor, Zuzanna

Subject Terms: censorship, collection development, informational needs, LGBTQ+ youth, Polish public libraries

File Description: PDF; application/pdf

Relation: https://repozytorium.uw.edu.pl//handle/item/166266; Wiorogórska, Z., & Sendor, Z. (2025). Between Openness and Silence: Public Librarians’ Perspectives on Serving LGBTQ+ Youth in Poland. Public Library Quarterly, 1–33. https://doi.org/10.1080/01616846.2025.2477428

Availability: https://repozytorium.uw.edu.pl//handle/item/166266
https://doi.org/10.1080/01616846.2025.2477428

Patients’ and plastic surgeons’ experiences with an online patient decision aid for breast reconstruction: considerations for nationwide implementation

Authors: Stege, Jacqueline A.ter Engelhardt, Ellen G. Woerdeman, Leonie A.E. et al.

Contributors: Stege, Jacqueline A.ter Engelhardt, Ellen G. Woerdeman, Leonie A.E. et al.

Subject Terms: Breast neoplasms, Breast reconstruction, eHealth, Implementation, Informational needs, Patient decision aid, Process evaluation, Shared decision making, Health Policy, Health Informatics, Computer Science Applications

File Description: application/pdf

Relation: https://dspace.library.uu.nl/handle/1874/460728

Availability: https://dspace.library.uu.nl/handle/1874/460728

Designing the Essential Informational Needs of a Smartphone Application for Self‐Management of Patients With Inflammatory Bowel Disease

Authors: Farkhondeh Asadi Azamossadat Hosseini Amir Hossein Daeechini

Source: Health Sci Rep
Health Science Reports, Vol 7, Iss 11, Pp n/a-n/a (2024)

Subject Terms: 0301 basic medicine, 03 medical and health sciences, 0302 clinical medicine, inflammatory bowel disease, needs assessment, self‐management, Medicine, informational needs, mobile application, Original Research

Access URL: https://pubmed.ncbi.nlm.nih.gov/39558932
https://doaj.org/article/83fb406fd252472ca753d00c620f457b

Exploring the lived experiences of individuals with Parkinson’s disease and their relatives: insights into care provision experiences, disease management support, self-management strategies, and future needs in Germany (qualitative study)

Authors: Krieger, Theresia Jozwiak, Leonie Ebersbach, Georg et al.

Source: BMC Neurol
BMC Neurology, Vol 24, Iss 1, Pp 1-16 (2024)

Subject Terms: Male, Adult, Lived experience, 03 medical and health sciences, 0302 clinical medicine, Qualitative research, Germany, Self-management, Humans, Aged, 80 and over [MeSH], Aged [MeSH], Biomarkers of neurological diseases, Quality of Life/psychology [MeSH], Informational needs, Disease Management [MeSH], Germany/epidemiology [MeSH], Qualitative Research [MeSH], Male [MeSH], Health Services Needs and Demand [MeSH], Social Support [MeSH], Parkinson's disease, Female [MeSH], Parkinson Disease/psychology [MeSH], Needs Assessment [MeSH], Adult [MeSH], Management support needs, Self-Management/methods [MeSH], Humans [MeSH], Family/psychology [MeSH], Middle Aged [MeSH], Parkinson Disease/therapy [MeSH], Self-Management/psychology [MeSH], Experiences of illness, Focus Groups/methods [MeSH], Research, Relatives, Caregivers/psychology [MeSH], Family, RC346-429, Qualitative Research, Aged, Aged, 80 and over, Health Services Needs and Demand, Self-Management, Disease Management, Social Support, Parkinson Disease, Middle Aged, Focus Groups, 3. Good health, Caregivers, Quality of Life, Female, Neurology. Diseases of the nervous system, Needs Assessment

Access URL: https://pubmed.ncbi.nlm.nih.gov/38890614
https://doaj.org/article/f21733f00e8c4d89abc8c8eaaae0f510
https://repository.publisso.de/resource/frl:6518601

Patients with ANCA‐associated vasculitis' experiences of informational needs: A qualitative interview study: A qualitative interview study

Authors: Tina Thorborg Per Ivarsen Dorthe Johanne Lacroise et al.

Source: Thorborg, T, Ivarsen, P, Lacroise, D J, Päevatalu, A O, Breer, C B & Finderup, J 2022, 'Patients with ANCA-associated vasculitis' experiences of informational needs: A qualitative interview study', Journal of Renal Care, vol. 48, no. 2, pp. 84-92. https://doi.org/10.1111/jorc.12412

Subject Terms: self-management, EMPOWERMENT, COVID-19, Anti-Neutrophil Cytoplasmic Antibody-Associated Vasculitis, informational needs, RELAPSE, patient perspective, RECOMMENDATIONS, DISEASE, patient education, 3. Good health, 03 medical and health sciences, 0302 clinical medicine, Recurrence, MANAGEMENT, RISK-FACTORS, ANTINEUTROPHIL CYTOPLASMIC ANTIBODY, Humans, HEALTH, SYSTEMIC-LUPUS-ERYTHEMATOSUS, anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis, Pandemics, Qualitative Research

Access URL: https://pubmed.ncbi.nlm.nih.gov/35106920
https://portal.findresearcher.sdu.dk/da/publications/73380b93-8da4-4ddb-a43c-4f1712a2a259
https://doi.org/10.1111/jorc.12412
https://pure.au.dk/portal/en/publications/d7e1a93d-9a01-48ad-a99f-2adb08eeeada
https://doi.org/10.1111/jorc.12412

Information behavior and practices research informing information systems design

Authors: Huvila, Isto Enwald, Heidi Eriksson‐Backa, Kristina et al.

Source: Journal of the Association for Information Science and Technology

Subject Terms: Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning, Information systems development, Information behavior, 05 social sciences, Information Systems, Social aspects, 0202 electrical engineering, electronic engineering, information engineering, Informational needs, 02 engineering and technology, 0509 other social sciences, Design recommendations

File Description: application/pdf

Access URL: https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/asi.24611
https://hdl.handle.net/11250/2985069
http://urn.fi/urn:nbn:fi-fe2022082355995
http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-477820

A qualitative reflexive thematic analysis into the experiences of being identified with a BRCA1/2 gene alteration: 'So many little, little traumas could have been avoided'

Authors: Nikolett Zsuzsanna Warner AnnMarie Groarke

Source: BMC Health Services Research, Vol 22, Iss 1, Pp 1-12 (2022)

Subject Terms: BRCA, HBOC, Uncertainty, Qualitative, Thematic Analysis, Informational Needs, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/633ad76680a84c2ab07c5f650d206ead

Informational support needs of pregnant women and new mothers in Cyprus and information-seeking practices on the internet during the transition to parenthood: a mixed-methods exploratory study

Authors: Koliandri, Ioanna Middleton, Nicos

Contributors: Koliandri, Ioanna Middleton, Nicos

Subject Terms: informed decision-making, motherhood, transition to parenthood, pregnancy, informational support, internet, informational needs, information seeking

Access URL: https://hdl.handle.net/20.500.14279/34250

Améliorer la littératie en recherche chez les adolescent(e)s : une étude qualitative

Authors: Vincent, Noémiah Aurélie

Subject Terms: Chronic condition, Scoping review, Patient engagement, Research literacy capacity, Patient partnership, Revue de la portée, Adolescents, Teenagers, Condition chronique, Besoins informationnels, Patient partenariat, Informational needs, Engagement des patients, Étude qualitative, Qualitative study, Littératie en recherche

Informational behavior in the development of professional skills in the scope of library: a case study in the supervised practicum at the Zila Mamede Central Library ; O comportamento informacional no desenvolvimento das competências profissionais no âmbito da biblioteconomia: estudo de caso no estágio supervisionado da Biblioteca Central Zila Mamede

Authors: Sunaria, Sara Moreira, Luciana

Source: BiblioCanto; v. 9 n. 1 (2023); 23 - 42 ; 2447-7842 ; 10.21680/2427-7842.2023v9n1

Subject Terms: Informational behavior, Informational needs, Professional skills, Mandatory practicum, Librarianship – UFRN, Comportamento informacional, Necessidades informacionais, Competências profissionais, Estágio obrigatório, Biblioteconomia-UFRN

File Description: application/pdf

Relation: https://periodicos.ufrn.br/bibliocanto/article/view/30382/17205; https://periodicos.ufrn.br/bibliocanto/article/view/30382

Availability: https://periodicos.ufrn.br/bibliocanto/article/view/30382

Enhancing Climate Information Services for Sustainable Development Needs and Decision-Making in an Academic Community in Ghana

Authors: Abena Kyerewaa Morrison Nana Agyemang Prempeh Frederick Otu-Larbi et al.

Source: Journal of Environmental Impact and Management Policy; Vol. 3 No. 03 (2023): April-May 2023; 41-55 ; 2799-113X

Subject Terms: Climate Information, Climate Change Adaptation, Climate Services, Climate Informational Needs, University of Energy and Natural Resources

File Description: application/pdf

Relation: https://journal.hmjournals.com/index.php/JEIMP/article/view/3081/2607; https://journal.hmjournals.com/index.php/JEIMP/article/view/3081

Availability: https://journal.hmjournals.com/index.php/JEIMP/article/view/3081
https://doi.org/10.55529/jeimp.33.41.55

Necessidades informacionais de migrantes Haitianos e a competência em informação para promoção da cidadania

Authors: Silva, Victória Venancio da Alcará, Adriana Rosecler

Source: Em Questão, Volume: 31, Article number: e-147195, Published: 10 NOV 2025. November 2025

Subject Terms: competência em informação, migração Haitianos, vulnerabilidade social, necessidade informacional, vulnerabilidade em informação, information literacy, Haitian migration, social vulnerability, informational needs, informational vulnerability

File Description: text/html

Access URL: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1808-52452025000100356&lng=en&tlng=en

The impacts of unmet supportive care needs of cancer survivors in Australia: A qualitative systematic review

Authors: Olivia Bellas Emma Kemp Laura Edney et al.

Source: European Journal of Cancer Care. 31

Subject Terms: Health Services Needs and Demand, Research, unmet needs, Social Support, informational needs, 3. Good health, 03 medical and health sciences, emotional distress, 0302 clinical medicine, Cancer Survivors, Neoplasms, Surveys and Questionnaires, supportive care needs, Quality of Life, Humans, survivorship

Access URL: https://pubmed.ncbi.nlm.nih.gov/36226338